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FFS! Hopefully someone will tweet her a link to the draft NICE guidelines...

I think there's interesting difference, though, between the way the BPS crew use Twitter, and the way ME and LC advocates (sorry, activists) do. The former reveal their biases and complain about being victimised. The latter respond, on the whole, by arguing their responses very cogently. Some...

I suspect there isn't much difference between the consumer ones. They should be consistent enough to establish your 'normal', so if you're unlucky enough to get ill, you can monitor yourself. Beyond that, though, they're not massively useful day to day. I bought mine quite a few years ago as a...

Yes, I think this is important. When using a consumer-level device to establish what's normal, it's probably only going to be useful if you stick to the same one. If the device later shows readings that are consistently unusual for you, and it's definitely not just down to fading batteries, it's...

Funnily enough, I monitored mine over a week or so last year, so that I would know what's normal for me if I did get ill. It can be helpful to know this kind of thing if your readings don't tend to be typical. Just done it again: SpO2 around 93%, so same as last year. If I had coronavirus...

So she started discussing this, blocking people who raised concerns, and sympathising with Clare Gerada about being 'under attack', without actually listening to what Gerada said in the interview? Blimey.

There are lots of other clues, though. I guess when doctors were figuring out what causes Type 1 diabetes, they had to rely on these to diagnose it until someone realised that blood sugar might be important and worked out how to test it. The lack of a test didn't mean that it was impossible to...

Thank you for this. I've screenshotted the two paragraphs and combined them into one image to post on FB; others are welcome to copy and use it if useful. The direct link is here...

I've read your thoughts, @Esther12, and normally I might well join you in veering towards the sympathetic view in circumstances like this. But it's not the other pieces. It's this piece, at this moment in ME history, in this publication. If he's read and understood as much as he tries to...

:laugh: It does read as if someone's been trying to teach their AI to draft articles in preparation for the beginning of April.

Personally, I don't condemn the BMJ for publishing an opinion piece. That would only seem justifiable if they had refused to publish responses, and they haven't. Last night I saw that one response had been deleted, presumably because it was abusive or off-topic, but a number of strongly worded...

Just read that Guardian article myself – the final paragraphs stuck me too: But if there’s another lesson to be learned from Chikungunya, it is that these patients with lasting symptoms can’t simply be ignored. “Chikungunya is destroying the Brazilian health service, and it’s not so much...

Might it be quicker to list ones that are? It's not going to improve many cancers, autoimmune conditions, dementias, or even some degenerative diseases...

She's never off News 24! I've developed a bad habit of leaving it on some some days after watching the lunchtime news, and she seems to pop up onscreen at least once a week, answering some question or other about Covid. The BBC doesn't seem to know another GP/former GP.

I have an alarm installed in my house, as it's on an independent living scheme. It's one of those systems that uses a control box attached to a landline, plus a pendant or watch. I don't know whether other ME patients use them, but if you do, our local scheme has just sent information about a...

I very much hope he doesn't relapse – nobody wants to see yet another life wrecked. But if he does, he bloody well has the responsibility to say so. He decided to start this, after all.

Absolutely – but if the hypothesis is worth testing (and obviously most of us lack the knowledge to assess the merit), it strikes me as one of those that could be appropriate for applications to government-funded programmes. * If it is thought possible for the endocrine system to fall into a...

I hope that one of the centres is able to propose a study protocol that could investigate this once and for all. Scientists have been flagging the endocrine system as potentially important for decades, but the trouble is that they can't study it effectively by poking around the edges with a few...

I suspect #2 is probably significantly easier to do than #1, hence the reason for doing it that way around – though #1 may be a much more revealing question.

Indeed! I wonder if it would be worth talking to people (if no-one in the team knows already) with a knowledge of how general practice admin works? For instance, might it be possible for a practice administrator or manager to extract a list of records tagged with ME or CFS from the patient...