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  1. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Live Landmark said a couple of years ago that 5 000 people had taken Lightning Process in Norway. I've read elsewhere that 2 000 Norwegians traveled to England to take Lightning Process there before it was available in Norway. So that's 7 000 known costumers. There's probably been many more who...
  2. Kalliope

    News from Scandinavia

    Just an odd thing that struck me when reading the Dagbladet article (discussed here) about Lightning Process and patient activism. Per Fink was one of the doctors who was interviewed for the article on ME activism. He says he's had complaints about him sent everywhere, even to the European...
  3. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Capable of withstanding rough treatment from readers is exactly what a protocol for a systematic review has to be. And glue is apt for what should follow if a systematic review is to be trustworthy: the reviewers should stick to the protocol, with transparency and very solid justification for...
  4. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I didn't read all the comments under the article shared by the newspaper on Facebook, but it was pretty bad. It ended with the newspaper deleting the whole article and thus all the comments. The articles are no longer to be found on the online front page of the newspaper. Perhaps that says...
  5. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Nina E. Steinkopf, who was portrayed as a "ME activist" today in the article in Dagbladet, has written a blog post about her contact with the journalist. She also provides a critical walkthrough of the article. Dagbladet has over 1.4 million daily readers. In the Magazine, I am portrayed in a...
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    New round in Dagbladet today about the "ME war". There's a big feature article in the paper version and some articles online, one of them open. The open article online is about psychologist Nina Andresen who promotes undocumented treatments for ME. She says the complaints this has led to is an...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    An opinion piece in the Swedish newspaper Expressen. It's written by Hege Magnusson, a nurse and administrator for the Facebook group Covid-19, Vi som är drabbade (Covid-19, we who suffer from it). The Facebook group has over 8 ooo members. She calls for the public health authority and other...
  8. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Reposted at virology blog by David Tuller Trial by Error: Tack's Take on BMJ's CBT-Music Therapy "Feasibility Study" I have always made it clear that I pay attention when smart patients assess bad research. That’s how I stumbled into this whole mess in the first place–by reading what patients...
  9. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Excellent comment to the study at PubPeer by Michiel Tack! Contains an analysis where five problems with the study are identified and concludes: In conclusion, CBT combined with music therapy was associated with a high drop-out rate and lower activity levels than participants who received no...
  10. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial By Error by David Tuller: My Letter to Peer Reviewer of BMJ's CBT-Music Therapy Paper BMJ Paediatrics Open features an open–that is, non-anonymous–peer review process. Continuing my efforts to understand how a fully powered randomized trial that failed to meet expectations was published...
  11. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The newspaper Dagbladet has published a response from the Norwegian ME Association about their article on the LP study. In other words, the Norwegian ME Association welcomes research on ME or on chronic fatigue, but then clear requirements for ethics and quality must be made. And that is why we...
  12. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I'm sorry if I'm adding to your cynicism now, but that is what seems to be the plan. This is what prof. Wyller said last year in a news article about LP (my translation) - LP has worse research basis than cognitive therapy. The research is lagging, but with more research one will in time be able...
  13. Kalliope

    News from Scandinavia

    The Norwegian commercial broadcasting TV2 has an article today about Pål. A morning show to the channel recently declared him as an "Everyday Hero". Since his wife Gunn became ill with ME 15 years ago after several infections. She deteriorated after following advice from doctors to exercise...
  14. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Yes exactly. And how does he explain symptom exacerbation from happiness by receiving good news? Where's the negative expectations there? I'm not scared of activity. I love being in activity. And have learned from experience that by not pushing I can do even more of them.
  15. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    A bit off thread, but when reading further in my notes I'd like to add something he said about Lightning Process, as it might help us understand why he believes it's worth further investigation. This was from the question round (hastily translated) It's a challenge that any exertion to them...
  16. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I attended a lecture by Wyller last November and just went through my notes. This passage might touch upon the study. (Hastily translated) They've suggested a complex model for fatigue. They are trying to form, from what is known empirically, a whole where personality, infections and life...
  17. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    This is the summary of the research project on the link shared by @benji The role of immune disturbances in the pathophysiology of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) remains unknown. We propose that immune responses in CFS/ME are skewed from adaptive to innate immunity...
  18. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial by Error by David Tuller: My Letter to Senior Author of Norway's CBT-Music Therapy Study On Thursday, I sent a letter to Professor Wyller inviting him to respond to my concerns on Virology Blog
  19. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    New blog post from Nina E. Steinkopf She writes about the article in Dagbladet last Saturday, about the planned LP study and the petition against it, about what LP actually is, what other experts have said about LP, about the study design, Wyller, and what questions should have been raised in...
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