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  1. Nightsong

    Response to Michael Sharpe letter, Rowe, 2019

    https://www.acpjournals.org/do/10.5555/comment1557/abs/ https://www.acpjournals.org/do/10.5555/comment1538/abs/ https://www.acpjournals.org/do/10.5555/comment1529/abs/
  2. Nightsong

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    Wasn't hopeful that this guidance would change - especially as I'd heard that NHS pain-management clinics had adopted the new approach - but disappointing nonetheless. NICE have set up a false dichotomy with the primary vs. secondary pain concepts; there is little evidence that the conditions...
  3. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I've been listening to the video of the Michael Sharpe Swiss Re presentation on Long COVID, and there's a highly disconcerting exchange at the end (transcript and bolding mine): MODERATOR: One last question before we move on to our next speaker is regarding the change in the NICE guidelines...
  4. Nightsong

    [CFS]: Abnormally fast muscle fiber conduction in the membranes of motor units at a low-level static force load, Klaver-Krol et al, 2021

    Haven't read this one thoroughly yet, but attached a copy. Fascinating that the sEMG results in the CFS cohort were the opposite to those expected with disuse (sharp increase in conduction velocity with increasing force indicative of hyperactivated membrane function), and that there was a...
  5. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This does not seem to augur well for us, but I may yet be surprised. The draft guideline struck me very much as a closely fought compromise between two warring factions. Undoubtedly there will be many submissions, especially from those whose careers are bound up with the current "services"...
  6. Nightsong

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    The Journal of a Disappointed Man wasn't Barbellion's only published diary: his diary of his final year of life (1918-1919) was published posthumously as "A Last Diary", and is also well worth a read; I find it difficult to read books on screen, but I think you can find free PDF copies of both...
  7. Nightsong

    Covid-19 vaccination experiences

    Now at 10 days post AZ vaccine. My parents had been vaccinated at our GP surgery & said it was well-organised & the rooms used were close to the entrance, so we didn't bother to take a wheelchair, only to find they'd moved to the other side of the building, which I then had to walk - huge...
  8. Nightsong

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    https://gdt.gradepro.org/app/handbook/handbook.html#h.33qgws879zw https://gdt.gradepro.org/app/handbook/handbook.html#h.qmsmbyw3yxsl
  9. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I suspect those inclined to the current approach will diagnose more pwME with fibromyalgia; the new NICE chronic pain draft gives them carte blanche to take a thoroughly BPS approach. Alternatively, they could add a diagnosis of a "somatoform disorder", adopt Fink's "bodily distress syndrome"...
  10. Nightsong

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Busse and Guyatt's interest clearly goes beyond the application of GRADE - they were, in 2008, described in this paper as members of a "Medically Unexplained Syndromes Study Group".
  11. Nightsong

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There's some discussion of the current treatment of "long COVID" in one of the latest videos in the Royal Society of Medicine's COVID-19 series: The discussion turns from the treatment of acute COVID to long COVID in the 31st minute. Dr Glynne (general medicine, UCL) discusses some of the...
  12. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The only thing I'd add is that, these days, if a GP - or even a consultant - isn't sure how to treat or refer, they'll often consult one of the subscription-based online resources that produces short actionable summaries of the most recent guidelines. One of the most popular, Medscape's...
  13. Nightsong

    Edward Shorter’s view of Chronic Fatigue Syndrome

    An excellent review, @Michiel Tack. You cited Shorter's Feb 23 2015 blog on Psychology Today - you might be interested to know that that particular blog was a revision of a post made on Feb 19 2015 which was far more revealing (and far more abusive). The original was removed from Psychology...
  14. Nightsong

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    My first reaction was the same as that of yours, Prof. Edwards, but now I'm not so sure. We know that the development of ME/CFS can be dependent upon the severity of a precipitating infection (Dubbo et al. "the syndrome was predicted largely by the severity of the acute illness rather than by...
  15. Nightsong

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Re David Strain, there's a little more about his research interests in this article, from December, in the Biomedical Scientist:
  16. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    If this is indicative of the general quality of BPSer submissions, then we have absolutely nothing to worry about. The listed author is Ingrid B. Helland, who according to the employees page of the "national competence service", is a specialist in paediatric neurology. I wonder if she'd...
  17. Nightsong

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    From a quick skim: the advice on helping patients to manage their day-to-day lives with ME is generally very helpful indeed. The request for the inclusion of a reference to gradual as well as specific-onset ME is one I hope the committee will take up. The recognition that audits of existing...
  18. Nightsong

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is from the Dorset "COVID-19 Rehabilitation" guide. I've been browsing through some other NHS hospitals' post/long-COVID patient advice booklets; others include City & Hackney, Rotherham, Enderley, Blackpool, Leeds, Plymouth, Berkshire, and Sherwood Forest. The advice given is drearily...
  19. Nightsong

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Here's another early one, from Komaroff's contribution to the CIBA Conference in 1993:
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