Search results

Chairman of the Norwegian ME Association, Bjørn K. Getz Wold wrote a good response to Dagbladet and their recent coverage about the "ME war". A pity they didn't want to publish it, but it's available on the association's website. Contrary to Dagbladet, we believe it is high time that ME...

The Norwegian ME Association has asked the Norwegian Institute of Public Health (FHI) a few questions. Among other about the institute's support of Live Landmarks LP study. They received an answer 1st of April written by the director herself, Camilla Stoltenberg and Centre Director Per Magnus...

Only had a brief look when I saw Retraction Watch sharing it earlier today on twitter. Seems to drag ME patients into the conspiracies :(

Blog post from Nina E. Steinkopf Wyller's hypothesis from 2007 is that CFS / ME is a sustained arousal stress response and that personality, emotions and psychological trauma contribute to the development of the disease. The hypothesis is still not proved. Here is an overview of 39 scientific...

The Swedish newspaper Expressen had yesterday an article about 27 year old Sofia who suffers from Ehler-Danlos syndrome and ME, but wasn't correctly diagnosed until she moved to Stockholm. She talks about a life with a lot of pain and wrong treatments until she finally met a doctor who gave...

Signe Flottorp, research director at the Norwegian Institute of Public Health (FHI) sent a letter to the Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM) in April this year, before the Dagbladet article. In the letter she asked them to retract and apologise...

Jørn Tore Haugen has written a letter to Dagbladet criticising their article. It's also available as a guest blog at Sissel Sunde's blog "Life With ME By Sissel". The letter is available in both Norwegian and English. Simplifying, one can say that Wyller, Flottorp, etc. builds their line of...

chef’s kiss [ shefs kis ] WHAT DOES CHEF'S KISS MEAN? Chef's kiss is a gesture and expression meant to show something is perfect or excellent. The gesture is made by pinching the fingers and thumb of one hand together (often in an OK sign), kissing them, and then tossing them dramatically away...

Trial By Error: Letter to BMJ Paediatrics Open About that CBT-Music Therapy Study I sent the following letter today to the editor-in-chief of BMJ Paediatrics Open–Imti Choonara, Emeritus Professor in Child Health at University of Nottingham. I cc’d Fiona Godlee, editorial director of BMJ, to...

Live Landmark said a couple of years ago that 5 000 people had taken Lightning Process in Norway. I've read elsewhere that 2 000 Norwegians traveled to England to take Lightning Process there before it was available in Norway. So that's 7 000 known costumers. There's probably been many more who...

Just an odd thing that struck me when reading the Dagbladet article (discussed here) about Lightning Process and patient activism. Per Fink was one of the doctors who was interviewed for the article on ME activism. He says he's had complaints about him sent everywhere, even to the European...

Capable of withstanding rough treatment from readers is exactly what a protocol for a systematic review has to be. And glue is apt for what should follow if a systematic review is to be trustworthy: the reviewers should stick to the protocol, with transparency and very solid justification for...

I didn't read all the comments under the article shared by the newspaper on Facebook, but it was pretty bad. It ended with the newspaper deleting the whole article and thus all the comments. The articles are no longer to be found on the online front page of the newspaper. Perhaps that says...

Nina E. Steinkopf, who was portrayed as a "ME activist" today in the article in Dagbladet, has written a blog post about her contact with the journalist. She also provides a critical walkthrough of the article. Dagbladet has over 1.4 million daily readers. In the Magazine, I am portrayed in a...