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  1. Sly Saint

    Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults

    Abstract Background The poorer physical health of autistic adults compared to non-autistic adults has been highlighted by several epidemiological studies. However, research has so far been limited to specific geographical areas and has primarily focused on young autistic individuals (aged 35...
  2. Sly Saint

    Solve M.E. Patient and Caregiver Resource Guide: Post Exertional Malaise (PEM) and Rest

    agree. something more along the lines of the NZ PEM video. https://www.s4me.info/threads/post-exertional-malaise-in-me-cfs-webinar-for-health-professionals-dr-cathy-stephenson.33887/
  3. Sly Saint

    The course of self-perceived cognitive functioning among patients with lymphoma and the co-occurrence with fatigue and psychological distress

    Abstract Purpose To investigate the proportion of patients with lymphoma with persistent clinically relevant cognitive impairment, and its relation to treatment, fatigue, and psychological distress. Methods Patients with diffuse-large-B-cell-lymphoma (DLBCL), follicular-lymphoma (FL), and...
  4. Sly Saint

    Haematopoietic stem cell transplantation for treatment of relapsing-remitting multiple sclerosis in Sweden: an observational cohort study,2023

    Abstract Background A growing evidence base supports the use of autologous haematopoietic stem cell transplantation (aHSCT) for treatment of relapsing-remitting multiple sclerosis (RRMS), but it has not yet been integrated into most national clinical guidelines. The objective of this study was...
  5. Sly Saint

    Platelet-derived exerkine CXCL4/platelet factor 4 rejuvenates hippocampal neurogenesis and restores cognitive function in aged mice, 2023

    Study could lead to injections that replicate brain benefits of exercise Study could lead to injections that replicate brain benefits of exercise (msn.com)
  6. Sly Saint

    Platelet-derived exerkine CXCL4/platelet factor 4 rejuvenates hippocampal neurogenesis and restores cognitive function in aged mice, 2023

    Abstract The beneficial effects of physical activity on brain ageing are well recognised, with exerkines, factors that are secreted into the circulation in response to exercise, emerging as likely mediators of this response. However, the source and identity of these exerkines remain unclear...
  7. Sly Saint

    Patients with fibromyalgia left in agony due to 'cruel' ban on drugs by NHS chiefs to treat the chronic pain condition

    https://www.dailymail.co.uk/health/article-12552471/NHS-chiefs-cruel-ban-drugs-treat-chronic-pain-condition.html
  8. Sly Saint

    Distinguishing features of Long COVID identified through immune profiling, 2022, Klein, Iwasaki et al

    Distinguishing features of Long COVID identified through immune profiling Distinguishing features of Long COVID identified through immune profiling | Nature eta: various outlets have articles Scientists edge closer to finding a biomarker for long Covid, which could lead to better tests and...
  9. Sly Saint

    Atopy and Elevation of IgE, IgG3, and IgG4 May Be Risk Factors for Post COVID-19 Condition in Children and Adolescents 2023, Korner et al

    Abstract: SARS-CoV-2 infection causes transient cardiorespiratory and neurological disorders, and severe acute illness is rare among children. Post COVID-19 condition (PCC) may cause profound, persistent phenotypes with increasing prevalence. Its manifestation and risk factors remain elusive...
  10. Sly Saint

    A brief overview of SARS-CoV-2 infection and its management strategies: a recent update 2023, Das et al

    Abstract The COVID-19 pandemic has become a global health crisis, inflicting substantial morbidity and mortality worldwide. A diverse range of symptoms, including fever, cough, dyspnea, and fatigue, characterizes COVID-19. A cytokine surge can exacerbate the disease’s severity. This...
  11. Sly Saint

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Any feedback from the LC community? I'm guessing that many are either unaware that the review is also cited in many instances in relation to proposed 'treatment'/therapy for LC, and then there are those who just refuse to acknowledge any correlation with all things ME/CFS.
  12. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    "Sly Saint said: ↑ "None of the Chaldean wise men are able to even read, let alone interpret, the writing on the wall". No, but it is uncannily prophetic.:brb: ie Chalders 'wise men' (take your pick out of list of authors) haven't got a clue.
  13. Sly Saint

    Long Covid in the media and social media 2023

    Moderators stop removing me/cfs content : r/covidlonghaulers (reddit.com)
  14. Sly Saint

    Thesis Distress and coping in ME/CFS: Understanding the role of perfectionism and self-compassion, 2022, Houston

    ..................particularly if a cup of tea and a biscuit are on offer afterwards.
  15. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    https://en.wikipedia.org/wiki/Belshazzar's_feast eta: "None of the Chaldean wise men are able to even read, let alone interpret, the writing on the wall"
  16. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    write up of the paper from Oslo University (in english): Oslo Chronic Fatigue Consortium Offers a Fresh Perspective on Chronic Fatigue Syndromes and Post-Covid Conditions...
  17. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    no mention of harms? conclusive evidence of recovery without fiddling the results? talk about echo chamber. Do they ever listen to patients, or read other research, reviews,reports other than their own? (looking at the citations, nah).
  18. Sly Saint

    Long COVID quality of life and healthcare experiences in the UK: a mixed method online survey 2023,Owen et al

    Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients’ experiences must...
  19. Sly Saint

    News from Austria and Switzerland

    Suffering from ME and completely disconnected from life https://thestoriest.com/health/348725.html
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