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Abstract There is a clear clinical overlap between fibromyalgia, myalgic encephalomyelitis, and post-COVID 19 condition. Chronic fatigue, cognitive impairment, and widespread pain characterize these 3 syndromes. A steady line of investigation posits fibromyalgia as stress-evoked...

6000 yay

ANZMES video Episode 6 Know ME - Respiratory and Complementary Medicine

Long Covid is a new name for an old syndrome https://www.statnews.com/2023/09/14/long-covid-me-cfs-myalgic-encephalomyelitis-chronic-fatigue/ I get the feeling that this is promoting a bps approach; ie rehab rather than finding a cure (?)

although not incorrect (as plural of stigma) maybe 'stigmas' would have been better choice given the other meaning of stigmata.

at end of the main paper it says: "Exercise had no beneficial effect on fatigue symptoms or quality of life in our study." ??

Physical exercise as a treatment for persisting symptoms post-COVID infection: review of ongoing studies and prospective randomized controlled training study Kogel et al Abstract Background and purpose No evidence-based treatment is available for patients with persisting symptoms post-COVID-19...

FDA rules TODAY that ingredient in Benadryl and Sudafed from pharmacy shelves don't work | Daily Mail Online

Specialist Treatment for Children & Young People with Fatigue Information Leaflets Energy management "When can I increase my activity levels? When you have managed 2 weeks of the same activity daily, you can start to increase by 10% a week. We will review this with you in your...

Opinion | Covid is here to stay. That means long covid is, too. https://www.washingtonpost.com/opinions/2023/09/12/long-covid-pandemic-kaine-treatment/

sorry I haven't read all posts here but an important issue that all the assessments don't seem to take into consideration (ESA and DLA I don't know about PIP) is that being able to do ordinary daily necessary activities (eg getting washed, dressed, preparing food etc) are all used as indicators...

Covid’s back, you say? As disabled and vulnerable people know all too well, it never went away: Opinion by Frances Ryan Covid’s back, you say? As disabled and vulnerable people know all too well, it never went away (msn.com)

I don't know. They are still submitting accounts to the charity commission but their finances seem to have run out. Jane Colby stopped tweeting some time ago. eta: https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/3971452/charity-overview

another UK one is The Grace Charity for M.E. https://www.thegracecharityforme.org/ also The Young ME sufferers trust (TYMES trust) https://www.tymestrust.org/

L’ASFC vous offre "le petit guide du pacing" https://www.asso-sfc.org/asfc-actualites-details-478.php?zan_id=478

Institute for Neuro-Immune Medicine Clinical Research Research studies https://www.nova.edu/nim/research-studies/research-studies.html

it's a shame that other than tagging there is no other way of contacting members (eg by email), particularly those who maybe don't come on the forum very often. (I know she has retired, but @Valerie Eliot Smith might be interested).

has anyone contacted/tagged @PhysiosforME , Doctors with ME (@EducateME ), Long Covid Physios, Invest in ME (@Mike Harley )

Disability benefit bill set to be slashed as tough new rules announced (msn.com)

NHS bosses approve drug that fights arthritis linked to psoriasis that affects thousands of young people and is suffered by Kim Kardashian | Daily Mail Online