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Interestingly that is probably not very different from what you would get if a video was made by Recovery Norge on the Lightning Process. Clearly people with MS get pleasure out of proving to themselves that they can do exercise and will no doubt get the buzz anyone gets, unlike PWME, but...

I don't think anyone is suggesting anything new is happening. Quite the opposite, the concern is that it is more of the same. What I was trying to pinpoint is that both the NICE Guideline (2021) and the BACME document on severe ME/CFS use this terminology of 'agreeing a plan' and focus on it as...

Not sure what the question is but my point is that the programme is to help people judge when to try new tasks and very often it is a matter of taking it more slowly.

I would be interested to know if there are. Having looked at studies around ME/CFS I came to realise that useless methodology was standard. The Cochrane exercise for ME/CFS review, in one version, was sent to me for peer review. My first, and last, thought was that not one of the studies was...

What I don't understand is if there is a problem with adequate cerebral blood flow what you want is no autoregulation - just open up the tubes and let the blood run - with maximal phase synchrony. I would worry about anything purporting to show that giving people phenylephrine was good for...

I haven't read in detail but it seems very confusing. If people with ME/CFS did not show auto regulation and had fixed phase synchrony that presumably means that they were not constricting brain blood vessels - which would seem likely to increase blood flow. Maybe it indicates a normal response...

Yes, that was a new one to me.

If cumin was anti-inflammatory in real life some pharmaceutical company would have made billions out of generating a cumin-based drug by now. The haven't. If cumin was anti-inflammatory n real life at least one of the thousand or so patients I looked after with inflammatory arthritis would have...

If POTS was due to hyper ventilatory hpocapnia then solving it would be easy - just stop over-breathing. I doubt anyone here thinks that is realistic.

I would be more sanguine and concise: Hard to see how there is going to be any real Cochrane soon. That might leave the review in place but it might lose a bit of gloss coming from a defunct source.

We could call it the Mad Docs in the John Prize and after twenty years could issue a Christmas compendium for light reading while waiting for nature to take its course.

Yes, but giving two antidotes to each other at the same time is sort of creative. Certainly in the short list. Actually I miswrote. I checked Google. Ascorbate is not a reducing agent it is (in bold) a very strong reducing agent.

And if you go private you just get told to do what you like it seems - I just asked my neighbour with a new knee. Except I suppose if they can claim more from BUPA by adding in some gym sessions.

Well now. Ascorbic acid is a reducing agent. They gave 25-50gm. I only read the abstract but this seems to have been mixed with 3ml of 3% H2O2, which would be 90mg. The molecular weight of ascorbate is 176, of H2O2 34. Assuming that one ascorbate can reduce one H2O2 I work that out at there...

The point I was making is that in none of these valid situations is the term 'qualitative research' ever used. The term was developed sometime around thirty years ago specifically to justify research that was trying to prove some sort of cause and effect but wasn't up to the job. We constantly...

Don't assume anything is based on reliable evidence. My time in rehabilitation was merciful brief but at the end, when my frustration was clear to my consultant seniors the deputy director gave me a chat and apologised for my having to plan and manage what was mostly 'drivel'. We agreed that...

Actually, one might add that these days what you buy in the supermarket called bleach does bu**** all, but that is the price you pay for being a bit more careful than when we were kids.

H2O2 is a bleaching agent, as anyone with peroxide blonde hair knows. It is not bleach if that term is being used to mean chlorine containing oxidising agents like hypochlorite but it is a bleach in the sense that it bleaches. The term bleach is also appropriate since H2O2 kills both bacteria...

Since when did not having an 'exercise programme' mean stopping doing anything? In addition to: DO MORE and DO LESS There is: Just take things how it works for you. We aren't needed here. Symptom guided living, not exercise.

Isn't just the belief that R is beneficial the problem? Where in any of this is R justified? Encouraging activity is central to rehabilitation they say. But who says rehabilitation is good? Maybe by rehabilitation they mean the outcome of being rehabilitated? So R is good by definition. But them...