Search results

The study states this about the Penn State Worry Questionnaire: "The PSWQ is considered a valid and reliable measure of problematic worry for patients with CFS.” But this sentence is not referenced. Who considers this scale "valid and reliable" for CFS patients? I found only one study of CFS...

The woman has been studying CBT for CFS for 30+ years. She just noticed that patients worry??

Jo, this is interesting. I guess when I've seen that general meme I've understood it as meaning what I assumed VanE meant--that people with what would actually be MS (or myasthenia) were being misdiagnosed as having hysteria, not specifically that those who recognized MS called it hysteria...

I wasn't aware of prior reports that hamsters were experiencing long covid. Who knew??

I guess I don't understand this point. I didn't see VanE reference MS as an analogy for ME. I don't think his tweets mentioned ME. I can see the literal meaning of the first tweet could easily be how you interpreted it. But I just read it differently--as him noting that people in the past have...

Yes, I can understand why it might be read that way, and it might have been sloppily phrased, but I think his meaning was clearer from the context of subsequent tweets like this one, in which he cited a study that noted how cases of MS were often misdiagnosed as hysteria despite the existence of...

I didn't read VanE's tweet to mean no one knew the pathology before scans but that people were often misdiagnosed as having hysteria.

good points. I haven't read it yet--just going by what was posted here, and by the people involved. I'll take a look.

The claim that the uninfected also suffer the same symptoms seems like a real stretch, since that was the message of the very flawed French study that came out not long ago--basing "infection" on serology alone is seriously problematic. I'm not sure why this case they seem to be making--that...

you mean like Herbert Hoover?

I've only seen the headlines. Does the research imply that this is THE cause for all MS or that it is a necessary or contributing factor in many cases? Also, does mono/glandular fever only occur in adolescents/adults with newly acquired EBV infection? If you acquired it, like many, in early...

what was this?

this is the best approach with Tucker Carlson.

Ah, I see--thanks for the explanation. I didn't realize that just from the article. It's the first I'd heard about the concept of a "pacing coach." I guess it would be good to have a support person but should learning to pace really require paying someone to help you?

did she write about brain retraining programs? I didn't see that in the article. I'd never heard of "pacing coaches" before.

what did her author's twitter thread have to say? I haven't read the Times article--it's behind a paywall.

Right. it's listed as an outcome but doesn't seem to be one of the formal outcome measurements, especially because they are using it only at end-of-treatment, not at the follow-up point.

Exactly. it can't.

Has NIHR cut off Cochrane's funding, and if so, why?

Interesting. I think other studies generally average over the seven days (I think it's usually that, not 14 days, in these studies) and do not break down the changes across the time period. Or maybe they do?