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    Mother Jones article: Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real?

    To be clear, I was meaning claimed success stories--we have no idea that the treatment had any impact at all
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    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    wow, very thorough! Hope you get a response. I feel sorry for the student, who is obviously being steered wrong. I just posted on Facebook about it.
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    Mother Jones article: Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real?

    If I were writing this piece, i would have tried to interview patients who felt helped by the treatment and presented at least one such story, while also explaining that anecdotal recoveries do not mean anything scientifically and that the science doesn't show that at all. But part of the story...
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    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    i can't tell if the actimeter data are considered actual outcomes. Where do you see that this will not be measured at the very end?
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    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    The subtitle about "the impact" of emotions presupposes the conclusions. Unfortunately, given that it's a cross-sectional survey, it will be impossible to tease out cause and effect. It seems pretty clear that these illnesses will be associated with troubled emotions/relationships. We know that...
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    Mother Jones article: Desperate Patients Are Shelling Out Thousands for a Long Covid Cure. Is It for Real?

    I haven't read it yet, but I know the reporter and she's very smart.
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    Australia: RACGP: GET for CFS

    thanks. yeah, I see that. that explains why it was written this way. it's weird that it's still up, as if time has stood still for six years.
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    Australia: RACGP: GET for CFS

    This is a current publication??
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    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    this is interesting. I never heard anyone in the 80s or 90s, before protease inhibitors changed the picture, describe their HIV-related symptoms in anything remotely resembling what I hear in relation to PEM. Fatigue, yes.
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    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    Oxford NHS foundation trust also produced the covid recovery advice based on CBT/GET that they then took down.
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    Chronic Fatigue Syndrome and Occupational Status: A Retrospective Longitudinal Study, 2021, Chalder et al

    The journal has written us back that our letter has been sent to the authors for their response. The journal promises to get back to us with a plan of action, likely next month.
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    USA - Mayo clinic

    Gee, ya think?
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    What treatments work for anxiety and depression in children and adolescents with [CFS]? An updated systematic review, 2021, Clery et al

    Nice that they got to shoehorn in Crawley's LP study, however. I doubt this paper mentions that study's 3,000-word correction. Edited: Out of an excess of discretion, I removed a very derisive adjective before "LP study." It was true but I decided to remove the word anyway.
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    Ric Arseneau, Clinical professor of internal medicine, University of British Columbia, Canada

    I wrote about that 2019 presentation from McMaster University here. The "findings" are meaningless: https://www.virology.ws/2020/09/02/trial-by-error-what-is-the-dynamic-neural-retraining-system/
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    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    Secondary generational trauma because their parents or grandparents were victims of domestic partner violence?
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    Intimate Partner Violence and the Risk of Developing Fibromyalgia and Chronic Fatigue Syndrome, 2019, Chandan et al.

    No, they are incapable of conjuring such thoughts or other reasonable explanations, it would seem. They are trapped in their own self-delusions.
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