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  1. shak8

    Do Psychological Factors Influence the Elastic Properties of Soft Tissue in Subjects with Fibromyalgia? 2022 Navarro-Ledesma et al

    The lived minute to minute experience of fibro pain when severe is this: you cannot stretch affected muscles, they just don't. You are not catastrophizing (=exaggerating) the pain. The pain is pervasive, persistent, huge. Thor has you in the grip of his huge hands and is squeezing your muscles...
  2. shak8

    USA: MEDvidi website

    Thanks...sent them an email.
  3. shak8

    USA: MEDvidi website

    Their website has no email address to write a complaint to. A telephone number in San Jose, California. Many locations, probably a franchise-type operation. Cash-based
  4. shak8

    Jarred Younger Lab: New Chronic Disease Survey using machine learning (December 2022)

    Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to supply via email, haven't heard yet from them). (Beginning of the email, in full): "Here at the Neuroinflammation, Pain, and Fatigue Laboratory we...
  5. shak8

    Vegetable prep - seeking suggestions

    I dump some bottled basil pesto (from small jar) onto vegs. Makes anything taste superb.
  6. shak8

    Altered recognition of fearful and angry facial expressions in women with fibromyalgia syndrome: an experimental case–control study 2022 Scarpina

    A more nuanced facial recognition study was referenced in the Washington Post today: "Facial expressions may be an unreliable way to read emotions" (https://wapo.st/3W6Ebjg) Based on this study: "Genetic algorithms reveal profound individual differences in emotion recognition"...
  7. shak8

    Clinical effects of wasabi extract containing 6-MSITC on myalgic encephalomyelitis/chronic fatigue syndrome: an open-label trial 2022 Oka et al

    Reminds me of the tumeric craze for osteo-arthritis and whatever ails one. Even my primary care doc said (he was just about out the door)"a lot of my patients swear that tumeric helps them." Thanks, Dr. Anecdote. Turns out that the gut doesn't absorb the tumeric. Very very little enters the...
  8. shak8

    "My Fibro Family!" A qualitative analysis of facebook fibromyalgia support groups' discussion content (2022) Crump and LaChapelle

    I read the study. I am glad the researchers listed the salient comments by the FM participants. That is a valuable service! Thank you. Saved me some time. Do it again, please. But here, the researchers show that they are not aware that IBS, for instance, is a known part of the FM symptom...
  9. shak8

    "My Fibro Family!" A qualitative analysis of facebook fibromyalgia support groups' discussion content (2022) Crump and LaChapelle

    Ho-hum on the utility of this research paper and any future meanderings on the topic. The quality of information and therefore its usefulness is poor in the average support group. "This worked for me, you should try it." I've had FM for 26 years. There was a great online support/information...
  10. shak8

    An Integrative Neuropsychological Approach to Chronic Pain, Emotions and Clinical Symptoms, 2022, Montoro and Galvez-Sánchez

    Back in the 1990s there was a flurry of biomedical research into FM. Dr. Robert Bennett's group in Univ. of Oregon, for example, looked at cerebral spinal fluid and found levels of Substance P elevated in FM. He discovered that growth hormone levels low, related to sleep problems. All of this...
  11. shak8

    Lifestyle Redesign® Intervention for Psychological Well-Being and Function in People With Fibromyalgia:A Retrospective Cohort Study 2022 Shomer & Roll

    How would OT improve on the usual chronic pain classes I wonder. Maybe they would emphasis pacing, using joint-sparing devices. Who knows. Or it's another entrepreneurial venture (hence the trademark) destined to cost the US more than it already spends on health care. I'm trying to stay...
  12. shak8

    An Integrative Neuropsychological Approach to Chronic Pain, Emotions and Clinical Symptoms, 2022, Montoro and Galvez-Sánchez

    Yes, Carmen Galvez-Sanchez of Jaen and her group focus on chronic pain. Their mixing up of cause and effect is most unhelpful. Apparently, they have no idea how severe having FM chronic pain can be and how the experience of pain itself can make one depressed in the moment, usurp any precious...
  13. shak8

    Looking at fibromyalgia differently – An observational study of the meaning and consequences of fibromyalgia as a dimensional disorder 2022 Wolfe et a

    The 2016 FM diagnostic instrument (https://www.fmauk.org/files/acr2016FibroCriteria.pdf) is simple enough, and is referenced in the article by Woolfe, F; et al. This is the main value of the article for me, seeing this instrument, a supposed improvement over the 2010 ACR (American College of...
  14. shak8

    I'm a Neurologist, Hear Me Roar — If I wasn't believed when seeking care, what chance do non-physicians have?

    Not doing an MRI on a colleague, can you believe it. Beyond the pale. i think that rational thought is missing most of the time in our species, and doctors are not 'special people' over-endowed with superior brains.
  15. shak8

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    Forest bathing comes from the Japanese. Since they have a tradition of nude bathing with both sexes and all ages especially in hot-springs, or bath houses en ville, I get the "bathing" experiential part. Immersing yourself in (water) or an environment with all your senses and a social equalizer...
  16. shak8

    Fibromyalgia and nonfibromyalgia chronic pain: Differences in psychological characteristics and treatment outcomes, 2022, Salaberria et al

    I'm trying to process my doctor visit last week out of my system. This doctor prides himself on all that he thinks he knows about FM. He verbally bombarded me with his recitation from memory: the FM treatments: FDA meds/tai chi/yoga/mindlessness...I came out of there feeling that I was less of...
  17. shak8

    Fibromyalgia and nonfibromyalgia chronic pain: Differences in psychological characteristics and treatment outcomes, 2022, Salaberria et al

    From my reading about FM (which seems more now a diagnosis separate from the term 'chronic pain' in lists in medical departments) but whatever: Some of the literature that emphasizes anxiety and depression in FM---this 'fact' could be attributed to (from what I've read) the degree of brain...
  18. shak8

    Affective scaffolding and chronic illness: 2022 Eleanor Alexandra Byrne

    "...Fibromyalgia, whose aetiology is ultimately unknown..." Ultimately known. Really? As yet unknown.
  19. shak8

    Distinctive alterations in the functional anatomy of the cerebral cortex in pain-sensitized osteoarthritis and fibromyalgia patients 2022 Pujol et al

    Not that I'm qualified to assess this study, but I find it useful (me having FM and having a distinct lack of what the researchers in this MRI department in Barcelona call a 'cortical map of the body'). I don't chafe at the use of the word 'functional' in looking at brain networks in MRI...
  20. shak8

    Feasibility and Acceptability of a Home-Based Sensory Perception Training Game for Patients with Fibromyalgia: A Pilot Study 2022 Demoulin et al

    My FM guess is that the 'somato-sensory' training is the usual : focus on other parts of body not experiencing pain. Or really feel the pain in as minute a way as possible, experience it fully. Either way, you still have the pain. But alas, don't have access to more than abstract.
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