The lived minute to minute experience of fibro pain when severe is this:
you cannot stretch affected muscles, they just don't. You are not catastrophizing (=exaggerating) the pain. The pain is pervasive, persistent, huge.
Thor has you in the grip of his huge hands and is squeezing your muscles...
Their website has no email address to write a complaint to. A telephone number in San Jose, California.
Many locations, probably a franchise-type operation. Cash-based
Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to supply via email, haven't heard yet from them).
(Beginning of the email, in full):
"Here at the Neuroinflammation, Pain, and Fatigue Laboratory we...
A more nuanced facial recognition study was referenced in the Washington Post today:
"Facial expressions may be an unreliable way to read emotions" (https://wapo.st/3W6Ebjg)
Based on this study:
"Genetic algorithms reveal profound individual differences in emotion recognition"...
Reminds me of the tumeric craze for osteo-arthritis and whatever ails one.
Even my primary care doc said (he was just about out the door)"a lot of my patients swear that tumeric helps them."
Thanks, Dr. Anecdote.
Turns out that the gut doesn't absorb the tumeric. Very very little enters the...
I read the study. I am glad the researchers listed the salient comments by the FM participants. That is a valuable service! Thank you. Saved me some time. Do it again, please.
But here, the researchers show that they are not aware that IBS, for instance, is a known part of the FM symptom...
Ho-hum on the utility of this research paper and any future meanderings on the topic.
The quality of information and therefore its usefulness is poor in the average support group. "This worked for me, you should try it."
I've had FM for 26 years. There was a great online support/information...
Back in the 1990s there was a flurry of biomedical research into FM. Dr. Robert Bennett's group in Univ. of Oregon, for example, looked at cerebral spinal fluid and found levels of Substance P elevated in FM. He discovered that growth hormone levels low, related to sleep problems. All of this...
How would OT improve on the usual chronic pain classes I wonder. Maybe they would emphasis pacing, using joint-sparing devices. Who knows.
Or it's another entrepreneurial venture (hence the trademark) destined to cost the US more than it already spends on health care. I'm trying to stay...
Yes, Carmen Galvez-Sanchez of Jaen and her group focus on chronic pain. Their mixing up of cause and effect is most unhelpful.
Apparently, they have no idea how severe having FM chronic pain can be and how the experience of pain itself can make one depressed in the moment, usurp any precious...
The 2016 FM diagnostic instrument (https://www.fmauk.org/files/acr2016FibroCriteria.pdf) is simple enough, and is referenced in the article by Woolfe, F; et al. This is the main value of the article for me, seeing this instrument, a supposed improvement over the 2010 ACR (American College of...
Not doing an MRI on a colleague, can you believe it. Beyond the pale.
i think that rational thought is missing most of the time in our species, and doctors are not 'special people' over-endowed with superior brains.
Forest bathing comes from the Japanese. Since they have a tradition of nude bathing with both sexes and all ages especially in hot-springs, or bath houses en ville, I get the "bathing" experiential part. Immersing yourself in (water) or an environment with all your senses and a social equalizer...
I'm trying to process my doctor visit last week out of my system.
This doctor prides himself on all that he thinks he knows about FM. He verbally bombarded me with his recitation from memory: the FM treatments: FDA meds/tai chi/yoga/mindlessness...I came out of there feeling that I was less of...
From my reading about FM (which seems more now a diagnosis separate from the term 'chronic pain' in lists in medical departments) but whatever:
Some of the literature that emphasizes anxiety and depression in FM---this 'fact' could be attributed to (from what I've read) the degree of brain...
Not that I'm qualified to assess this study, but I find it useful (me having FM and having a distinct lack of what the researchers in this MRI department in Barcelona call a 'cortical map of the body').
I don't chafe at the use of the word 'functional' in looking at brain networks in MRI...
My FM guess is that the 'somato-sensory' training is the usual : focus on other parts of body not experiencing pain. Or really feel the pain in as minute a way as possible, experience it fully. Either way, you still have the pain.
But alas, don't have access to more than abstract.
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