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You it ought to be in your records also if you ask for another copy and they do the same you’d hopefully remember to ask for a copy. I can’t remember if you’ve got a smart phone you could take a photo of it. Xx

Over 65 https://www.nhs.uk/conditions/vaccinations/pneumococcal-vaccination/ Info from UK ME Association https://meassociation.org.uk/2020/09/pneumonia-and-the-pneumococcal-vaccine/

Been for my flu jab at the GP surgery. They open on a couple of Saturdays for sessions where the building and team is given over to vaccination with a one way system. I didn’t know Covid would be available as well (possibly they didn’t know if they would get their delivery in time). It was...

In his entry on ME Pedia there’s a reference to 2018 BMJ update article he wrote so presumably this is an update which might explain some of the more outdated wording.

Yeah let’s face it White and his ilk are unlikely to ever shut up. It’s about who is still listening to them. When you’re trying to get any type of change there will always be naysayers, the dinosaurs. What’s important is to minimise their influence. Having the likes of NICE and prof Barry et...

Signed

All that’s been indicated in writing from the Cochrane office team is that a project update will be published. Call me sceptical :whistle: but I will eat my hat if anything substantial addressing the letter is in it. Maybe a timescale. In the absence of any substantive response I don’t...

I definitely agree about the cumulative aspect of tasks being relevant but I think concentrating for 2 hours would cover multiple tasks in the same timeframe what really was the last straw for me when I was working part time was teleconference times getting changed so I had 3 back to back...

In terms of the levels would you have said doing 46-54 were at level 5 this rarely affects other activities or 6 unproblematic.? If for example concentrating on something for 2 hours continuously scored at 4 I would have to limit other activities on the same day or 3 I can do little else on...

On my second attempt I decided not to bother ticking any of the boxes for anything. As a straight agree/disagree doesn’t represent my response I included “Ok as far as it goes” where relevant in the text box. I did say yes to those types of comments have been made to me.

Well after managing to lose my response yesterday I started again today. No doubt what I submitted wasn’t what I would have done if the set up had been fit for purpose. I managed to make most of my points. Echo what Trish said about comments being sharper towards the end and even though I did...

Now 8057 :thumbup:

“In the next few weeks” is highly elastic and therefore meaningless as a timeframe - fudge referring to “last month” in a response on the final Friday of a month is also fudging, giving the impression that it refers to August (before the letter) when it could mean in the last month September...

Having attempted to get my head round it properly yesterday with the help of @Lucibee s doc and @Yvonne comments together with the @PhysiosforME and ME Association comments I had to stop The wording of questions do you agree disagree is there information missing etc are unhelpful, the structure...

Thanks to whoever is on top of getting notes added to his tweets.

Good to see Norway & UK collaboration :thumbup:

I’ve got a smart meter. It’s like having a Fitbit for your power. You know what you’re using.

Seems like the Guardian is able to identify and highlight that SMC panel having a majority of experts as people with links to business interests. Pity they don’t see financial interests of experts promoting CBT/GET in the same way.

I’ve started doing the basic app this week. It seems pretty quick/undemanding and it will be interesting to see if there’s any value for me in having the daily hrv and symptom info recorded when I’ve got a couple of months worth

Looks like the I paper which was an offshoot of the independent but is now separate @Dolphin