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  1. rvallee

    Preliminary ICF core set for patients with myalgic encephalomyelitis/chronic fatigue syndrome in rehabilitation medicine, 2020, Ekholm et al

    Without looking at the details it's hard to say but this looks useful at first glance. Numbers appear a bit low, frankly, I'm not sure how one can have a diagnosis of ME without some form of impairment, other than in remission. What's hardest is in building a sample representative of the range...
  2. rvallee

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    This is basically false advertisement. There is no credible basis for those claims. Making outlandish claims is a clear marker of fraudulent research. This is part of why people distrust experts. That and reactionaries who point at stuff like that and yell "See? All they do is lie about their...
  3. rvallee

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Is it really research when you can predict, almost verbatim, what will in be the conclusions? And when your conclusions contain the very questions that are supposed to be answered, unanswered, is it really meaningful research? This is "research" that contributes nothing. I have no idea what...
  4. rvallee

    Psychosocial Interventions and Immune System Function

    I'm sorry but this reads exactly like detoxing or optimizing the immune system or other junk pseudoscience. How does someone make the mental leaps from inflammation to CBT? And if we are talking about the possibility of half of all mortality, it really sounds like efforts should be somewhere...
  5. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's a weird framing. Tuller is not a "senior fellow" because Berkeley's website says it, he is a senior fellow because the Berkeley faculty decided so. Nitpicky but still, what is with the weird framing?
  6. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's the actual suggestion they are making and frankly this is on the same level as 5G is giving people COVID.
  7. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Recovery Norge has a direct financial and reputational conflict of interest here. I understand this is a tabloid but running this is basically free advertisement for a commercial product that is organized in the form of a pyramid scheme. Recovery Norge has no other stakes involved here, they are...
  8. rvallee

    Covid-19 - Psychological research and treatment

    They can't even do that in normal times so this is either straight up delusional or a blatant scam, likely both. IAPT is a complete disaster and they've been working on that for years with zero oversight or pressure and it could not produce worse results. BPS has been around for decades and they...
  9. rvallee

    Nurses for ME

    This could be good but what is the reference to the CMRC education? Involving this organization does not bring confidence in the slightest. If they even exist anymore? Seeing as they do no visible work anyway.
  10. rvallee

    Judy Mikovits

    Oh, sure, it makes total sense to blame those most hurt by a debacle about which we had no direct involvement. Absolutely. Smart.
  11. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It's weird, I didn't really catch on just how incredibly weird and frankly insane the war rhetoric is in the first place but this is a good point to raise. If there is any war analogy to be used it's one of a hostile occupying force engaged in oppression of a vulnerable population, a completely...
  12. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Ridiculous response. This study in its current form offers nothing of value and medical authorities should not be in the business of funding random alternative treatments that exist in the form of commercial products, especially ones that make blatantly unscientific false claims based on woo...
  13. rvallee

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Minor point but I object to calling this a hypothesis, it is unfalsifiable and therefore merely an assumption presented without any evidence. There is simply no basis for something so hollow and unproven to carry any weight whatsoever in making medical decisions or in guiding research funding...
  14. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Case in point. A few tweets in the thread below from Gerada were subsequently deleted after many users pointed out they were excessive and out of line. And the gall to speak of "lobbying group" when silencing patients speaking out about systemic failure, especially from someone who wields...
  15. rvallee

    Retraction—Hydroxychloroquine or chloroquine with or without a macrolide for treatment of COVID-19: a multinational registry analysis, 2020, Mehra

    12 years for the Wakefield paper. 9 years ongoing for PACE. The Lancet appears to be the New York Times of medical journals, a reputation unearned for an organization pathologically unable to rise to the moment.
  16. rvallee

    The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, 2020, Lubet & Tuller

    That was a great response. Clear and, unlike the original piece, coherent. Also unlike the original piece: actual facts. Bold move. My mind more or less exploded when I found out that Greco has an MA in Critical Theory. Seriously. I just can't wrap my head around being this bad at my chosen...
  17. rvallee

    Coronavirus - worldwide spread and control

    The Chinese government did the same and it was pretty controversial at the time so I hope this will be too. Whew this is so bad. And when damage control takes precedence it only further commits to the initial mistakes. Ideology guiding medicine is always horrible. This practice has to end.
  18. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I understand the difficulties, but I will put on record that it is my form opinion that the authors are refusing to retract the review strictly and wholly because of the reputational damage they and their colleagues will suffer and for no other reason. I will also add that the review itself has...
  19. rvallee

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    Something that is really easy to show in a formal way. Would actually be great to do that. Not sure it would change anything since BPS beliefs are impervious to evidence but at least it should be done. But we're kind of stuck in a place where we have so little funds that it would be a waste to...
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