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  1. rvallee

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    It doesn't help that there is so much doubt and confusion over whether this data will ever be used, given the focus on hospitalized patients and the reticence to even acknowledge this illness. In addition to the issue of confirmed vs non-confirmed cases. Without clarity, people simply don't...
  2. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Can't remember if this has been posted before and search isn't helping. Persistent symptoms 3 months after a SARS-CoV2 infection: the post-COVID-19 syndrome https://openres.ersjournals.com/content/erjor/early/2020/09/01/23120541.00542-2020.full.pdf
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes. Even further: this should be the model moving forward. With actual paid employment. Obviously not every pwME can do that but for those with a long history of advocacy and involvement, this is expertise that deserves to be paid and can be done in a way that is respectful of the limits and...
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not sure if Twitter is a good medium for this, I can't think of a short answer to that. It's basically THE question.
  5. rvallee

    BMJ letter from LongCovid doctors.

    His own words are basically his kryptonite. And boy did he put out many over the years when he really thought he had won this. Speaking of which people not blocked by him should really take advantage of the quotes that have been collected over the years...
  6. rvallee

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    I see a general consensus over Post-Covid syndrome developing lately. Even though it may not actually be accurate. The post- aspect has always been on the basis of standard tests not finding the virus anymore. This is all so silly, frankly. Things are being held up just because people don't...
  7. rvallee

    BMJ letter from LongCovid doctors.

    It would probably be a good time for that, the whole brigade has blocked me, but I would probably end up too angry, insult them and be blocked again. I hate liars. These people lied and people died. I hate those kinds of liars the most. Worse, they are bullies who pray on the vulnerable to...
  8. rvallee

    BMJ letter from LongCovid doctors.

    I'll copy a few, but one thing you can do is take one of the tweets in the thread, right click on either the date (or xh ago) and open in incognito/private mode. That's how I work around it. https://twitter.com/WesselyS/status/1306525021460979713...
  9. rvallee

    Cochrane Review: Psychological therapies for the management of chronic pain (excluding headache) in adults, 2020, C De C Williams et al

    Moderation note: A number of posts have been moved from New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication ******** Things are horribly broken here. Here is a discussion of Cochrane's evaluation of the evidence...
  10. rvallee

    Pressure Point Threshold and ME/CFS comorbidity as Indicators of Physiotherapy Response in Fibromyalgia. Falaguera-Vera et al. 2020

    That's one of the quirks of cannabis, you have to switch strains every few weeks. No idea why but you should be able to go back and forth between a few that work, not necessarily abandon them when they stop working.
  11. rvallee

    A general thread on the PACE trial!

    I don't think Wessely has ever used the term PEM before. He always dismissed it as deconditioning, normal symptoms of physical activity interpreted with catastrophe. This is Soviet politburo-level of gaslighting.
  12. rvallee

    Understanding long covid: a shortcut to solving ME/CFS? Simon McGrath

    Yes! I think it's important to make that point because it's frankly a massive embarrassment. Medicine still hasn't caught up to a report published 4 months ago. It's getting there but sloooooooooooowly. Patient engagement is critical to moving medicine out of its decades-long rut of stagnating...
  13. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Somehow I doubt that cancer patients would agree to the proposition that since psychological therapies "helps" "some", nothing else should be done and they should just accept they have psychological boo-boos. Weird how context changes things. Almost like... context matters? What?!
  14. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The biggest weaknesses of those past studies is that they are very biased towards the sickest cases. Considering how difficult it has been in the context of COVID to include mild, even asymptomatic cases, I don't see how past studies in different contexts could have even considered this...
  15. rvallee

    A general thread on the PACE trial!

    Some interesting discussion in the thread making the point that it's not the psychological nature of the assumptions that we object to, but the fact that they are merely assumptions and completely wrong at that. I think the point got across and he seems to understand it, but it shows how...
  16. rvallee

    BPS attempts at psychologizing Long Covid

    Literally don't even have a hypothesis. When asked, they just pretend it's not a valid question. And these people are taken seriously. Absurd.
  17. rvallee

    BPS attempts at psychologizing Long Covid

    There are, in fact, many differences. They are, in fact, completely different things. The basis of science, the early days of actual science work, was categorization and classification. Is X the same thing as Y? What is X? And if it's not the same as Y, why? And here these loons are basically...
  18. rvallee

    BPS attempts at psychologizing Long Covid

    Wait, why do we spend billions on basic research when Henrik knows? All we need to do is ask him. Since he knows. He knows whether research is necessary or not. I'm sure he has an impressive track record of that. With arguments like that, who wouldn't be convinced? It's quite something to...
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