Search results

while the wider multi-disciplinary team focus on more appropriate biopsychosocial holistic and rehabilitative approaches to manage the patient's primary underlying condition. The mantra echoes on.

That is clearly their plan, and which they are currently putting into action. Seriously dishonest and cruel stuff.

Hi, Emma. Appreciate you engaging here. Can I suggest you not use the word 'feel'? It feeds into emotional interpretation bias. The word 'think' is better. Avoids all that bias from the start. Thanks.

:D

It is the ME diagnosis that primarily explains low HRQoL. Demographic factors such as gender, age, income and marital status explain little of the variation in the sample. PEM scores (Post exertional malaise) are very strongly negatively correlated with physical HRQoL, explained by reduced...

And/or some problem with clearing them, particularly overnight during sleep.

The thing is that there's so much overlap between that and long COVID, and the population affected by long COVID is so much larger, and the symptoms are so much more severe compared to ME/CFS, that we decided that what we should do is focus on long COVID Don't know about the rest of you, but I...

Given their track record on this, it could be argued that this fear is in fact entirely rational. :whistle:

...then the results of a rigorous review by the experts." Why do I not feel reassured?

Otherwise an excellent resource.

Not completely sold on that word. Exaggeration of what? It does have some value, in that PEM is an extreme reaction to exertion.

Thanks to everybody who participated and donated. :thumbup::hug: Though the big win here might well be the public exposure. :geek:

Very well said, @Peter Trewhitt. :thumbsup: @PhysiosforME

This. It is stunning how resistant medicine is proving to abandoning an bogus idea that has failed so comprehensively and cruelly.

Exactly. Such features, on their own, pretty much completely falsifies their basic claim. Yet that never stops them shamelessly re-cycling those empty claims.

Yep. Needs at least 2-3 more orders of magnitude in the sample size.

Both of our major supermarket chains (Coles & Woolworths) have a quiet hour (low noise and lighting) once a week for the sensory sensitive to go shopping. I think it came about by advocacy from the autistic community. Once a week seems at least partly token. But it is a start, and no doubt...

Yep. It has not in any sense made me better. It has just helped slow the decline down. Which is no small thing, can even be a critical thing, and we are not in a position to be fussy about what few tools we have to hand. But it is not even a 'treatment', let alone a cure. It is just all we...

Their conditions [LC & ME/CFS] are quite similar, not identical, Way too early to be saying that with any certainty. If I had to place a bet it would be that they are, for all practical purposes, the same, or at the least very closely related.

The BPS club skirt the 'informed consent' thing by declaring us delusional and in denial in some way. It has proved a very effective tactic for them to maintain their delusions and denial about their own behaviour.