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  1. JemPD

    Covid-19 vaccination experiences

    @Trish, well i'm glad it hasnt been horrendous like some here have experienced! thats a relief, but it still doesnt sound that nice :/ hope you both feel better soon :hug:
  2. JemPD

    Covid-19 vaccination experiences

    wondering how you're doing Trish? hope you're both ok
  3. JemPD

    Covid-19 vaccination experiences

    This is exactly my feelings on it too. :hug: prayers for us all
  4. JemPD

    Covid-19 vaccination experiences

    hope it goes ok for you both @Trish
  5. JemPD

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    Interesting that Newton was featured heavily in this AfME vid in 2016, she was also on a tv news item circa 2015 talkling about the cardiac research, i remember because one of my family saw it & changed their attitude to me completely afterwards, suddenly becoming sympathetic where they hadnt...
  6. JemPD

    ME/CFS services in the United Kingdom

    what is FS?
  7. JemPD

    Unexplained vs explained symptoms: The difference is not in patients' language use. A quantitative analysis of linguistic markers, 2021, Stortenbeker

    eeew! i wasnt aware of this, whats their evidence for it? although it wouldnt surprise me indeed One might say that given their supposed knowledge of such, that using the term reinforces the stigma they are highlighting... its almost as if they didnt like the results of the study... not accusing...
  8. JemPD

    Covid-19 vaccines and vaccinations

    Thats interesting thank you. I dont know anyone in my area who has had moderna, for any of their jabs. Perhaps it is a regional thing then. I guess that would make sense based on supply considerations
  9. JemPD

    Covid-19 vaccines and vaccinations

    obviously cant be sure, but i was told in Boots pharmacy when i had my flu jab, that all boosters for everyone are pfizer. It was unclear if she meant all *their* boosters were going to be pfizer, but i think it meant nationally as i know loads of people, well lol, about 4 or 5, mainly health...
  10. JemPD

    Covid-19 vaccination experiences

    The NHS website is completely non functional when it comes to the accessibility requirements... i clicked w/chair access & like you @Sly Saint it came up with zero options, removing that requirement it then listed 6 different locations, all of which said underneath their details 'wheelchair...
  11. JemPD

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    so for the 1st activity i picked basic interactions. By the time i filled out the survey i am now strugging therefor less able to do it than when i started, how that can possiby test for consistency? when doing the survey itself will drain battery so 2nd answer it will be less able always than...
  12. JemPD

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    Also the how often does symptom change questions, by the hour,day,wk,mnth, errr what about the measurements inbetween... its not by the hour but its not by the day either what are you supposed to put?
  13. JemPD

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    "Have you tested positive for EBV" etc... well no but there isnt an option for becuase i never been tested. The way they ask you to select and activity that is 'important to you' is crazy ambiguous. I mean going to work is important to me, not been able to do it for 20 yrs but its still...
  14. JemPD

    United Kingdom: Brakespear Clinic - Dr Basant Puri; Dr Joan Monro

    Dont know much about him but he has written a book, which i skimmed, some yrs back & gave it away to charity shop, which means i didnt think that much of his ideas... but i cant really remember why. I *think* it might have been because he was very into EPA supplementation, but i cant remember...
  15. JemPD

    Psychotherapy and Psychosomatics: Psychosocial Factors Predict COVID-19 Vaccine Side Effects,2021, Geers et al

    Ok so if you never had the flu jab before, had bad effects from the covid AZ & then expected the flu jab to be the same... but it wasnt... how does that fit in?
  16. JemPD

    Covid-19 vaccines and vaccinations

    good luck with it Suzy hope it goes well for you both
  17. JemPD

    Covid-19 vaccines and vaccinations

    Thanks for that @Dx Revision Watch good to have that clarification.
  18. JemPD

    The use of the labels ME, CFS, ME/CFS

    Very interesting about the situation in Germany Inara, But in the UK, the 'experts' advising judges would all say they are the same thing. While there do exist the odd medic who might say that ME is distinct, they are very few & they are seen as 'fringe'. I'd be shocked to my core to discover a...
  19. JemPD

    Covid-19 vaccines and vaccinations

    So they are still not allowing you to actually HAVE your booster until 6mnths after your 2nd dose, they are just letting people BOOK it after 5mnths. So nothing has changed except access to booking an appointment? How ridiculously confusing. What a shower. I agree @Dx Revision Watch the...
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