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  1. Snow Leopard

    Bridget Mildon - patient advocate for Functional Neurological Disorders

    I do find that strange, given her conclusion, namely that FND was a misdiagnosis and she actually had Sneddon’s Syndrome.
  2. Snow Leopard

    Covid-19 vaccination experiences

    @Wyva Raw antibody titres vs vaccine effiacy from https://www.sciencedirect.com/science/article/pii/S0264410X21006587?via%3Dihub#f0005
  3. Snow Leopard

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So according to Betteridge's law of headlines, the answer is No!
  4. Snow Leopard

    Covid-19 vaccination experiences

    There are two issues here. The first is whether the test is a highly accurate measure of the antibody titre in the individual. I am suggesting it isn't due to sampling and processing variability. The second is whether the level of circulating antibodies will help prevent infection during the...
  5. Snow Leopard

    Covid-19 vaccination experiences

    The FDA advice is correct, the tests do not indicate how "protected" you are. The tests are not reliable enough for any sort of quantitative prediction about "protection". The test shows that you have seroconverted and that is all that matters as far as the test goes.
  6. Snow Leopard

    Factors contributing to well-being: comparing functional somatic symptom disorders and well-defined autoimmune disorders, 2021, Hebert

    Convenience studies like this don't provide direct evidence about cause-effect relationships like this, yet that is what they are trying to suggest in the conclusion...
  7. Snow Leopard

    Central Sensitization Phenotypes in Post Acute Sequelae of SARS-CoV-2 Infection (PASC): Defining the Post COVID Syndrome, 2021, Bierle et al

    It's funny how patients are never included as part of the Delphi method review group. No long-covid patients want this to be called "Post COVID Syndrome". One key problem with their criteria is that it poorly discriminates between individuals who have pulmonary damage and those who have other...
  8. Snow Leopard

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    @hope123 Additionally, I partially identify with the "Maria" case study (on a disability pension, no partner or kids), although I am much younger and have been ill since I was a teenager (and I have a different pattern of symptoms). I can tell you that the proposed interventions for Maria, are...
  9. Snow Leopard

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    The problem is that depression (or anxiety) are symptoms, not causes. The underlying causes are the lack of satisfaction of human needs, but few in the field (researchers or clinicians) bother to actually map the relationships between human need and satisfiers or lack thereof. I think there...
  10. Snow Leopard

    The biology of coronavirus COVID-19 - including research and treatments

    This is from a month ago, but a prospective study of wet markets in Wuhan in 2019 found no evidence of bats or pangolins being sold. https://pubmed.ncbi.nlm.nih.gov/34099828/
  11. Snow Leopard

    The biology of coronavirus COVID-19 - including research and treatments

    Actually, I was wrong, they have similar names, but TTP is apparently a different syndrome (despite having the same set of symptoms), and is associated with a different autoantibody (against ADAMTS13). There is a very rare genetic cause, but it only explains 1% of TTP cases, the rest are...
  12. Snow Leopard

    The biology of coronavirus COVID-19 - including research and treatments

    This might be a disaster. Heparin sulphate does indeed bind to the spike protein, which I have previously mentioned, but I have proposed a similar mechanism for the thrombosis with thrombocytopenia syndrome, due to B-cell cocapture of PF4-Heparan sulfate-spike protein complexes.
  13. Snow Leopard

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's a real shame. Deaths yesterday were double what they were a week ago, but still a complete denial that there is any issue!
  14. Snow Leopard

    The biology of coronavirus COVID-19 - including research and treatments

    Here is a study in India that found that vaccinated people can transmit the virus to other people. https://www.researchsquare.com/article/rs-637724/v1
  15. Snow Leopard

    Changes in the Allostatic Response to Whole-Body Cryotherapy and Static-Stretching Exercises in CFS Patients vs. Healthy Individuals, 2021, Kujawski

    I don't understand why they only reported the "network relationships", without the results of the individual measures.
  16. Snow Leopard

    The biology of coronavirus COVID-19 - including research and treatments

    Life here has been mostly normal, besides mandatory check-ins at retail premises. Many people in Australia are yearning for the time before (ASAP) and seem to mistakenly think that is the situation in the UK.
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