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How many already have? Thousands for sure. Likely tens if not hundreds of thousands. Accounting for premature deaths, likely millions. Millions have lost many years of their lives, for many most of their lives. The best data we have show that for those who remain ill with ME/CFS, we die 20 years...

Ugh. Talk about missing the point. The CFQ is her work, and it's terrible, that's why it's controversial. It's not about her, it's that her work is bad, the CFQ is bad and is not applicable here. And it's not established for ME/CFS, but the idea that a terrible questionnaire about fatigue...

It's hard to imagine that this Kim character doesn't know that. Maybe they don't follow any of the research, most of it actually names ME/CFS as falling in their umbrella, just as most of it plainly says that FND is simply an updated label for conversion disorder, but that would just make what...

It's fascinating to see how this plays out in pleasing some patients, when they don't know that it's just the new label for the old conversion disorder. I recently saw a reddit post from someone diagnosed with FND instead of Long Covid, talking about the "tests" kind of like what's described in...

What in the hell he is even saying here? This is a complete word salad. Although yeah it's pretty impressive how fanatical this ideology is that when the leading voices see evidence debunking the model they have been pushing for years, it actually vindicates them. Amazing.

Let's look at other diseases. Has it ever happened for a disease definition where there aren't prominent unique signs to precede an understanding of the pathophysiology? Reaching a consensus? I'm not entirely sure, but I assume it never happened once. Medicine is all about biology, and...

Ha! If only they did. As we've seen, many won't even correct obvious mistakes once pointed out, because it's only when they correct that it makes them look bad. In cases like Cochrane, they will even double down on publishing something harmful again, renewing its influence, then work to stall...

Still eating their cake, though. They may distance themselves from it, but they're scarfing it down like it's about to run out. And selling it. And marketing futures. And selling NFTs and "best of" albums of it. And given that lying about what the model is is part of the model, it's probably...

"comprehensive" "thousands" Literally ignores centuries with millions of reports. Good grief the intellectual laziness.

Ironically, the rare kind of problem where greater access to those services would actually make the problem worse. But it would be marketed as better, and that would make it even worse still. Races to the bottom are so damn weird.

One thing I don't understand is how he managed this influence. There is this clip from 1996, a TV news segment that is basically "Wessely wants chronic fatigue syndrome", when he was pushing for ME to be memory-holed and replaced by the generic fluff. And in 1996, really, who the fuck is Simon...

Reads like a bunch of rituals without much validity and even less of a theoretical foundation. Reminds me of road-side exercises that police officers sometimes use to "test" whether someone is impaired. They're not really valid either, but someone who is too drunk will definitely look obvious...

Similar language to the acuseeds stuff. "Not intended as medical treatment", claims not to "challenge" the reality of the illness and how it's just "personal testimony", but also tried-and-tested and should work for everyone. You invite one pseudoscience and they all come barging in.

At least the idea fundamentally has some merit and could still be prodded in the right direction. It's just disappointing to see them work from foundations that have long been revealed to be quicksand at the best of times. Maybe it's worth working to see if we can influence them the right way...

Kleinschnitz has been a prominent and especially insulting Long Covid denier from the start. He is basically doing much of the same in Germany as Wessely did in the UK for ME, I guess including doing tiny studies checking at a few things to push for the conclusion he started with. He has written...

Indeed. They have the possibility of FND causing brain changes, which is silly magical thinking. They have the possibility of a congenital difference that can lead to FND with the right psychological trigger. But they don't consider the possibility of a stroke or damage to the myelin sheath...

Not dualists, though. The people talking about software/hardware and how psychological and "in the brain" have different meanings insist that they are not dualists, because they have decided that it could possibly be the case that the mind changes the brain, the software changing the hardware...

Erased in life. And erased again in death. By the same people. Grotesque is the right word. There are others. I wonder what goes in the mind of the editors who hide the comments. This is such a sickening failure of journalism, it simply has no justification and probably runs afoul of...

It's their model. We're not cognitively impaired, hence they can ignore the objective tests. We just think we are, making us perform worse even though we could do just as well if we didn't disorderly convert our distress into symptoms. Or whatever. This is why it's common for people sent to...

Doesn't Cochrane have some board or something to deal with consumer complaints? They make a big deal out of pretending to engage with the public. Or is it really all just pretend? Because really there is no independent process here to deal with complaints about the people at the top. Or about...