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  1. rvallee

    Trial Report Mismatch between subjective and objective dysautonomia, 2024, Novak, Systrom et al

    Even more likely: both. Autonomic dysfunction and orthostatic intolerance are complex systemic problems, and reducing them to those few data points isn't that much better than randomness or using probing hover hands.
  2. rvallee

    Earseeds, Acuseeds

    Indeed this is quite bizarre. The business side of this deal is atrocious, it rests entirely on hype and branding for something that isn't a luxury item and branding is irrelevant. There is zero possibility of exclusiveness, the raw product is available in bulk and eventually the hype will die...
  3. rvallee

    Earseeds, Acuseeds

    This is actually a good example of how a seemingly harmless pseudoscience can be harmful. They talk about reducing the visits to clinics or hospitals, so there are visits to clinics and hospitals. The same with all the useless rehabilitation pseudoscience out there, it involves a lot of trips to...
  4. rvallee

    Earseeds, Acuseeds

    Not at all hard to believe. I've been saying this for years, but the natural outcome of the biopsychosocial ideology and the destruction of all validity of so-called evidence-based medicine is the gradual erosion of the line between scientific and alternative medicine, to the point where they...
  5. rvallee

    News from Scandinavia

    Just like the history of the Toronto SARS clinical rehabilitation lead, who despite acknowledging that none of his rehabilitation made any difference, would do it all over the same way again. They can't seem to see anything in front of them unless there is technology giving them a number with a...
  6. rvallee

    Protocol for a scoping review of how people with ME/CFS use the internet (2024) Shortland et al.

    No, I really don't think so. It's not even useful, let alone crucial. This is vanity research, it only serves the researchers' careers and does nothing to help people or gain insight or knowledge. For too many of us, there is no "everyday life", and this is in part because of pointless vanity...
  7. rvallee

    Efficacy and Acceptance of Cognitive Behavioral Therapy in Adults with Chronic Fatigue Syndrome: A Meta-analysis, 2024, Maas genannt Bermpohl et al.

    So the most recent one is from 2021, that's around the last update of the Cochrane review, which is largely identical to this. Most are before 2015. So nothing new. And all the studies use the same general approach and methodology, so it's basically about 20 times the same thing. How can this...
  8. rvallee

    Efficacy and Acceptance of Cognitive Behavioral Therapy in Adults with Chronic Fatigue Syndrome: A Meta-analysis, 2024, Maas genannt Bermpohl et al.

    Every good service business knows that your most satisfied clients are those who never come back. Come on this is business 101.
  9. rvallee

    Efficacy and Acceptance of Cognitive Behavioral Therapy in Adults with Chronic Fatigue Syndrome: A Meta-analysis, 2024, Maas genannt Bermpohl et al.

    Hey, it makes sense if you don't think about it and want those outcomes to be true regardless of whether they are. Because of this, the high bias is a feature, not a bug. Otherwise how could they claim those false things?
  10. rvallee

    Earseeds, Acuseeds

    Wait so the assertion of the acupuncturists association is basically the same as the "GET has to be done with the supervision of a GET specialist", even though there's actually no evidence that it makes a difference. In fact that any type of exercise, or even activity, makes any difference. Heh...
  11. rvallee

    Viroid-like colonists of human microbiomes 2024 Zheludev et al

    Merged thread ‘It’s insane’: New viruslike entities found in human gut microbes https://www.science.org/content/article/it-s-insane-new-viruslike-entities-found-human-gut-microbes As they collect and analyze massive amounts of genetic sequences from plants, animals, and microbes, biologists...
  12. rvallee

    Trial Report Videoconference-delivered group cognitive behavioral stress management for ME/CFS patients who present with severe PEM: a RCT, 2023, May

    WTH is NINDS funding crap like this? They go around telling us they don't have money but then what little they do have they waste some of it on useless nonsense like this. And doing a secondary analysis on a null result, about a long-debunked pseudoscientific approach no less, reeks of...
  13. rvallee

    News from Cochrane

    For people who work in glass houses, they sure do love to throw stones.
  14. rvallee

    Earseeds, Acuseeds

    I think that's LinkedIn?
  15. rvallee

    Review nature reviews cardiology: Cardiovascular autonomic dysfunction in post-COVID-19 syndrome: a major health care burden, Fedorowski et al, 2024

    Somehow, though, we are still stuck at the "my clinical experience says so" stage, because there really is no reliable evidence that it helps with POTS, same as with ME, and that all improvements, subjective and indirect at best, are not simply down to time / natural recovery, may even happen...
  16. rvallee

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    Wow this is an impressive bunch of pseudoscientific BS and weird opinions. Zero difference between this and old pre-science myths.
  17. rvallee

    Earseeds, Acuseeds

    Hey that's the LP business model. They're learnding. Hard to have the "talk to a medical professional" disclaimer when you're just as likely to be scammed by doing this. It's not as if snake oil is any better or worse than NFTs of snake oil. Or maybe it's like those butter substitutes called...
  18. rvallee

    Earseeds, Acuseeds

    Oh that's a typo. It should read "fatuous".
  19. rvallee

    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    Bernie Sanders: US is turning its back on long COVID. We'll pay the price if we don't act. https://www.usatoday.com/story/opinion/voices/2024/01/26/long-covid-paxlovid-costs-plaguing-american-healthcare/72337750007/ People with long COVID-19 experience a variety of chronic symptoms, from...
  20. rvallee

    Trial Report The impact of bed rest on human skeletal muscle metabolism, 2024, Wüst

    It was never a reasonable hypothesis, whatever they might say. Deconditioning doesn't fluctuate, doesn't vary on the order of hours or even minutes. That's why they added the "illness beliefs" nonsense, because it's not deconditioning and they couldn't account for that but they sold their cake...
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