Search results

  1. rvallee

    Preprint Determinants of the Onset and Prognosis of the Post-COVID-19 Condition: A 2-Year Prospective Cohort Study, 2023, Mateu et al.

    Zero mention of ME/CFS, of any context or history other than a few mentions of "post-viral" disease or syndrome, twice for each. This quote references the RECOVER initiative. This study doesn't seem to have looked or considered PEM or dysautonomia. Seems to be very limited in scope and lacking...
  2. rvallee

    COVID-19 Induces Neuroinflammation and Suppresses Peroxisomes in the Brain, 2023, Roczkowsky et al.

    So, is it neuroinflammation yet? Or does it have to come from the Enflammé region of France? Really seems like there's a term missing here for immune activation that isn't the kind that lights up on MRIs and is associated with life-threatening conditions like Guillain-Barré.
  3. rvallee

    Long-term consequences of benzodiazepine-induced neurological dysfunction: A survey, 2023, Martin et al

    Similar to antidepressants, discontinuation problems caused by benzos have long been reported and dismissed by medicine. There are very few studies of this, despite huge numbers of reports. There is a clear and blatant bias towards not finding uncomfortable truths, just as significant and...
  4. rvallee

    Long-term consequences of benzodiazepine-induced neurological dysfunction: A survey, 2023, Martin et al

    Long-term consequences of benzodiazepine-induced neurological dysfunction: A survey https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0285584 Background Acute benzodiazepine withdrawal has been described, but literature regarding the benzodiazepine-induced neurological injury...
  5. rvallee

    German Government announces new funding guidelines for ME/CFS

    Unfortunately, we have seen the limits of those commitments, and how political and skilled psychosomatic ideologues are at grabbing money, even when it's specifically marked as not going to them. Their only talent is grabbing more money, but they have honed that talent to a true expertise. The...
  6. rvallee

    Review Effectiveness of physical activity interventions on reducing perceived fatigue among adults with chronic conditions: .. review.., 2023, Barakou et a

    The framing and how they define fatigue are just weird. Medicine really does not understand what the word means to patients, use it willy-nilly to mean almost anything and everything. They use it and can parrot some other MDs words about it, but they have zero understanding of what it actually...
  7. rvallee

    News from Cochrane

    One can always hope this is the end of this rotten organization, and the beginning of the end for this failed paradigm. The big picture is that evidence-based medicine is just the old paradigm, a bunch of people deciding what's true based on their preferences. No more scientific, and sometimes...
  8. rvallee

    Open EhEx-COV19, Trondheim, Norway

    The tone strongly suggests this is yet another BPS fake study where they think people just need a little encouragement. It's an activity app. They either didn't listen one bit to patients, or are deciding they know better anyway. I really have no idea how they even get those beliefs, it makes...
  9. rvallee

    ‘She thought the same way I that I thought:’ a qualitative study of patient-provider concordance among Gulf War Veterans with GWI 2023 Lesnewich et al

    They never seem to consider that part. Which makes me question whether they actually think it matters, since faking sincerity is, by definition, insincerity. Which makes me question, frankly, every single thing they say, since accuracy clearly does not matter. Their definition of trust is really...
  10. rvallee

    UK Government ME/CFS Delivery Plan consultation

    Their business interests are definitely involved here. Not surprising. It's the only stakes they have, but it is huge business for them, steady and zero effort.
  11. rvallee

    Persistent Neurological, Dissociative, and Amnestic Symptoms Following a Mild Traumatic Brain Injury in an Adolescent: ... 2023 Leczycki et al

    But, they're not unexplained. It's absurd to decide, without any basis, that brain injury does not explain... neurological symptoms? What even is this nonsense? It's really as if nothing at all matters in this ideology. Everything is permitted, no matter how ridiculous and obviously invalid...
  12. rvallee

    News from Canada

    Something I missed happening in Quebec. I know there is at least one other user from here. INESSS, as far as I know the equivalent of NICE for Quebec (health is a provincial authority so we have 10 such authorities) has published a guideline in April 2023. From memory, it's probably around the...
  13. rvallee

    Analysis of research funded by UK bodies and assessed in the NICE guideline process?

    The same can be said of the £50M spent on Long Covid. It delivered absolutely nothing of value, but no one seems concerned by this, instead it's used to justify spending no more, even asserting that there's nothing to be found, even though the effort was mediocre and some of it blatantly wasted...
  14. rvallee

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    If you can't tell whether something works, then you can't claim that it works. But of course they do it anyway, with a number, which they claim they can't tell us, even as it's behind them on a marketing poster, right above their heads as the spew out BS. And they get away with junk like "on a...
  15. rvallee

    Long Covid in the media and social media 2023

    John Snow Project Perspective: I Did Everything Right and Things Still Went Wrong https://johnsnowproject.org/perspectives/perspective-i-did-everything-right-and-things-still-went-wrong/ Salvatore Mattera did everything right. He was fully vaccinated and boosted and even had the ‘hybrid...
  16. rvallee

    Hypothesis Long COVID as a functional somatic symptom disorder caused by abnormally precise prior expectations during Bayesian perceptual processing, 2023, Joffe

    It's been a main frustration to most long haulers that they never heard about it from the start, and is now pretty much the main one. At first it was somewhat justified by being "new", but that doesn't work anymore. This makes it a completely delusional position, it's obviously and blatantly...
  17. rvallee

    Hypothesis Long COVID as a functional somatic symptom disorder caused by abnormally precise prior expectations during Bayesian perceptual processing, 2023, Joffe

    Ah, it seems that others found out about Joffe's extracurricular activities. Good. Honestly, it really has to be said and understood that those attitudes are not fringe in medicine, but fundamental to it. I'm not shocked anymore, but I was still surprised by what Fauci said: I find this to be...
  18. rvallee

    Long Covid in the media and social media 2023

    I don't know if I will remember to make this regular, but I decided to check up on Bing chat (ChatGPT back-end but up-to-date on web content) and ask for the most significant news and research on Long Covid in the last month. I used Bing chat because ChatGPT doesn't browse the web and only has...
  19. rvallee

    Hypothesis Long COVID as a functional somatic symptom disorder caused by abnormally precise prior expectations during Bayesian perceptual processing, 2023, Joffe

    Not really surprised, but one of the authors is a pandemic minimizer who seems to think that public health shouldn't control infections and promoted their belief that they are good for our health. Or maybe some infections. Hard to tell anymore. The premier of Alberta is strongly opposed to any...
Back
Top Bottom