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Behold, my new invention: THE WHEEL. No one has ever thought of this idea before. No one has ever used it before I did. I will patent it and sue everyone who says otherwise. How do these people not die of embarrassment at saying such obviously false and foolish things? Even worse, how does this...

If anyone has the cognitive bandwidth for it, I have created a members-only thread to discuss letters to NIH director Bertagnolli: Letters to NIH director Bertagnolli about the intramural ME/CFS study. I am in the process of writing one and will share mine on this thread once it's done. Given...

Oddly, I keep seeing "effort preference" being a MDD thing but with all the papers we've discussed over the years that are about depression I've never once seen it. In fact if you search Google scholar for it, there are hardly any hits, and most of them are in economics and is about consumer...

And that's really the thing. They don't quantify those. They ask to assign numbers to qualitative properties. That's a completely different thing from quantifying something. It's as different as quantum mechanics is to classical mechanics, and psychology is basically unable to make the leap...

Generally speaking, ask bad questions and you will get bad answers. Most PROMs use very weird questions that are highly ambiguous. If not all of them, at least some of them, and those are generally the ones that skew everything. They're basically ink blot questions where whoever fills them has...

Definitely not encouraging for the 35% who don't, and for the months or years lost to illness for those who do. Especially since there are no treatments and no possibility of making individual prognoses. But I guess that if that doesn't bother you, then it doesn't bother you. "Good news, there...

They had physicians rate the quality of care of patients? In a study of bias? Including about the quality of care of a group of patients that is systematically discriminated by physicians? That's actually impressive. In a very bad way. Medicine is sometimes such a weird mix of crass capitalism...

On the "mismatch" between what we think we can do and what we can do, is the direction of that mismatch established/discussed? Because however much it doesn't fit at all as a cause, explanation or mechanism for fatigue, the mismatch is definitely there, just in the opposite direction of what is...

It's not really anything new. I've seen many times in the past, something in the form of: "those are the patients who think they can't do, but actually can?" It's the same thinking behind looking at bedbound patients and insisting that they could just get up if they wanted to. They can, they...

Oddly, I see a lot of people talking about being able to push through, knowing there will be pushback, but in my experience, and I've seen it plenty of times, there is another limit beyond which physical movement becomes impossible, the leaded body feeling that is completely unique to this. To...

And ironically, the real problem is that with PEM, we all keep underestimating how much effort things take and hit the wall. We all forget just how punitive it all is, how much it hurts to go over that limit, and still we go over that limit again and again. They got is so completely backwards it...

Oh, hey, "fake news". Where have we heard that before?

Well this is all very disappointing. Not the results, the effort. An alteration of effort perception is right on the nose, but it doesn't describe the patients. There is definitely a strong mismatch between what the researchers thought they could achieve and how they performed. They can...

Fortunately there is already a very successful model that academia can copy: open source software. Where issues don't stop being reported after something has been released. Without this I'm not sure AI would be making such progress. We are the experts in information, and wow does it show. Just...

Makes sense if you don't think about it. If a patient only reports illness symptoms, think psychological. 'Somatoform' is such a weird term. It means nothing, it's just a weird semantic construct. It's used to provide cover to mean psychological, which is just cowardly and unprofessional...

Impressive load of horseshit. To begin with, I was curious what "integrated care" even means, and I was not disappointed: So it's just a buzzword without an actual meaning. Because of course it is. Besides not being novel, there is no "overcoming" the dichotomy when it's the entire basis of...

This is just a worse version of "don't think of an apple, ha! you just thought of an apple". The fact that healthy controls score over 10 on their scale shows that it's basically useless. Good grief this is mediocre. It feels like being pawn in the circus of a bunch of overprivileged...

So they still can't show anything more than that people who are ill are unwell, and still think that they can attribute the consequences of being all as its own cause. About a made-up concept that has been applied to people in real life for years. But all they can do is call for more research...

Lesser known in the anglo world, but this is so like The 12 tasks of Asterix / Les 12 travaux d'Asterix. Everyone seems to be suffering from notmydepartmentitis. So, who is in charge of handling complaints about COPE not properly handling complaints about Cochrane not properly handling...

Oddly enough, people have long believed in powers but outside of psychosomatic ideology, it's never really about the powers of the mind. Things like magic, astrology, occult stuff, always have that power existing outside people, in the universe, and some people simply tap into a higher power...