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Haven't read the paper yet, but Scheibenbogen recently said in an interview that PEM has to have a minimum duration of 24 hours for her to consider it to be the type of PEM experienced in ME/CFS.

Muscle Abnormalities Contribute to Post-Exertional Malaise in Long COVID A poster presentation of the very soon to be published work by Rob Wüsts team has been uploaded to Twitter. Paper now published, see post #8

Long COVID treated successfully with antivirals in a rituximab-treated follicular lymphoma patient with persistent negative-antibodies to SARS-CoV2 Highlights Persistence of SARS-CoV-2 infection among immunocompromised patients are due to inability of the immune system to eliminate the virus...

I've thought about this in the past as well when I first saw this trend in cycling. I know that some users on Twitter have tried it out and even used the same brands commonly used or at least advertised in cycling. Whilst the research is certainly still extremely early and only one study has...

Editorial on the paper The Persistence of SARS-CoV-2 and Its Role in Long Covid Postacute sequelae of coronavirus disease 2019 (PASC), more commonly known as long Covid, manifests as ongoing symptoms in various organs of the body more than 4 weeks after the resolution of acute Covid-19.1 A...

Really awesome to see this work, especially from researchers I wasn't even aware of, with funding from the Dutch government. Can someone enlighten me whether their PEM screening is a standard screening method or similar to that used in ME/CFS research? 48.1% respectively 41.2% seems an awfully...

Haven't read the paper yet, but the question will be whether their analysis was intricate enough to have studied the results presented in https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10272838/ and https://www.frontiersin.org/articles/10.3389/fimmu.2023.1221961/full.

My experience is slightly different but shares some similarities to what @Trish states here. Two months after my first Covid infection I has a severe mononucleosis infection. After that I experienced months of post-viral illness, however I wasn't radicially resting and instead doing a very slow...

Did I understand this correctly? According to his line of thought a disease starts to become a disease once a clear biological biomarker exists. This of course means that the early victims that died of HIV/AIDS didn’t die of a disease, because the objective biomarker was only found later, the...

Personally, just talking about my experience, I do feel like there are different stages, 2 more or. The acute or post-acute illness phase, followed by the chronification of this post-acute phase. I've seen researchers express the same beliefs, in particular Carmen Scheibenbogen. This makes...

24 patients all hospitalized due to Covid pneumonia follow-up 4-12 weeks later where 10 (50% females, mean age 55) reported at least one lingering symptom (fatigue and shortness of breath being the most common). Doesn't seem to be the most robust representation of Long-Covid. Funnily enough...

Is part two going to be "scientization of public policy and politics: How people that practised research wanted to make us believe that the earth is round and how this technical/scientific misrepresentation of a political topic wanted to create incentives for us to sail around it"?

Thank you!!!

Awesome! Thank you :) Maybe you could also tell him about this study https://link.springer.com/article/10.1007/s10456-023-09885-6 and trial https://classic.clinicaltrials.gov/ct2/show/NCT05635552 which uses these techniques, as well as the work by Carmen Scheibenbogen who wants to use OCT-A in...

The Robert Koch Institute (RKI) is the lead biomedical research insitution of the German Government, subordinate to the German Ministry of Health, who's central task is public health care. Being responsible for disease control and prevention they were central to everything related to Germany's...

Great that this is an RKI study. Independent RKI Data seems to play a big role in the German health sector.

Sounds like good news for Long-Covid and ME/CFS to me, since OCT-A and some other techniques are also showing some results there. With Parkinson in the back one can hope for further refinements of this technology and more studies, whilst at the same time the PD and LC/ME/CFS markers in the eye...

The paper has now been published in the Lancet eClinicalMedicine https://www.sciencedirect.com/science/article/pii/S2589537023003231?dgcid=author https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(23)00323-1/fulltext Summary Background Post-COVID-19 syndrome (PCS) is characterised...

Given Mayo's rather poor ME/CFS history this seems like a step forward.

SARS-CoV-2-specific T cell therapy for severe COVID-19: a randomized phase 1/2 trial Abstract Despite advances, few therapeutics have shown efficacy in severe coronavirus disease 2019 (COVID-19). In a different context, virus-specific T cells have proven safe and effective. We conducted a...