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    Observational study on the benefit of a nutritional supplement .. on chronic fatigue associated with SARS-CoV-2.., 2021, Rossato et al

    This is absurd. The study doesn't show anything since there is no comparison group. People tend to get better over time. No way to tell from this whether the supplement had anything to do with it.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This is certainly true. I was trying to interpret it in the way they might be viewing it.
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    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    Keeping a diary definitely impacts behavior. this is well-known in studies of diet, when people keep a food diary for 3 days or a week. No one wants to write down chocolate bars and donuts and supersize glasses of Coke. So they tend to forget to write them down, or simply avoid those foods...
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    That would seem to be the implication, but couldn't they also say they're doing it to retrain body parts rather than because of deconditioning? They seem to hinge their interpretation on the "fixed" incremental aspect, so if it's incremental but not "fixed" they can assume they can get away with...
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    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    of course they could always discount those results afterwards as not objective after all because of economic changes. but still best to not include them at all.
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    David Tuller interviews Adam Lowe about his experience as a lay member of the NICE ME/CFS guideline committee

    Thanks. someone sent me a transcript I think from youtube (I didn't even know how to upload from zoom to youtube and put it on Virology Blog, so now I do). Hopefully in the next day or two I can edit it to correct weirdnesses (I recently read a transcript about an interview on neurotransmitters...
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    David Tuller interviews Adam Lowe about his experience as a lay member of the NICE ME/CFS guideline committee

    They always engaged in double-talk. In the studies, they were more reserved in calling it a "modest" or "moderate" effect. In press conference, Trudie Chalder falsely stated that twice as many in the intervention groups got "back to normal." They hyped the word "recovery." But when criticized...
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    United Kingdom: Newcastle-upon-tyne Hospital Trust

    Thanks for flagging these. seems like good material for a post...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Right, but of course this didn't work in the case of the Health Research Authority report on the PACE trial because their purview appears to be limited. They couldn't fault PACE because they decided all the T's were crossed and i's dotted as per the standard process (even though this wasn't...
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Oh right--I forgot about the musical. Never saw it. The movie is one of weirdest, greatest movies ever.
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I'm not sure this ancient movie reference means anything to anyone except aging gay men like me!
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    yes, I've checked in with Brian about writing a letter. it does seem warranted to respond. I'm trying to write a blog to amplify the points made in my previous blog about the abstract. So many more stupid points. And as has been suggested by @Esther12, @snowleopard and others, they raise...
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I forgot that just last month I wrote a blog post about the abstract, which King's College London posted on its site. The article has introduced even more ridiculousness: https://www.virology.ws/2021/10/23/trial-by-error-the-pace-authors-now-blame-misunderstandings-for-get-cbt-criticisms/
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Yes, especially if it was peer-reviewed by Professor Sir Simon Wessely and Professor Rona Moss-Morris!
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    well, ethics boards and trial oversight committees are theoretically supposed to be providing some oversight. but as we know, these processes can be easily subverted.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Well, if they really had all the power, NICE would have caved to their demands. Perhaps they over-estimated how much power they have.
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Did they state that GET was not a good name and that the clinical services actually don't do GET? Did they provide any evidence that their whatever pace-based rehab approach works beyond that they've seen it in clinical practice? I mean, how are they claiming their interventions are...
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