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  1. Kitty

    I need a good summary of the problems with mind-body theory

    Does he believe all of them are partly caused by the mind? Including Parkinson's, dementia, rheumatoid disease, etc? Or is just the ones we can't yet show on imaging or blood tests?
  2. Kitty

    Esther Crawley's presentations (excluding the 2017 TEDx talk)

    The road to Damascus? OK fair enough, it is a ridiculous idea.
  3. Kitty

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    I wondered about that – 78 people with such rare disorders being referred to one clinic does seem surprising.
  4. Kitty

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    They're not claiming this, though. The patients were referred to the clinic with idiopathic fatigue and exercise intolerance; none of them appear to have been diagnosed with ME/CFS prior to referral, and the study doesn't suggest that any were found to have ME/CFS after testing. The...
  5. Kitty

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    No; as far as I can see, none of the patients was diagnosed with ME/CFS. However, 81% had a fibromyalgia diagnosis. Given appropriate testing, it wouldn't surprise me if a small proportion of ME patients did have some kind of metabolic disorder. It would be fantastic to see detailed screening...
  6. Kitty

    A charter to improve ME/CFS research

    Some really good ideas here. I realise it's not always feasible, especially in early exploratory studies, but we need to work towards better-sized cohorts too. With such a heterogeneous condition, can you read anything much from a study of fewer than 20 patients? (Especially when it's a...
  7. Kitty

    Depression pandemic and cardiovascular risk in the COVID-19 era and long COVID syndrome: gender makes a difference, 2021, Bucciarelli et al

    When anyone purporting to be a scientist uses gender when they mean sex, I just stop reading. :rolleyes: Seems to have a good policy when it comes to this abstract.
  8. Kitty

    Study finds potential causality between blood clot factors and migraine with aura

    It does sound as if it's a different condition to mine. I think retinal migraines only affect one eye, usually the same eye every time. This type of migraine is thought to be caused by blood vessels constricting in response to a trigger; mine usually seem to be triggered by hot weather or...
  9. Kitty

    Study finds potential causality between blood clot factors and migraine with aura

    If you can only see the scotoma in one eye, it may be retinal migraine. I get these, but have never suffered from the headache forms of migraine. I sometimes get the scotoma alone, but other times the vision in the affected eye is also impaired, with sharp focus impossible. Retinal migraines...
  10. Kitty

    Neurochemical abnormalities in chronic fatigue syndrome: a pilot magnetic resonance spectroscopy study at 7 Tesla, 2021, Godlewska et al

    It's a difficult one to pin down, as it can just mean that our brains are giving us duff information. We get bulletins telling us that we're too hot / too cold/ in pain, even though there's no physiological reason for those signals to be sent. It doesn't make the sensations any less...
  11. Kitty

    What are the best coronavirus masks?

    They're designed for situations where a pathogen is or may be present, so the assumption is that everyone will be wearing protective masks. Outside those settings, people make choices as to the level of protection they feel they need. Most seem to think they need none at all now. I probably...
  12. Kitty

    What are the best coronavirus masks?

    If you're looking for a decent supplier, medisave.co.uk is one of them. I've bought all my masks from them during the pandemic, as it's not unreasonable to assume that a high percentage of what's on sale on sites like Amazon are fake. It's worthwhile checking that the masks in questions are...
  13. Kitty

    Inadvertant intravenous injections

    That could be the intention behind the entire experiment.
  14. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Not quite that bad! I was hoisted out of a swimming pool a few hours ago, and I'd say it's much less than the weight you feel when your weak legs are suddenly re-exposed to gravity. :laugh: If you've ever been a pool swimmer, you'll know the difference between training in shallow water of...
  15. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Fatigue is abnormal, so I'm not really sure how to answer – fatigue is usually only associated with illness, and unlike tiredness, doesn't resolve with sleep. The only types of fatigue I've experienced are the sort you get with ME or with a virus or other acute illness; and the sort you get...
  16. Kitty

    Beyond the Symptom: The Biology of Fatigue - Virtual workshop, 2021 - Report published 2023

    Definitely! I'm once again wrangling with the problem of explaining to a GP that I can clearly differentiate between ME and non-ME fatigue, as one fluctuates hour to hour, and the other is less severe but much more constant. The are other differences, too, but I haven't found a way to put them...
  17. Kitty

    Closed An international survey of experiences and attitudes towards Pacing using a heart rate monitor for people with ME/CFS

    I had the same difficulty, although for a slightly different reason. For me, overexerting by a lot or a little causes the same duration of PEM, it's the severity that changes. Seeing a friend almost always causes a bit of PEM, but it's low-level – grumbling sore throat, sleep not great, a bit...
  18. Kitty

    Anyone has a stair lift at home ? (Moving, part II)

    When I had my stair lift, I found the issue of getting dirty washing down fairly straightforward – I just hurled it from the top of the stairs. Even sheets and duvet covers, which, although they never quite went down to the bottom because my staircase had a steep turn in it, nevertheless just...
  19. Kitty

    Compression Garments

    I don't have POTS, I just get blood pooling in my legs if I have to stand for more than a few seconds, which causes horrible nausea and lightheadedness. I wear grade 1 compression stockings if I have to do something unusual such as a long journey, but I always wear compression shorts to help...
  20. Kitty

    Chills and feeling cold

    If anyone needs warm clothes to go out in a wheelchair, or gets really, really cold indoors, I can't recommend Buffalo clothing enough. It's expensive, but really warm, light as a feather, dries in no time after washing, and lasts for years. Oh, and it's made in my old home town, which is a...
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