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Funny that they don't assess the risks and burdens associated with their 'therapies', isn't it? I do hope everyone writes that in red ink all over the bloody questionnaires. In addition, obviously, to enquiring whether all these so-called studies are actually the insurance company equivalent...

My friend's daughter told her that she'd been so worried about getting infected at work in London that she'd done three LFTs the day before visiting someone vulnerable last week. Morning and afternoon both negative, evening one was positive. She doesn't know whether this is meaningful, but she...

Yes, me too. Though in their case, their primary course of immunisation was described as consisting of three doses rather than two, so the fourth jab is their booster. At least one of them has been told to expect their appointment fairly soon.

The whole thing looks complicated to me, too. The immune system clears the virus quite quickly in most healthy younger people, so the theory seems to rely on fragments of a particular protein being able to hang around for an extended period to set off, and then sustain, this kind of havoc...

Nor the phenomenon where some people appear to recover well from acute Covid, but then develop hard-hitting chronic symptoms weeks or even months later. I've seen numerous reports of that over the last year or so.

Charity-speak for a specific type of income. It's the result of work by a specialist fundraising team, and usually comes from sources other than a charity's traditional income streams ("We're skint this year, who haven't we asked yet?"). Examples might be grants from private trusts and...

Noooo! What a pain in the bum. I had to wait six months and a week, but since they reduced it to three months, quite a few of my younger friends have managed to get topped up just in time for Christmas. Shame your husband couldn't get done, but hopefully you'll both manage to dodge the lurgy anyway.

Health minister doesn't necessarily mean the secretary of state for health. It could just as well have been a brief conversation with some junior minister over coffee at some event or other. Had it been the secretary of state, they'd probably have mentioned it. The unnecessarily tautological...

I read it as a correlation that doesn't reach statistical significance. But then again I haven't mastered long division yet, so I'm not exactly the go-to person on anything to do with maths... :rofl:

Hopefully the NHS won't touch it with a 10-foot pole, since it sounds very unlikely to be any kind of a match with the NICE guidelines.

Especially as people habituate to many medications fairly quickly. They may still have some effect, but of course not all of them will reduce a person's cognitive capacity—some may improve it by reducing symptoms that would otherwise be distracting.

I do wish someone had researched this. If a significant percentage of people really are having adverse reactions, and a few (myself included) had unmistakably beneficial responses, doesn't that say something about the immune systems of people with ME?

Yep—and we talk an awful lot about what we don't want. We need to pipe up more about what we need.

Thank you, I think I'll go for that version. (Don't know a word of Norwegian, so it won't annoy me at all.)

So only people who know nothing at all about an illness are qualified to understand it. Well, that explains an awful lot of the last 30 years.

Especially as people get into old age, surely. A relative of ours developed ME during the second world war, and had it until she died of pneumonia aged 92. It'd be surprising to live with blood clots for 70 years, and yet never develop problems such as thromboses or TIAs or phlebitis. (Someone...

I suspect that (carefully?) excludes most ME patients, to be honest!

I know it starts off with the usual guff about exercise, but to be fair, it's about showing an effect in humans with cognitive impairment and mice with brain inflammation / a dementia equivalent, and anything that could help with that is worth researching in my book. My elderly mum developed...

One way would be to find funding for a trial in a country where this treatment is not currently being offered, but which has the capability to do it—most European and Scandinavian countries would probably fit the bill, as would the UK. Those potential recruits wouldn't be missing out by being...

I think you could reveal how ME affects my cognitive abilities pretty well by giving me an easy crossword (like the Guardian Quick) when I was well rested, and after making me stand up for a few minutes. I know this because I've been doing that crossword most days for donkey's years. I can...