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To be fair @dave30th this is a much more positive take on the potential benefits i.e. it puts the system (civil servants & politicians) on notice that their actions (in this case failure) are being scrutinised.

At a simple level the Secretary of State for health and social care [responsible to the House of Commons] is responsible for our (nationalised) health service. MPs (members of the house of commons) have an allocation of parliamentary questions and this one is for the Secretary of State for...

As far as I'm aware the MRC: is publicly funded i.e. tax payers money; and funding comes from its sponsor [Government] Department. However, that would not necessarily be the Department of Health and Social Care (UK) e.g. it's probably primarily funded from the science budget (different...

You wouldn't/couldn't make it up --- you're cognitively impaired, due to an underlying (biological) illness, and they suggest CBT --- as if the world wasn't already confusing enough --- try CBT! Thanks I'll re-draft.

Thanks for the feedback. Here's a revised draft re a parliamentary question to the [Westminster Parliament] Secretary of State for Health: "The PACE trial set out to discover whether cognitive behaviour therapy [CBT] and graded exercise therapy [GET] are safe and effective forms of treatment...

Having briefly Googled I'm not reassured, the need to separate the financial rewards from the patients interests still applies.

EDIT - redrafted (see @Jonathan Edwards comment below) Possibly slightly relevant i.e. in terms of incentives in medicine. Friend mentioned that becoming a GP is the only opportunity to run your own business in the NHS I think the Australian system separates the (financial) incentives by...

I'm wondering if this could be concerning i.e. "the difference between fatigue and the perception of fatigue". Is this the line those focused on psychological interventions take? You're not really unwell you just think you are. Don't get me wrong I'm not opposed to psychology but I think...

This makes me think of the fact that Post Treatment Lyme disease and ME/CFS are clinically similar [https://pubmed.ncbi.nlm.nih.gov/21383843/]. If this paper has identified a mechanism, then could that explain Post Treatment Lyme disease/post infection ME? Has this technique yielded results in...

Yip I agree @rvallee "the referrals to regulatory bodies" - that's what they exist for i.e. to refer professionals you are concerned about.

@Rain I booked an appointment at a large vaccination centre (leisure centre) so yes I thought it was a lottery win "Pfizer" - turned out they did both Pfizer & AZ --- I got AZ! So booking a vaccination centre, which normally does Pfizer, isn't a guarantee. There's a high profile case here (N...

All of this reminds me of previous post by @Jonathan Edwards "evangelical hypocrisy" https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles.15629/page-33#post-322586 Makes you wonder how university academics can get away with publicising these views - surely it damages...

This reminds me of what @Jonathan Edwards has been saying "“In the past in ME/CFS research, which has been really underfunded for a long period of time, people do what they can. People have taken white blood cells,” he says. “The problem with that is white blood cells are not a highly energetic...

Thanks @Trish

Hi here's an initial attempt re question to the Secretary of State: "The PACE trial set out to discover whether cognitive behaviour therapy [CBT] and graded exercise therapy [GET] are safe and effective forms of treatment for myalgic encephalomyelitis/chronic fatigue syndrome." The original...

Check out @Jonathan Edwards post re the fact that the initial trials on rituximab suggested that rituximab would work in ME but the phase 3 trial proved it didn't, suggesting a significant placebo effect - so how could you correct for that? It appears that you'd need the incidence for those who...

AstraZenica is 10% effective, against the South African variant, i.e. where use use symptoms (not hospitalisations) as your measure of efficacy. So you're getting infected - whether you get Long covid is another question. Same goes for other vaccines - you may well be getting infected but be...

There was a guy (from UK?) speaking on Radio 4 last week [maybe Inside Health] and he was suggesting that some people with Long covid reported improvement at 1st vaccination - but it wasn't consistent. @Jonathan Edwards highlighted the high placebo effect, in the early Rituximab trial in ME; so...

No idea. I think one of the problems would be getting consistent diagnosis re Long covid - possibly you could use actimetry/electronic activity monitoring (for the people who are similar to ME) - even there you don't have baseline (before). I heard that one of the research areas in post corona...

It's interesting how many medical professionals have been reluctant to be vaccinated - even now when the data (showing lower incidence in medical professionals who've been vaccinated/their families) is available!