Search results

I can stick with Michael Mosely's advice i.e. increase the overnight fast. Also, his advice was eat what you want; although I modify that to tilt towards stuff with less sugar in it - e.g. porridge is amazing since it keeps you feeling full for much longer. I'm not great on the eat less thing...

"The Cochrane review of exercise treatment for chronic fatigue is very well done and it was useful to me later in the illness, although early on when I was still feverish I needed to rest." Imagine you're a bored soul doing a review of the correspondence re the draft NICE guidance and this gem...

So basically I can "expect things to happen then they do" --- who wants to be a millionaire, time travel --- are there any limits --- not really helpful is it --- in fact it's the reverse!

I've been a fat teenager --- too thin --- fat --- I came across Michael Mosley's recommendation, i.e. extending your overnight fast, and Tim Spector's advice on increasing fibre & avoiding super processed foods. So porridge in the morning and try to have my evening meal a bit earlier - due to...

Apologise @Trish - it was a good idea to include it. E.g. it reminded me that I'm not sure how the NIH research award to Ron Davis/Mark Davis worked out/is progressing. Also, it's interesting how it might indicate that the issue is more subtle/complicated than getting an infection - Prusty's...

The text on the News page includes this: "In terms of the results concerning the example of application, there is no evidence for a different level of exposure of the patients with ME/CFS to these herpesviruses when compared to healthy controls and patients with multiple sclerosis." Really just...

Thank you for your answer. I can see why you'd like to be in a position to collect more samples than you'll eventually test i.e. to reduce potential volunteer bias. Are you concerned that, since we don't have a biomarker filter for ME, then that may make an ME GWAS study more challenging?

Yea it would be interesting to do a blind trial of Doctors - same bunch of patients and different Doctors. The EDS Doctors would find EDS in more cases and the ME Doctors would find ME in more patients. What patients really need is a push to understand the disease not a label that doesn't help...

There's a video of a joint presentation by Chris Pointing, + someone from the UK biobank(?), which showed the results of a Genome-Wide Association Studies of Hypertension(?). The genetic markers were clearer with larger numbers - think they went to 500K. So maybe the more studies (more data) the...

Maybe Blair wants to be "explainer in chief" - rather than owning up i.e. we don't have the solutions at this point.

That seems very insightful (hopefully they're not reading this) can they sneak in i.e. under the revised guidance (and continue to make money out of the problem)?

Yes I've heard that much early psychological research, which was conducted by researchers who had experienced the Holocaust, was reliable/sound. This came up in the context of discussion of making up research findings - scientists cheating [BBC Radio 4 program?]. I think the point that those...

Go for the website - should not be used for clinical decision-making or just abbreviate - should not be used--- I gather there are folks teaching PACE i.e. as in how not to do a trial - maybe put this up as teaching material --- how to deceive - a masterclass in manipulation

Actually if you had noting better to do this is an entertaining read - OK possibly despairing, incredulity --- couple of random paragraphs* --- "Resources with universal relevance" I think "Global" is what they are aiming for. Aside from politics/government propaganda I doubt there much use for...

This shit should be put up for an award - based on a few seconds I found this gem "The learning resources complement and facilitate critical thinking teaching and scientific reasoning in other areas." Who could possibly object to that - a thing of beauty - aspirational, sun light uplands ---...

Probably true i.e. the % of people who've had an MRI is probably quite low. My wife has syringomyelia and my impression is that an increasing number of people are having MRIs and being told they have an abnormality - often they are not symptomatic - generally wait and see I guess i.e. no...

Some thoughts - what is the abnormality [present at 80% or 90%]? have the looked at controls i.e. to establish what "normal" is? if you sent them a set of MRIs could they identify ME from healthy controls? Like you, I'd expect that a lot of people with ME would have had an MRI; therefore, a...

If you're wondering about NICE dividing studies into mindless sub-groups then it might be that those doing the sifting don't have much insight. I did wonder if one reason was to refer to every possible study. The easy grounds to judicially review something are procedural grounds e.g. that they...

Interesting --- at least there's a positive outcome for the ME community.

Think that's the problem "They do it by employing the right level of expertise to assess the new tech in the first place" ---- or in the case of NICE that doesn't appear to have happened re the original ME guidance. My point was that Doctors like @Jonathan Edwards when they are dealing with...