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I was hoping they meant he's a concept that doesn't exist yet in medicine.

Or that manufacturers are obliged to make it—the med that was part of the trial, part of the Pepcid brand, was discontinued according to the pharmacist. At the time I didn't go into why as I knew my GP would prescribe it, but it might have been poor sales.

I've been part of the survey since April 2020, and the questions have been thorough but simple throughout. As @CRG says, they have to be straightforward in order to make the survey accessible to as many people as possible. The power of surveys like this come from the number and range of people...

A pharmacist told me about three years ago that you need a prescription to buy famotidine over the counter. I'd had it on prescription and had developed the same symptoms again, and wanted to check I couldn't just buy it before I saw the GP. She said an OTC trial was once done, but the med was...

Even if it didn't need more context, it's still a bit "So what?". I planned never to do all sorts of things when I was young, until I learned that things are more complicated than they look, and I can be a tit. And before I stopped giving whatever answer I thought was most likely to confirm the...

I agree—but a proper trial might be a useful exercise, as it's possible it does offer therapeutic benefit to some people suffering chronic pain. Doctors will quite rightly remain sceptical until they see some decent quality evidence. It's even possible the unique legal situation could be...

There are some existing brain banks in the UK. Given that the numbers of donors would be limited (many potential volunteers will live a normal or near-normal lifespan with their ME), might it make sense to share resources with another?

I haven't heard of anyone being prescribed it. Ideally, it needs a major trial made up of cohorts with different pain conditions to establish an evidence base, otherwise there's the risk that 30 years down the line it'll turn out that billions have been spent worldwide on something that doesn't...

It's possible to experience fairly profound effects without any lasting pathology, though. It depends what the mechanism is, and some of them would all-nigh impossible to detect directly. For instance, if I eat a heavily sugary meal, my arms and legs stop working; trying to walk involves...

Oh, that's really interesting—thanks for posting, @Binkie4. Hopefully they'll get funding to study a bigger group too.

Oh, this is infuriating, isn't it! One thing I have learned to do is never explain that I have ME, though. There's no point, they won't get it. One of my rules is that outside of a medical appointment, I never say I have fatigue. It's severe muscle weakness. It really is weakness a lot of the...

See also: being forced back to work prematurely, where you can't cut your session short and go home for a nice hot shower and a rest as soon as you realise it's making you feel awful.

Either that, or they're trying to sell packages to "forest experiences", which is a great way to monetise public open spaces at no actual cost to yourself.

This. It would rob you of almost everything that's life-affirming about being in a natural space. I can get out sometimes and I enjoy some wildlife TV programmes, especially those featuring species I might have the chance of encountering one day. Watching them isn't so much about the experience...

Yes, or put some effort into enabling ill people to access to a real wood or natural space. So much easier to justify your salary by distracting them for a bit and calling it "adjunct therapy", though. Streaming a comedy gig would have done just as well, but doesn't sound quite sciencey enough.

Indeed, it's always struck me that typing would be a decent entry-level type of test, as keystrokes are easily analysed. But vocal testing is an interesting one, as I imagine a lot of us do notice changes. I routinely lose my voice, tonsillitis-fashion, when I've run out of energy. I'm...

Got my confirmation too today. Sent 21 October, so it's only taken four and a half weeks to arrive! Still, it got there eventually ... hopefully they can successfully extract DNA from it now.

Sorry, I missed your reply to this! I only asked because I have a subcutaneous fat disorder, and also have areas that are "taught, lumpy, with small, localized areas of extreme sensitivity". For me, areas that become painful remain so for long periods of time, presumably because abnormal changes...

I hope you're having an okay day, @RedFox. From reading the thread it sounds as if you've really been having an awful time of it. As for the tests ... I'm wondering who it's for? Is it for doctors? If so, it's unlikely to help. They already know it's not a test for ME, and they're more likely...

And me. I mean, to the point where I've seriously considered looking for a dealer. :laugh: Hope your next one is equally good.