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I agree the paper doesn't add up to much, but I'm not sure a type of channelopathy is necessarily a daft idea. There are dozens of them, and it's an expanding field that appears to have a long way to go. Primary types are usually genetic conditions, and if this were the case DecodeME ought to...

I thought I'd post this (rather long) article from The Guardian, about a new book by Dr Siddhartha Mukherjee. It discusses depression and the search for a new paradigm to describe and understand it. It interested me because in a sense, it would be helpful to do something similar with brain fog...

Probably tempting fate, but I've yet to have one. I've been on it since 2014. I'm hoping I might be in one of the last tranches to get UC'd, as I'm not all that far from pension age. In fact, going to the bother of transferring people who'll qualify for the state pension a few weeks after the...

It's possible that's why the Covid jabs make me feel great. Also, if I get a bad cold, I'm seized with the energy to clean the whole house the day before I start streaming, croaking, and hacking. I remember reading somewhere that it's a histamine surge that causes the sudden spurt of energy...

Don't worry, it wouldn't stop it making some kind of sense...at least as much sense as I ever make! I've temporarily paused "likes", as I realised I was using them as a way to indicate that I'd read posts rather than that I particularly agreed with them (although of course both are often true)...

Yes, I agree, insofar as it goes. But, as @bobbler says, we are offered this as treatment. The [$] millions, as they say, are missing. No-one claims that helping people with MS or dementia or cancer to cope with their symptoms equates to treating their illness, it would be profoundly insulting...

I read it differently, as a recognition that our lives are not passive, and we are at risk of being assumed to have time and capacity that we don't. You can't survive as a homeless person, or a prisoner, or a refugee, or indeed a disabled person, without deploying a great deal of skill...

Good luck, @Trish!

It's an interesting approach, isn't it? But they don't even mention the grasp of benefits law and consumer rights, project management experience, tactical negotiation skills, ability to navigate housing rights, in-depth knowledge of transport systems, providers, and regulations, and the...

Jesus and Mary. And it's an unproven and not necessarily safe treatment. Anything that invasive comes with risks, and should require good clinical justification before sign off. I don't see any justification at all until it's gone through Phase III and shown benefit. I'll cheer as loudly as...

I don't, but it's an interesting thought. I hadn't heard of Martin Jacques except through this article. I had vaguely heard of both of those publications, but assumed they were historic titles that largely predated my coming of political age in the mid-70s. I was only involved in environmental...

I think it does happen, but perhaps more usually via hospital specialists. They know what trials are going on in their own field and will sometimes discuss them with patients they think might be eligible. The trouble with ME is that people often don't even consult GPs about it unless they've no...

Good, I'm glad to hear it. Normally, when you research a highly politicised topic like this, one of your objectives is to make a list of What Not To Say Under Any Circumstances. This would probably make the top three.

You'd think they might have wondered whether the proteome profile is also the same in healthy people, wouldn't you. Because that would tell them something different altogether.

I am severely dischuffed. I knew this wasn't going to go well, and it hasn't. My letter to The Guardian this morning: I doubt it'll have much effect, but I feel better.

My experience is atypical, but if someone found a drug that improved ME as much as some of these Covid inoculations improve mine, we'd be celebrating a major development. AZ#2 and the Moderna bivalent have both given me a really significant improvement. AZ#1 was a bit too effective, I felt as...

30 hours out from the Moderna bivalent booster, and no negative side effects yet. Positive side effects have been a boost in energy for most of the day. Hoping the lack of negative side-effects continues, but I know it might too soon for them to have show up yet! :nailbiting:

The early retirees I know who've given up work a few years ahead of state pension age have mostly done so because workplaces were just becoming more and more toxic, and they have at least some pension provision to fill the gap. Staff management was farmed out to faceless HR departments who did...

The old DLA system worked like that, at least where I lived. Both my assessments were done by a lovely retired GP who was selected because knew about ME. He was sharp and funny, too, so rather than being an extremely stressful hour, it had its entertaining moments. Second time around, when I...

I suspect that as with a lot of other chronic conditions, it's not currently amenable to cure. If there is something out there that could produce a marked improvement but no one realises yet, it might be because it's a less-than-benign medicine that no doctor would want to muck about with on the...