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    Response to Women's Health Survey from Improve Thyroid Treatment group

    I guess for me "fatigue" is a symptom of hypothyroidism. When I get that fatigue it's a red flag to ask for a thyroid function test. I can normally tell if my TSH goes above 1. All other bits and bobs such as anaemia etc under control (or as good as it gets) that sense of fatigue isn't there...
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    Response to Women's Health Survey from Improve Thyroid Treatment group

    Interesting. The symptoms of low iron, hypothyroidism, allergies and ME definitely overlap in places and it can complicate trying to untangle what's causing it when I go through a bad spell. Sometimes it is just a bad spell. The fatigue I experience with hypothyroidism feels rather different...
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    Article: EVE SIMMONS: Why I believe raking over the past ISN’T always good for our mental health

    Who defines what constitutes trauma? Two people can suffer the same event, one can be traumatised while the other is not. It isn't necessarily that the traumatised individual is more sensitive or the other less. Perhaps it's more about what else was going on in their lives at the time in...
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    Article: EVE SIMMONS: Why I believe raking over the past ISN’T always good for our mental health

    The article also says: No it doesn't mean they can't find ways to help patients get better but it also means that they can do the patient a lot of harm, even if well intentioned. One simple example of type 1 insulin dependent diabetes since Simon brought diabetes up himself. It was thought...
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    Response to Women's Health Survey from Improve Thyroid Treatment group

    I was lucky enough to have a really good endocrinologist for a while. He was a private doctor so had the time to take a thorough history. I was diagnosed with Hashimoto's in my mid 20s. However, it turns out that symptoms that I had consulted my GP about from my early teens onwards were all...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Should be made go work in A&E and a critical care ward for a week or two. If they had genuine interest in it surely it would be an excellent opportunity to see all that hysteria close up and explain to the patients they just needed to believe they can breathe? :banghead:
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    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    I do see how frustrating the other side of the coin must be though when the patient will not listen or engage with a doctor who is trying to help. I'm not even talking about contested illness here but simply folk who've gotten a bee in their bonnet. I have had friends who've convinced...
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    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    I agree we can't know as we weren't there. However, unfortunately, yes I can well believe that there are some doctors who would behave like this - albeit they may be a tiny minority. I had an extremely unpleasant experience of my own with a doctor in A&E when I presented with something else...
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    Massive Science article: We must reckon with our ableism if we want healthcare to work for people

    I skimmed the article and believe there are a couple of separate, but related issues. The first is a contested illness issue. What is fibromyalgia, how do you test for it, what do you do about it. If as a doctor you don't believe fibromyalgia exists, then do you automatically assume a) the...
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    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    To some extent I think GPs who refer on can be the victims of medicine's success. Those who are lucky enough to have good health and don't have a close ties with anyone with chronic health conditions tend to believe that medicine can fix almost everything and do so quite quickly, in my...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    In and of itself, no. However, in the bigger context of healthcare the ones who seem to be pushing hardest for low tech treatments and also driving down the skillsets needed to deliver those treatments are either psychologists or psychiatrists. They also seem very invested in those half baked...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Marking each other's work is a different kettle of fish, I think. Occasionally, we did that when I was a schoolgirl. In my final year a teacher who had never taught us before took over our maths class. I wish I'd had her as a teacher sooner! We broke up into workgroups and marked each others...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Is it just me? 1st we had the BPS lot busily citing their own work....in their own work. Now we have this person being interviewed in his own podcast? How soon beforw we let schoolkids mark their own homework?
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    The need for a standardized conceptual term to describe invalidation of patient symptoms, 2021, Bontempo

    As others have said I use gaslighting on the forum -because that's what it is. Usually we are referring to those who really do know better. When in direct contact with medical professionals then I tend to be more neutral in my language (when my brain is with it enough for me to choose my...
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    Covid-19 vaccination experiences

    :emoji_fingers_crossed: fingers crossed for you @JemPD.
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    My PEM seems to have changed its character from last year

    I find that my experience of PEM can be altered when I need to adjust my daily dose of levothyroxine. This happens at least once a year - usually a couple of times. If I need more then my heart rate is lower, fatigue will be more pronounced (for me fatigue is.a much more secondary symptom)...
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    Preprint: The Rise And Fall Of The Wessely School, 2021, Marks

    They are experts in a treatment. A treatment in need of an ailment to cure. Sadly, ME/CFS is not that ailment and, unfortunately, it doesn't look like the treatment does all that much for anything else. Except cause harm - that's what it does most effectively. Criticisms of that treatment...
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    A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls, 2021, Sirois et al

    I do have perfectionist traits - this came in very handy as an engineer where you can't afford to miss something. Everything you do, you have to have a plan, preferably tried and tested, to undo and roll back. I like my windows to sparkle and my floor to be clean. However. There's often...
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    A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls, 2021, Sirois et al

    I can understand to a certain extent. I think it's possible that an awful lot could be learned about how humans can adapt to uncertainty and loss. Plus different types of loss - financial, sense of identity, control, role in the family etc. What hope can do and.how false hope can harm, etc...
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