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Well, it probably isn't the patients' opinion if the CFS clinics are anything to go by. As many of them.don't think it's possible for patients to be harmed by their treatments they don't record harms or outcomes.

Just a note for anyone who has a steam cleaner. Closing the door and windows of a room and releasing bursts of steam into the air can help encapsulate dust particles. Then using either a cloth dampened by the steam or just a very slightly damp cloth can pick up more of it from.the surfaces...

Marketing niche. The influence of established religions on communities and daily lives are probably weaker than ever so they've spotted a gap in the market.

I can why that might seem fair. In view of the liberties taken with language by the BPS I'm afraid that I am inclined not to grant such favours. If he doesn't like it he can complain to Simon Wessely & his pals and he can always set the record straight himself.

And isn't it odd that they want to hear from "recovered" patients who are more ill than when they started - as long as it's in the form of a questionnaire that isn't fit for purpose, filled in after you've more or less trained people how to fill it in. Yet they don't want to hear from those...

I'm really struggling with your logic here @Esther12. On the subject of recovery, which to me includes what research is needed to enable more people to recover, don't listen to those who are still ill, just those who have already recovered? I honestly think you.may be over analyzing what the...

I'm not so sure. Don't get me wrong, I think Workwell do important work and are taking a serious look at how exe and HR might affect a pwME. I also think HR monitors have an important role to play. But..... I think it's actually very misleading for a newbie. It gives a false, overconfident...

I found it interesting but would also struggle to apply it. Knowledge is power & all that but in this case I think this factsheet would be far better aimed at physios, GPs etc to demonstrate the threshold Workwell think patients should stay below and how much support they should have to stay...

From a different field, my experience is that both "techies" and non "techie" should be involved in the one process rather than independently and the decision of both teams weighed up at the end. Techies can go into flights of fancy and can easily get so caught upnin the technicalities they...

Ah ok. I understand. It's not simply the process as it relates to us, it's the process they use full stop.

Fair enough. Still, I don't disagree with them doing their own groundwork which their future decisions will be made on. The boring groundwork and detail gathering is where it is easy to miss something that could affect decisions taken later on and lead to claims of bowing to pressure etc...

Was it unnecessary though? Should NICE take Cochrane's work at face value? I don't think so. NICE have a responsibility to the British people that Cochrane do not. We also know that Cochrane have their own issues. No. As far as I'm concerned if you are going to take responsibility for...

I contacted someone who wrote a blog about the use of smart home devices and how they can make life so much easier for people living with chronic illness. It was a good piece but I wrote to ask if they would update it with a note that people should always be aware of security. Make sure their...

Exactly. Also you can still be working and eligible to claim PIP. Just because you have difficulty with mobility doesn't mean that you can't go on a flight somewhere. It just means that you might need more support in the lead up to, during and after the journey. That support might be more...

I wonder if this is the cumulative effect of more than one problem. I have blue/grey eyes and have always been a bit light sensitive. I started having migraines as a pre - teen. The sensitivity became much more extreme and when a migraine was brewing soon became impossible to ignore or work...

From the perspective of someone who worked in an entirely different field - In my line of work I was often asked, indeed pressured, to come up with documentation that would enable less qualified personnel to carry out at least some of the work that those more qualified and with more experience...

I had a quick scan and there's no obvious time limit or end date to the campaign. That would be useful information to know.

Actually this kind of thing was done in the past, I believe. As part of general public health. In the past of course our information wasn't seen as a commodity with cash value. if it's possible to anonymise data from any other health study, there's no reason why it couldn't be done for...

The example uses people in authority that someone would normally learn from and listen to. I can see that may not have been the intention but to compare this quote with Garner saying listen to those who have recovered rather than those still ill. It does rather equate those who have recovered...

Right now perhaps you could summarize that and put it into a tweet? Or some other social media platform where Garner chooses to post? I'm afraid I still think it is sophistry. Indeed by using the example of those who have recovered and equating them with a person in authority who educates such...