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I find how I take it makes a big difference too. The effect is very subtle & can easily be overridden if I do anything too stimulating between that and sleep.

Can we get a nice big poster with this on it and send them to Wessely, Sharpe, Chalder, Moss-Morris & every CFS clinic across the land?

It can be given but I got the impression it's not that common. When I asked my own GP about it when I was first prescribed it privately they were happy to do it but the practise wouldn't allow them because I was under 55. Even though I had tried the z drugs and the old style antihistamines and...

This is something I spent a lot of time and money pursuing with a very experienced consultant dietician. We did all sorts of tests, exclusion diets, we tried things and dropped things. It was enormously helpful in some ways & I got IBS under control (yeast & sugar free diet) but nothing made a...

I believe that is currently the case in the UK too. Interestingly, I was in the chemist one day and overheard another patient having a chat with the pharmacist. He was clearly younger than me by up to a decade and he had an NHS prescription for Circadin. It would appear he was being weaned...

N=1 I take 10mg zinc every night (best to avoid taking it with meals or when fibre is consumed as it binds to the fibre). 1 also take 2mg Circadin which is prescription slow release melatonin. Does it affect my ME in any significant way? Not really. Zinc is helpful as I am hypothyroid and...

As far as I know they can. Like a lot of things some people don't get very severe symptoms & some do. I only discovered I had had EBV when I tested positive for antibodies about 15 years ago. I was never diagnosed with it but I remember getting a really, really bad flu that knocked me...

It might not. I guess it depends on what's going on. I experience pain as part of ME and in the early days pain and cognitive problems were probably my biggest issues. I was referred to a private physio, initially to see if learning new breathing techniques would be helpful in addressing IBS...

Isn't biopsychosocial inherently multidimensional?...bio+psych+social...mind you the way it's practised in the UK perhaps not. Absolutely. The right intervention in a timely manner rather than lots of delaying chit chat.

Something else you got wrong then. What about the phrase (& I am paraphrasing here) "the only thing wrong with these people is their belief they have an illness called ME"?. Forgotten that have we? Subtle repositioning - it wasn't his patients who had a problem. No, it was the public...

I think it is possible but we just need to go about it differently. The barriers to learning more, as I see it, especially in light of covid and the errors being made there - 1 - the patient - especially the experienced patient is a part of the team & not just something to be harvested for...

Again, it still stands. I don't believe this is suitable & filling in once a day wouldn't be at all accurate. Especially for the very people you would want to target - those who suffer particularly from cognitive problems. I have learned by experience not to answer the phone for example. Too...

I agree with most of what you said but I disagree about the diaries. Okay, I'll admit part of that is because I loathe the things and find it's the equivalent of having your disability well & truly rubbed in your face. For me a wholly negative experience and a massive extra cognitive burden...

But they're not going back to the start are they? There are always core assumptions and if people persist in remaining blind to those then there are going to be problems. Here we, the ME community, are, an abject lesson in precisely how to do it wrong. Still invisible. Heaven forbid lessons...

I really hope she's okay @Yessica. :hug:

Carson in this case being a Gail Carson and not BPSer Alan Carson. I would hope that when they look at psychological symptoms they remember to take into account the devastating uncertainty that such a diagnosis, with it's lack of clear prognosis, wreaks. How do you manage finances...

I haven't got a research reference for this but when teasing a sibling who was hooked up to their own painkiller pump they told me that staff explained that patients tended to use a lower amount of pain medication overall when they were allowed to dose themselves. They just timed it...

Yep, me too. I can feel like this even after a nap during the day & is one of the reasons I hate taking naps because I know how I'll feel when I wake. Then again, if I don't take the nap it's likely I'll end up feeling like that anyway or wired but tired which means I'll struggle to sleep and...

Mine don't actually swell up that much, they just really, really hurt.

I agree it is shocking and disturbing. What shocks and disturbs me even more is that it's just so blatant and public. Not only that but presumably Ioannidis has friends at the journal...you would think surely one of those would step in and have a word with him & point out his response reflects...