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  1. rvallee

    Article, The Times (London), 06/04/2024, How rogue concussion doctor is still damaging our trust in the science

    It's rarely the case that individuals have such power. Their power comes from a wider acceptance of their ideas, to the point where opposition is nearly non-existent. If there wasn't broad support within the medical community for those ideas, they would have never taken hold. I'd say the same...
  2. rvallee

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    For sure, one pattern that hasn't changed: it's worse in context, and the more context you add the worse it looks. I also find it hard not to see this as deliberate provocation, and if it isn't, the fact that it looks exactly like deliberate provocation doesn't make it any better, it's not...
  3. rvallee

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    This is from accelerometer data from 7 days: Obviously not. SF-36 shows quite significant physical impairment, and yet the 6 MWT shows only a slight difference. I don't know how total physical activity, sedentary behavior and 6-MWT can be similar to controls in a group with an average of 13...
  4. rvallee

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    Inability to question absurd results is one hell of a problem. They have some discussion of PEM, minimal, it's listed as a required criterion, and find that exercise is well-tolerated in people who have PEM. This is obviously nonsensical. Not everyone with LC has PEM or intolerance to exercise...
  5. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Given everything discussed generally and on this thread, with stuff like "numbers needed to offend" and other blatantly offensive and unethical things being openly discussed in the literature and immortalized on the Web, I realized that a major reason why so many MDs dislike social media is for...
  6. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    That's actually remarkable. A majority think it's a bad label, but it's the most effective at getting patients to agree to something they don't actually agree with, so it became widely adopted. They chose a term they consider bad in large part because it's more effective at being unethical. Good...
  7. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Oh for sure, but the state of mind is currently identified by this label, it's what on the box. Same as when we're talking about some dude named Steve who is doing bad things, we call him Steve, not "he who does bad things because of his state of mind". It's mostly a MD label, rather than a...
  8. rvallee

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Just as I'm sure that the NIH sponsoring an AIDS denial conference would not be viewed as endorsing AIDS denial. Sure, Walter.
  9. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    And we've seen attempts at creating a 'functional cognitive disorder', which basically takes over brain fog as yet another functional disorder, but there is only one functional disorder, and it's the conversion disorder. Hundreds of bottles, but it's all the same, uh, beer. There are even...
  10. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It sure is, but in psychosomatic ideology, they don't know the denominator so they simply divide by the numerator and voilà: 100% success. It makes sense if you don't think about it.
  11. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Best I can tell it simply means "best we can do", similar to what "state of the art" means in technology: the latest and greatest. Doesn't mean it's any good. In fact it could be awful, but it's the best that can be done by the best experts in the field. But the clear connotation that makes it...
  12. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    There is some stuff that is also transient. In MS the lesions have to be imaged at the right time to be seen, and a % will always be missed simply because of time. A bit similar to the bull's eye rash in Lyme, it's only visible for a few days and if it's a place the patient isn't looking, will...
  13. rvallee

    Checklist to assess Trustworthiness in RAndomised Controlled Trials (TRACT checklist): concept proposal and pilot, 2023, Mol et al

    Most of this is up to individual judgment and open to interpretation. Which isn't necessarily bad in itself, but given the history of evidence-based medicine, where people who do trials usually grade trials similar to their own, this is the same old problem. None of this appears close to reduce...
  14. rvallee

    “They seemed to be like cogs working in different directions”: a longitudinal qualitative study on Long COVID healthcare services in [UK], 2024, Fang+

    Personally I prefer the image of interlocking gears and cogs. No matter which one you try to turn, it's always connected to another gear or cog that only goes in the other direction and blocks any movement. But it's impossible to change how the machinery is built, this is how the gears and cogs...
  15. rvallee

    “They seemed to be like cogs working in different directions”: a longitudinal qualitative study on Long COVID healthcare services in [UK], 2024, Fang+

    TL;DR: Health care systems are unable to meet this demand, and are unwilling to change, but patients have no alternatives so they still try but fail at getting any substantial help, while nothing has changed since day 1. Patients and MDs all speak of it, it's heavily used throughout, but have a...
  16. rvallee

    News from Australia

    Long COVID: Sufferers can take heart Australian Journal of General Practice https://www1.racgp.org.au/ajgp/2024/april/long-covid-sufferers-can-take-heart Although the Australian Bureau of Statistics and other health agencies in Australia do not survey the prevalence of long COVID, it is...
  17. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    I think one of the ways to make sense of this would be to say that we dismiss the concept of conversion disorder, or at least I and many others sure do, and that FND is simply a label stacked on top of it to make it palatable to patients, which is openly admitted in the research. The conflict...
  18. rvallee

    Time-dependent complexity characterisation of activity patterns in patients with Chronic Fatigue Syndrome 2024 Rabaey et al

    In other words: patients have always reported what was happening, that a fluctuating illness... fluctuates. Surprised to see a rational conclusion to this. It actually seems like a potentially useful application of biopsychosocial thinking, a holistic approach that considers several dimensions...
  19. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Aka, a confidence artist, or a confidence trick, which rests entirely on effectively expressing high confidence with the intent of deceiving a target about one's true intent, generally in such a way that they don't even know they were tricked. On Wikipedia they merged the various concepts onto...
  20. rvallee

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Oh zero chance this ever happens. Even past the point at which almost all medical issues can be explained with technology, those trained on this ideology will insist that they were always right, in fact that they were vindicated, that there's this tiny nugget left they could still explain, they...
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