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  1. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Unfortunately, this is how biopsychosocial works. We've long been a women's illness, despite lots of men being affected. For decades a minimal tendency towards a bit more childhood adversity, likely nothing but an anomaly, was emphasized to mean that it's a major cause, even though many of us...
  2. rvallee

    Scots scientists uncover DNA 'switch' which affects anxiety levels

    Mice these days, always worried and stressed about their marbles. Not like the mice back in my days, who had respect for their elders and didn't worry, they just carried on like normal mice do. At what point does it even make sense to speak of anxiety, which is defined as worrying about things...
  3. rvallee

    Revisiting the jumping to conclusions bias in functional movement disorders, 2024, Sainz-Amo et al.

    Meta jumping to conclusions. Beyond parody. For sure, someone in this is very susceptible to suggestions, but like most things psychosomatic, it isn't the patients.
  4. rvallee

    Review What is the impact of long-term COVID-19 on workers in healthcare settings? A rapid systematic review of current evidence, Cruickshank et at, 2024

    The challenges being that being a professional makes no difference here, they are treated like the rest of us. It's bizarre how every study about HCPs with LC always emphasize that, and yet it's not even a real difference. It's precisely because once you are a patient you become an unreliable...
  5. rvallee

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    I haven't read much of that from the ME community, I guess by the point we start talking about it online we're so far done that it just doesn't get discussed, but judging from the LC community, the only reason why anyone prefers to meet with a clinician is because they expect more than simply...
  6. rvallee

    "Updates on long Covid and the brain" (The Psychologist, The British Psychological Society)

    A bit ambivalent in that the discrimination (it's not stigma it's overt, clearly bigoted discrimination) originates within the medical and psychological professions. Although it would be more fair to say that medicine, especially neurology and psychiatry, have a lot more blame here than...
  7. rvallee

    "Updates on long Covid and the brain" (The Psychologist, The British Psychological Society)

    Long Covid is a multisystemic post-acute infection syndrome. Its symptoms can manifest in many organs and bodily systems, and often follow a relapsing and remitting pattern. Common symptoms include fatigue, post-exertional malaise (PEM), orthostatic intolerance, brain fog, and more; however, not...
  8. rvallee

    Trial Report Fatigue and somatic symptom burden among U.S. adults with current, previous, or no history of long COVID, 2024, Sirotiak

    Bread may be associated with flour. Possibly a leavening agent. Groundbreaking stuff. The state of medical research, folks.
  9. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    It's not. There is no measurement here. There is only a misapplied test tortured to fit a pre-achieved conclusion that invents a bullshit term out of a sample so tiny that a single tester creates the significance they want. What ridiculous nonsense that all they can think of responding is...
  10. rvallee

    Lancet, Time for a balanced conversation about menopause, 2024

    Aside from the ridiculous notion that menopause has been overmedicalized, the fact that the editorial is not signed almost guarantees that it was written by a man, and they are presenting this as a "both sides" issue with the premise "you're wrong, and I'm right". Laughable. Medicine has a...
  11. rvallee

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Hence why they go back and forth between claiming that trials prove them right, when the latest trial or review sort of claims so, but when the latest one shows otherwise, they move back to their clinical experience, which cannot be proven since it's all private and no records are kept. The...
  12. rvallee

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    It was a bit weird that Nath chose to speak to a biopsychosocial conference (last year?) on Long Covid featuring nothing but psychosomatic ideologues. It seemed out of place and possibly a way for him to speak to them about how science can actually solve this. But looking back from this, it...
  13. rvallee

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Impressive that when you consider the big picture, however it's described, this is simply the merger of scientific and alternative medicine. And not the best of either, literally the worst of both. It's akin to the merger of science and religion, and somehow, in health and in health alone, it is...
  14. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    That's because of the design of 2 random rewards. If they had made it cumulative, if they had made choosing hard tasks more rewarding, HV F would have chosen 100% hard tasks, and likely more would have, including patients. But they didn't, they designed it in a way that made this the optimal...
  15. rvallee

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Well this wasn't a validation study. It was a deep phenotyping study that made heavily emphasized assertions out of data that is only significant because a single tester played the game to effectively maximize the rewards. The authors made explicit claims about the fundamental mechanism of the...
  16. rvallee

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    I used it for a few months and didn't find it especially useful. The stability score isn't particularly accurate, and things don't change much from day-to-day so I stopped logging. I've been using a WHOOP device for several months, and overall found that my HRV is the most useful measure of how...
  17. rvallee

    “AI will cure cancer” misunderstands both AI and medicine

    This is certainly true, but it misses the point that one major reason MDs so commonly disbelieve patients is because resources, including their time, are too limited, and that accelerating all technological tools will lessen the burden of ordering tests that MDs are strongly encouraged to limit...
  18. rvallee

    News from Scandinavia

    Who indeed?
  19. rvallee

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    Somehow reminds me of this weird tweet I saw yesterday, which I'm not sure is satire but it's definitely believable, about how people who know the clitoris is not real are oppressed and have their rights trampled on. By Big Clit, I guess. Of course they blame feminism for this. Like you say...
  20. rvallee

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    The ease with which these people lie is genuinely impressive. They have absolute contempt for the truth and their own patients. It's like the stuff you hear out of hate-focused radio shows or podcasts, they'll simply say anything to push their agenda. Almost all of the real research is only...
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