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Either way an apology is due us.

Maybe… My feeling is that the standard office response would need to be more polite than this one is, otherwise office staff might need to re trained or replaced. Or perhaps they really are all this inadequate at communicating with others and that is a contributing factor for their financial...

One aspect of the manner in which the author of this letter from Cochrane addresses us here is that it seems the author cannot afford the ordinary pleasantries of written correspondence. On the one hand I think this may be taken as a mask off moment. Look at who we really are and see that you...

A discourteous reply. Unequal to our enquiry.

If you already have LC damage done and or you can’t avoid getting infected because you're a disabled person who requires services and you’re neither wealthy nor healthy enough to isolate in a lovely cabin in the woods?

I can’t manage to read this study, could someone tell me how would this be monitored? Are there any existing interventions at all, if so are they rare and expensive or more widely available? warranting careful monitoring and the development of targeted interventions to improve endothelial...

So many lives sacrificed to capitalism and cuts. How can we hope to live under these ever worsening conditions?

I think there are various articles and blog posts about the ideological foundations of Cochrane. That’s all supportive of @Jonathan Edwards conclusions.

Yeah @Sarah94 they are really dusting off this old mouldy chestnut. Never too late to re-launch a campaign of discrimination and destruction against an already marginalised minority population.

I agree it’s not the fault of individual reviewers who might in some cases have done an excellent job of reviewing the evidence, on occasions where they weren’t marking their own homework say. But if Cochrane is structurally too weak to support the best evidence in every case then then it has...

Umm @Peter Trewhitt. Whether they mean it to or not. Though, I think we already know, no organisation can possibly be ‘incompetent’ enough to forget how to respond to the concerns- of patient advocate and groups- repeatedly expressed year after year.

Yes absolutely there are.

This letter is perfect. :emoji_fire::emoji_fire::emoji_fire:

Interesting thanks, I wonder if this could be my issue too…

Yeah, by predisposed I mean for one thing or another, we all are. It’s definitely Covid causing sickness, just as EBV causes sickness. People are all vulnerable. We are vulnerable in the same way being human and infected with a novel and deadly virus is an immediate risk to our organs and our...

I think that COVID-19 is causing flares and aggressive attacks of autoimmune and autoinflammatory connective tissue disorders in people who would have had a slower progression and or milder form of these diseases. So it’s the COVID making people sick via other pathways. I also think COVID can...

Thanks! I do really want it. They have suggested it as important for the medication I am on, I didn’t know about that until I saw the letter. But from my own point of view I have asthma quite badly since COVID, I live in fear of complications I think that steroid inhalers can increase risk...

Forgive me if I’m in the wrong place for this. I’ll move it if so…. I have a letter recommending I get flu vax, Covid booster and pneumonia vax, there may have been something else too I can’t remember. Anyone had pneumonia vaccine or know anything about it’s effects on people with ME or...

Excellent debunk folks :thumbsup:

No @SNT Gatchaman they said what they meant. Straight up. Up front. They need their busy colleagues to understand straight away where they’re coming from. No reflection no remorse, on course. You’re right the third option is implied. The standard practice. For the wriggle room. For the...