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  1. Kitty

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Nor the phenomenon where some people appear to recover well from acute Covid, but then develop hard-hitting chronic symptoms weeks or even months later. I've seen numerous reports of that over the last year or so.
  2. Kitty

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    Charity-speak for a specific type of income. It's the result of work by a specialist fundraising team, and usually comes from sources other than a charity's traditional income streams ("We're skint this year, who haven't we asked yet?"). Examples might be grants from private trusts and...
  3. Kitty

    Covid-19 vaccination experiences

    Noooo! What a pain in the bum. I had to wait six months and a week, but since they reduced it to three months, quite a few of my younger friends have managed to get topped up just in time for Christmas. Shame your husband couldn't get done, but hopefully you'll both manage to dodge the lurgy anyway.
  4. Kitty

    The Chrysalis Effect

    Health minister doesn't necessarily mean the secretary of state for health. It could just as well have been a brief conversation with some junior minister over coffee at some event or other. Had it been the secretary of state, they'd probably have mentioned it. The unnecessarily tautological...
  5. Kitty

    Relationship between pineal gland, sleep and melatonin in fibromyalgia women: a magnetic resonance imaging study, 2021, Leon-Llamas et al

    I read it as a correlation that doesn't reach statistical significance. But then again I haven't mastered long division yet, so I'm not exactly the go-to person on anything to do with maths... :rofl:
  6. Kitty

    The Chrysalis Effect

    Hopefully the NHS won't touch it with a 10-foot pole, since it sounds very unlikely to be any kind of a match with the NICE guidelines.
  7. Kitty

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    Especially as people habituate to many medications fairly quickly. They may still have some effect, but of course not all of them will reduce a person's cognitive capacity—some may improve it by reducing symptoms that would otherwise be distracting.
  8. Kitty

    News from Aotearoa/New Zealand and the Pacific Islands

    I do wish someone had researched this. If a significant percentage of people really are having adverse reactions, and a few (myself included) had unmistakably beneficial responses, doesn't that say something about the immune systems of people with ME?
  9. Kitty

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yep—and we talk an awful lot about what we don't want. We need to pipe up more about what we need.
  10. Kitty

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Thank you, I think I'll go for that version. (Don't know a word of Norwegian, so it won't annoy me at all.)
  11. Kitty

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    So only people who know nothing at all about an illness are qualified to understand it. Well, that explains an awful lot of the last 30 years.
  12. Kitty

    Preprint:CFS/ME, FM: “Therapeutic Test” and .. treatment .. clots and hypoperfusion, 2021, Chang, Figueredo

    Especially as people get into old age, surely. A relative of ours developed ME during the second world war, and had it until she died of pneumonia aged 92. It'd be surprising to live with blood clots for 70 years, and yet never develop problems such as thromboses or TIAs or phlebitis. (Someone...
  13. Kitty

    Exercise plasma boosts memory and dampens brain inflammation via clusterin, 2021, Zurien De Miguel et al

    I know it starts off with the usual guff about exercise, but to be fair, it's about showing an effect in humans with cognitive impairment and mice with brain inflammation / a dementia equivalent, and anything that could help with that is worth researching in my book. My elderly mum developed...
  14. Kitty

    Aphaeresis/ Apheresis (for removal of microclots)

    One way would be to find funding for a trial in a country where this treatment is not currently being offered, but which has the capability to do it—most European and Scandinavian countries would probably fit the bill, as would the UK. Those potential recruits wouldn't be missing out by being...
  15. Kitty

    The maintained attention assessment in patients affected by [ME/CFS]: a reliable biomarker?, Murga et al, 2021

    I think you could reveal how ME affects my cognitive abilities pretty well by giving me an easy crossword (like the Guardian Quick) when I was well rested, and after making me stand up for a few minutes. I know this because I've been doing that crossword most days for donkey's years. I can...
  16. Kitty

    Suddenly feeling very tired

    I think @Barry's right—worth checking out. I do get a very similar thing, but there are several causes that all result in quite similar symptoms: Big peak in blood sugar, i.e. eating a cake without any other food – confirmed by blood glucose meter; Low blood sugar, i.e. reactive hypo – ditto...
  17. Kitty

    Covid-19 vaccines and vaccinations

    I'm not convinced anyone really knows, especially given the new variants that are going to keep popping up. My decision, given that I've never had a really bad vaccine reaction, would always be to hedge my bets by accepting any top-ups that are offered, plus taking as many reasonable...
  18. Kitty

    Open Medicine Foundation (OMF) fundraising

    I know this is an OMF thread, but the emails I get are actually all from UK-based charities. The run-up to Christmas* is when our budgets are most stretched—quite apart from the gift-giving, food-buying, card-sending and Christmas-tree decorating, our heating costs are doubled because it's...
  19. Kitty

    Open Medicine Foundation (OMF) fundraising

    It's not a great time of year to try and raise money from people who mostly don't have enough to manage in the first place, is it.
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