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  1. rvallee

    The pain psychologist Rachel Zoffness expains why pain is a “biopsychosocial phenomenon“…. Ezra Klein, New York Times columnist

    Generally, they simply separate acute pain, real pain, from chronic pain, "learned" pain. So it should only work on that "learned" pain, which they probably think they're avoiding because they think it right by not falling for the wrong thinking. Or whatever. Until it actually happens to them, I...
  2. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    The leaders in the functional ideology, at least the bastardized version applied to us, have published more than once, and commented outside of academia, "diagnosing" people with functional movement disorders watching videos on tik-tok. Never saw the patients. Never talked to them or examined...
  3. rvallee

    United Kingdom: Rona Moss-Morris

    Yeah this account is a pwME that collects good and bad stuff. Same handle on twitter.
  4. rvallee

    Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review, 2023, Singh Chandan et al

    How can a systematic review end up with only 5 studies when there have been hundreds, probably north of a thousand? All poor quality, sure, but so are the included ones. This is not what systematic means, at least the word. Because routinely we see "systematic reviews" that exclude 99% or so of...
  5. rvallee

    Long Covid in the media and social media 2023

    There is a virtual event today on Long Covid, featuring a US Senator pwLC, Tim Kaine (who was Hillary Clinton's VP candidate), and the assistant secretary of the department of Health.
  6. rvallee

    Major study on physical activity support for Long-COVID patients launched

    Unfortunately with the people involved, this study cannot be trusted, it is too biased. I don't understand how bias is basically irrelevant in EBM. It's as biased as the fraudulent studies put out by the tobacco companies. There are better bits than usual but it's still absurd to be stuck at...
  7. rvallee

    Long Covid in the media and social media 2023

    Frankly, looking at what has happened with LC, we punched way above our weight. We even did a lot of debunking ourselves, it's just that it turns out that evidence is irrelevant in evidence-based medicine, and that, clearly, some patients are way less equal than others. We lead the horse to the...
  8. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    I saw a thread yesterday on the LC subreddit and someone mentioned a program at Mayo they will take part in where they were told that LC is two things: organ damage, or the rest is their "body being stuck in flight of fight mode". Which is not even a thing, and the F or F thing is a crude...
  9. rvallee

    The pain psychologist Rachel Zoffness expains why pain is a “biopsychosocial phenomenon“…. Ezra Klein, New York Times columnist

    Do these people literally don't know that animals exist? Animals with far lower intelligence, no theory of mind and very basic instincts? Or that they also feel pain? And heat. And touch. Even without a neocortex. Or even a complex nervous system. It's a freaking evolutionary adaptation to...
  10. rvallee

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    Oops? To think that all of this, or at least the modern incarnation, was driven by the belief that it would be cost-effective. All it accomplished is to waste billions building up a pseudoscience so millions of lives get ruined at a cost of trillions. Brilliant work, geniuses. Although to be...
  11. rvallee

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Seems more of a case of never having adopted falsifiability as necessary, or even important, than having abandoned it. This conversion disorder nonsense started in the late 19th century, when barely 1-2% of what we know today was known, and science as we know it had barely took hold. Peptic...
  12. rvallee

    PERCEIVE study (GET for Long Covid): Baker Heart and Diabetes Institute, Australia

    Perceive, how Orwellian. Marketing the study while it's ongoing, and showing pathetic "benefits", that 15% is definitely something to sneeze at, now that's peak evidence-based medicine. It really is all about perception, just not the patients'. The researchers are clearly showing they...
  13. rvallee

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    So it seems from a peek in the rabbit hole that this review is having a huge impact in the antivaccine and pandemic deniers circles. They love it, have a newly-found-but-very-selective love for high-eminence publications. Same for the recent Lancet paper minimizing Long Covid. The Lancet, and...
  14. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Image so can't quote but a pro hockey player (NHL) who missed an entire season and is stepping back again after returning to play. Used to be a superstar player.
  15. rvallee

    Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

    Always focuses on distress, never the real life consequences of being disabled with no support. That framing has to change.
  16. rvallee

    Four-year follow-up on fatigue and sleep quality of a three-armed partly randomized controlled study in breast cancer survivors... 2023 Kröz et al

    I don't see how this is any different from the nonsense in the 70's about cancer personalities. Seems like medicine is badly struggling to learn any lessons when they are to blame. The entire credibility of scientific medicine is precisely that it's based on medicine. So what credibility does...
  17. rvallee

    Long Covid in the media and social media 2023

    I watched the PBS report posted here. Impressive work. It begins with patient excerpts and they really capture the overall impact well. Very impressed, PBS Newshour remains one of the best news program out there. Worth watching, although nothing new for most here. Impressed by Putrino as well...
  18. rvallee

    Fatigue, not self-rated motor symptom severity, affects quality of life in functional motor disorders 2018 Gelauff, Stone, Rosmalen et al

    Well, obviously. There is no scientific understanding of fatigue, how it works or how to assess it objectively. It's just as true in any disease, is not particular to the neglected spaces of medicine. But the entire discipline is committed to wasting everything they do on nonsense like this...
  19. rvallee

    Assessment of cytokines, microRNA and patient related outcome measures in conversion disorder/[FND], 2021, van der Feltz-Cornelis et al

    It's research on conversion disorder. That's not serious at all. Doesn't matter if they do advanced lab work or a summoning circle. It's junk regardless.
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