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The fact that you had an anesthesia consult before the procedure warned them ahead of time to use different drugs and to be extra careful with how you react to the drug. Try to relax and take deep breaths before hand and remember to take deep breaths and move your toes when you wake up. Fingers...

Remember that when you go under general anesthetics, you lose the capacity to breathe for yourself and go unconscious- that is normal. It is so that your body does not fight the mechanical ventilation. The ‘waking up’ process is helped by drugs that reverse the drugs that were given to you. In...

Fentanyl is a narcotic commonly used.

The best practice that is recommended is to cough or sneeze into your elbow (upper sleeve). That is because tissues are thin and porous, and likely to contaminate your hands as droplets are projected in the air. Of course if this inadvertently happened, you should wash your hands and you hope...

Correct. Avoiding exposure from public areas is best as well. If you must get out, stay outdoors, or do groceries in least busy times and do not shake hands with anybody :) open doors with your shoulder or forearm (unless there is a knob). I have never heard of an anti-viral spray. It sounds to...

The world of POTS is messy as well. Some of the internationally known POTS specialists do not believe in ME and believe those who have ME have primary POTS. Then their POTs patients are ‘tired’ too. Many if not all display several symptoms which overlaps with ME, without ever being diagnosed...

Dr Hanson posted this on twitter tonight:

Where are these authors from, and who are they affiliated with?

Chronic disease management is not treatment and i agree with you @rvallee What i want my health care system to do is to look for treatments that are of value to me, which means that are likely to modify my disease. All that management stuff is aimed at adopting behaviors which falls within...

Sigh. I really wish the CDC was a more authoritative figure when it came to ME. And unfortunately, the so-called ‘high consequence pathogen and pathology department’ is simply a word salad that means nothing, especially when you realize that the current high consequence pathogen that is current...

What does he mean by ‘transferable factors’? Is he talking about viruses, or other infectious agents or is it wider than that?

I think what i was pointing to is that reporting adverse events is an ethical thing to do when it comes to trialling any treatments, may they be sanctioned or not by the medical body. Adverse events in this case of CCI surgery would be death, unsuccessful surgery, complications such as...

It is still important to put this information out there though, good and bad, without judgement. There are risks associated with any surgery, and this particular surgery makes it riskier from co-morbidities, amongst other things. Best wishes to Jenny and family.

Physicians do not even know how to diagnose it. And then they may simply confound fibromyalgia with ME because FM is a little better known. But FM does not get a lot more respect over here. The main researcher from FM in Canada actually preaches that patients should receive less care, not more...

Look at you all fine S4ME folks, you can smell BS from far, far away! :thumbup:

It is always a red flag for me if you have to buy a book in order to cure any ailment, may it be physical or emotional. These books are not peer reviewed. These protocols are not trialed with the rigours of the scientific process.

The cause of this man’s suffering was hiding in plain sight A client’s eagle-eyed examination spotted a critical clue that had been overlooked for years...

You can’t explain stupid. It happens. Obviously these researchers need a good dose of reality and go on to get vertigo themselves. And taste their own medicine to see what stupid tastes like.

Interesting work, @Michiel Tack. Methodology is everything! Edit to add: same as @Peter Trewhitt, my brain is hurting at the moment. But there is an additional layer of difficulty when patients get tested with labs that are not deemed reliable, both in the US and in Germany. Oh dear. Did I open...

It is also fairly easy for children to be quite sedentary- whether it is intended or unintended. So the behaviors of underperforming at school, becoming couch bound, having vague symptoms but feeling ok enough to go to school, all can be camouflaged, to a degree. And then teens, they really like...