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  1. rvallee

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    I still can't believe that the alternative medicine industry hasn't yet jumped enthusiastically on this. They can literally keep everything else the same, simply swap a few terms and voilà, they're now cutting edge behavioral treatment techniques harnessing the power of the placebo, the magical...
  2. rvallee

    Long-Term Effect of a Tablet-Based [CBT] Group Intervention on Step Count, Fatigue, Self-Efficacy, and [QoL] in Older Adults With Arthritis 2024 Fiske

    So simple that even a toddler can do it. Are you not smarter than a toddler?! And they genuinely seem shocked that we get offended at being treated like we're too stupid to figure stuff like this. I kind of glossed over the "requires minimal professional guidance" and it's even worse when you...
  3. rvallee

    Economist Impact - An incomplete picture: understanding the burden of long Covid

    All wishcare, you can't treat symptoms when you don't know how to treat symptoms. Having multidisciplinary teams going through ritual motions doesn't affect that. There has been nothing preventing anyone from doing most of this competently. There is still zero examination as to why this is being...
  4. rvallee

    Long-Term Effect of a Tablet-Based [CBT] Group Intervention on Step Count, Fatigue, Self-Efficacy, and [QoL] in Older Adults With Arthritis 2024 Fiske

    About what would be expected of any random alternative medicine program coaching people to think positively, then asking the participants how they think. You could get better results out of getting people who drink their own pee for health reasons, if you wanted to. Assessment of fatigue and...
  5. rvallee

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    They don't understand the risk, though. Or simply ignore it. Or dismiss it. Either way, they can't do a reward/risk evaluation without knowing the risk, which here in the worst case is lifelong total disability. It's like dividing by zero, it's invalid. That risk is simply rejected, even though...
  6. rvallee

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    It's always projection with these people. Just absurd level of projection and complete lack of self-awareness.
  7. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Lack of access really undersells the problem. Living in a very remote place where no specialists practice is lack of access. This is systemic denial of basic medical care. On purpose. Aware of the consequences. Defiant over a huge number of reports and studies showing the devastating...
  8. rvallee

    Guided graded exercise self-help plus specialist medical care versus specialist medical care alone for CFS (GETSET), 2017, Clark et al.

    Notably, this is pretty much the basis of homeopathy: a small dose of ill cures the illness. The 'theory' makes zero difference, it's clearly nonsense either way. But yeah the general idea of effort perception is nothing new, psychosomatic ideology has only had a single new idea in the last...
  9. rvallee

    RNZCGP GoodFellow Unit MedCases CPD Sept 2023: Chronic fatigue syndrome/myalgic encephalomyelitis

    How are people supposed to trust the credibility of medicine when they swallow stuff like this? Especially this thoroughly, it's basically an advertisement for it, full endorsement rarely just quotes straight from the marketing brochure this much because it sounds too forced and unnatural...
  10. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Interesting debunking of blatant misrepresentation of Long Covid data from the UK national survey. None of this can be argued to be accidental, it's very deliberate manipulation of perception. It clearly aims to misrepresent the lie that most people who would go on to develop LC already have. We...
  11. rvallee

    BioVie Awarded up to $13.1 Million in Funding from U.S. Department of Defense to Evaluate Bezisterim (NE3107) for the Treatment of Long COVID

    The US army has a loooot of people on active or reserve duty and lots more in veterans affairs. On top of a huge number of civilians in the administration and support side of things. Even something with a 1-2% prevalence can have a lot of impact if it's fully disabling, requiring lots of complex...
  12. rvallee

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    The same old nonsense as always. The small study doesn't support this, but it's said anyway, because exercise was already obsessively pushed, though they frame this as though there has been a full stop on all recommendations, even though it clearly does not treat or improve the condition...
  13. rvallee

    Correcting the scientific record on abortion and mental health outcomes, 2024, Littell et al.

    Published in BMJ and cites COPE, which as we know has been ignoring issues with Cochrane's terrible reviews on GET, where authors somehow, sometimes, get a veto on not retracting because "nuh uh", and simply mumbling about how it's out of their hands. LMAO. It's things like this that makes it...
  14. rvallee

    Trial Report Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in CFS with Orthostatic Intolerance,2024,Medow & Stewart

    Phenylephrine is a decongestant commonly found in some over-the-counter cold medication like Sudafed. Usually it's to reduce swelling and congestion in the sinuses, but apparently it works rather poorly for that when taken in pill form. Also apparently in some hemorrhoid medication, again to...
  15. rvallee

    Review Mitochondrial dysfunction in long COVID: mechanisms, consequences, and potential therapeutic approaches, 2024, Molnar et al.

    Oof. Not exactly encouraging... It's so poorly studied, and yet it may in fact be the most well-studied. Loooong way to go yet. I still get a strong feeling that once research produces significant breakthroughs here it will fuel a massive boost in medical science, basically uncovering many...
  16. rvallee

    UK: People with ongoing Long Covid symptoms unable to donate blood (as of July 2023)

    They're claiming whatever explanation satisfies the person asking at the moment they're asking.
  17. rvallee

    Trial Report Psychometric Properties of the REMAP Resilience Scale in a Norwegian Sample of ME/CFS Patients and Healthy Controls, 2024, Strand

    Also as I tend to be the polar opposite of almost every feature of the psychosocial stereotypes, this is yet another one. I'm a stoic by nature, it takes no effort for me to be 'resilient' in its usual meaning (as opposed to whatever is meant by this weird questionnaire, which includes questions...
  18. rvallee

    The Last Straw: How Stress Can Unmask Parkinson’s Disease 2024 van der Heide et al

    I don't think there's much confusion here. Rather it's preferring to think that a correlation must be causative because reasons.
  19. rvallee

    Trial Report Chronic nonspecific multiple-sites pain [CNMSP] of unknown etiology: Biopsychosocial method of evaluation for the primary care level, 2024, Goel

    This stuff is really the core of the problem. This needs no such thing. The biopsychosocial model is mostly useless, there is never a need for something that is useless. It's what the authors want, what is oddly fashionable despite being useless, which has nothing to do with what the patients...
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