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This sensor does not measure the severity of ME. It's not that simplistic and you can't base it on upright time. There is a difference between measuring levels of disability and severity. "Severely ill ME/CFS patients spend less than 20% of each day with feet on the floor". My best...

@Andy I feel post-COVID is in a unique category of it's own, just like Poliomyelitis. Polio is caused by one of three types of poliovirus (which are members of the Enterovirus genus). Some ME pts developed ME from enterovirus, but were never diagnosed with Polio because there are...

Why not diagnose them with Post-COVID Syndrome? They all become ill from the same viral infection. ME can manifest from different viruses etc and I would prefer ME be left out for the time being since we don't have solid biomarkers for PEM. On March 30 TV actor Nick Cordero had his leg...

This is worse in the morning for me. Is there an explanation as to why that is?

@Invisible Woman She is quizzing people on twitter regarding a patients test results. Reply from a medical doctor: "Listen Sparky...that urine pH you cited is *normal*, but since this dipstick result is inconsistent with a UTI, & shows blood in the urine, you may have just missed a...

@Invisible Woman You would have to read her whole kooky thread. She is basically saying based on her test results that, " low urine pH means you can’t wear a mask!”

Comments from a Naturopathic 'doctor'. o_O I wasn't sure if I should have posted this in the "Funnier Side of Life" thread.

They are predicting 300,000 deaths in the US by December.

I filled out their survey. Lots of questions about 'fatigue' and what supplements I took and whether they helped me. I might win a prize for my participation! https://btlscience.typeform.com/to/XnVlAbmJ

Our supermarkets have signs not to touch produce unless you plan to purchase, but it's difficult to enforce. I saw a man stick a cantaloupe right up to his face to do a smell test and and then put it back.

Do you have any references for this regarding ME? I've never come across this anywhere. I am familiar with emotional liabilities as a result of brain injuries and neurological disorders.

I have heard and read about many post-COVID long haulers experiencing mood swings. Are these individuals at heightened risk of neuropsychiatric symptoms such as depression etc I have never /read/heard this complaint coming from the ME community, and really hope this doesn't get mixed...

Nosophobia? I wonder if their pulse increases when they see us?

@Sid I experienced it myself when I became ill with a viral infection. Lots of eye rolling and asking me about my 'love life'.

@rvallee since this is a pandemic and not isolated cases of PVFS, it might be treated differently. That being said, I have worked with several doctors in my career, and illness such as flu, EBV type illnesses were taken very lightly amongst even their own doctor family members who...

Yup, there's a Canadian fb group with 925 members so far.

. . . and witnessing post-COVID long hauler doctors being eaten by their own.

The estimated deaths in long term care homes in Canada makes up 81% of total deaths. It is the HIGHEST rate of any country worldwide. Canada, a country that prides itself on its progressive health policies.:emoji_disappointed:

My issue with PEM is that I get very hot but don't sweat so I would stay hot (no cooling down) all the time. Now I"m in menopause so I have major night sweats and hot flashes, but haven't had PEM in 4 years so wouldn't know.