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  1. InitialConditions

    Looking for references: Initial covid infection severity and development of ME/CFS

    Is anyone aware of studies that have quantified the severity of initial COVID-19 infection and development of ME/CFS? We know that (i) ME/CFS can develop after any severity of acute infection; (ii) patients often report development of ME/CFS after mild or moderate infection; but do we have data...
  2. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    Print article in the Telegraph — complete with a terribly misquoted pull quote stating:“The effectiveness of CBT and rehabilitation implies that long COVID is not real but psychological.” I guess this is the icing on the cake. Can't see Garner and co being in any rush to call the Telegraph.
  3. InitialConditions

    Understanding Statistics

    Thanks for sharing. I almost made a thread earlier this year asking for such links — specifically stats for healthcare and clinical science.
  4. InitialConditions

    COFFI - The international collaborative on fatigue following infection

    This is probably what he was referring to on radio.
  5. InitialConditions

    COFFI - The international collaborative on fatigue following infection

    I have added a community note to Garner's latest post promoting the COFFI YouTube video. Please rate accordingly!
  6. InitialConditions

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    https://www.sciencemediacentre.org/expert-reaction-to-systematic-review-looking-at-interventions-including-talking-therapy-and-rehabilitation-for-the-management-of-long-covid/
  7. InitialConditions

    COFFI - The international collaborative on fatigue following infection

    The Jake who asks a question near the end is Dr Jake Hollis who wrote the two confused Guardian letters recently.
  8. InitialConditions

    Identifying Factors That Might Affect Outcomes of Exercise-Based Therapies in Long-COVID 2024 Grau et al

    I think the overriding factor is whether the LC patient has ME/CFS or not.
  9. InitialConditions

    Overview of NIH grants for ME/CFS research

    I am resurecting this thread to keep track of NIH grants/awards following discussions in another thread. Perhaps we can move this thread to the 'ME/CFS research news' subforum and use it to keep track of NIH awards....??
  10. InitialConditions

    Overview of NIH grants for ME/CFS research

    Perhaps we need a general NIH awards/grants thread, if we've not got one already.
  11. InitialConditions

    Overview of NIH grants for ME/CFS research

    Are your muscles tender to touch, especially during PEM? Pain is also not one of my major symptoms, but if I'm in bad PEM I can barely palpate some of my muscles, particularly in certain areas.
  12. InitialConditions

    Overview of NIH grants for ME/CFS research

    There are lots of related grants listed on the NIH link. Wonder if these have been discussed here...?
  13. InitialConditions

    Overview of NIH grants for ME/CFS research

    Ah, I see. In that case it's not actually wrong, as it's an internal link for the website indicating what class of news release the article is. Just a bit confusing.
  14. InitialConditions

    Overview of NIH grants for ME/CFS research

    i think this link needs fixing as it currently goes to a generic page. The NIH grant is here: https://reporter.nih.gov/search/1u1EMRDAXEi6MB5HeUbWbA/project-details/10951972
  15. InitialConditions

    Sunglasses for migraines and tired eyes - how to find ones when can’t get to shops

    There are companies that specialise in sending out multiple pairs of glasses through the post. I assume they will also do sunglasses. I can't remember the companies at the moment, but if you google 'try glasses at home' you'll get multiple hits. Not sure which country you are in.
  16. InitialConditions

    United Kingdom: ME Association governance issues

    They've hired a lot of extra staff over the last couple of years. In one of their annual financial reports not that many years ago they claimed they had only 6 full-time staff, or full-time equivalents. Can't quite remember now.
  17. InitialConditions

    United Kingdom: ME Association governance issues

    We know bedrest on the scale of weeks to months has consequences for our bodies, but, at some point, in ME/CFS, bedrest is likely a net beneficial, compared with trying to push through each day. There's no objective testing to show us at what stage this occurs, and it's likely different in each...
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