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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Good to see they're not rushing into anything....
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    No Causal Effects Detected in COVID-19 and ME/CFS: A Two Sample Mendelian Randomization Study 2023 Xu et al

    Until we can demonstrate conclusively that there are absolutely no Covid remnants in any patient who presents with persistent symptoms, "causal" studies such as this cannot rise above definitional white noise.
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    No Causal Effects Detected in COVID-19 and ME/CFS: A Two Sample Mendelian Randomization Study 2023 Xu et al

    Oh good. Statistics and semantics conjoined in a single piece highlighting two confusing and contested diseases. What could go wrong?
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    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    "There is zero credible evidence that she ever had Lyme Disease (by her own admission, she tested negative based on established, mainstream CDC criteria), let alone a chronic manifestation that was alleviated in any way by multiple rounds of long-term antibiotics, which have been decisively...
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    List of rare and uncommon diseases: differential and mis – diagnosis in ME/CFS

    I can appreciate this sentiment. But there may be rare or fringe cases that might not be considered as such if they are tested for - and found - more often. When my wife tested positive for her rare channelopathy gene she was only one of less than 100 in the entire world. Five years later and...
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    List of rare and uncommon diseases: differential and mis – diagnosis in ME/CFS

    Perhaps an alternative co-thread might be common diseases with inadequate diagnostics that could be misdiagnosed as ME/CFS. :)
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    List of rare and uncommon diseases: differential and mis – diagnosis in ME/CFS

    Babesiosis is considered rare. It can mimic ME/CFS. Ditto for B Miyamotoi, which is a relapsing fever and I believe is still considered rare. I second channelopathies.
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    Rubio Sends Letter to Pfizer CEO on Alleged Gain-of-Function Research

    But strains are a different species. When it comes to new strains, humans got a history with nudging nature.
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    Rubio Sends Letter to Pfizer CEO on Alleged Gain-of-Function Research

    Sometimes it is relevant. Sometimes accountability needs to matter. And the arrogance of it all can be terrifying.
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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    Give me a medical discipline and I will give you a discipline that has demonstrated a willingness to use psychology as a get-out-of-jail card. Cardiology. Pediatrics. Infectious disease. Rheumatology. I've personally experience it in three of the four. It seems to me, however, the most...
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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    Why qualify "muscle weakness" at all? Any qualifier here runs the risk of introducing a bias. It's like if I were to say "hillfolk-trained" neurologists, that qualifier may introduce a bias.
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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    I wonder if this is the literal translation. If so, it's strikes me as oddly hostile and disparaging for a disinterested scientific paper. Is there even such a thing as "flabby muscle"?
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    Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

    Kiss my ass. We've decades of this sort of bullshit. History enough to show it results in little more than unrelenting sickness and despair for millions.
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    (CDC) Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2023

    No, wrong question, imho. Fatigue is a sidebar, same as it is with the flu or cancer or MS. I would be loathe to qualify ME as a "fatigueing illness," no slight to Straus and company. God the CDC has a dark history in our circles. Focus on the package and PEM.
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    (CDC) Diagnosis and Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2023

    For sure. And it's not just pwME. It's LC and Lyme patients as well. There's history for you. It speaks to the democratization of medicine - the majority count more than the minority. We are literally talking millions of sick people here that are being kicked to the curbside, but our maelstrom...
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    Dynamic white matter changes in recovered COVID-19 patients: a two-year follow-up study 2023

    There's a template for this speak. There's a history. And it's not like it's a dead language. It's invoked whenever it serves as a means. Well, in that sense, maybe it is like a dead language, Latin. Only this language seems familiar. Is familiar. In part maybe because it's not as old as...
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    Dynamic white matter changes in recovered COVID-19 patients: a two-year follow-up study 2023

    They would also seem to provide an objective basis for NOT qualifying these patients as "recovered". Somebody please equip every medical researcher with a current dictionary.
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    Tick-Borne Disease Epidemic in Ireland?

    A few years back I had a discussion with an IDSA heavyweight who had issued a paper claiming there was no Lyme in a particular southern state in the US. In the paper he noted many state residents who had tested positive for Lyme with the vaunted CDC 2T, and his position was those must have been...
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    UK: Workshop - CBTReach - CBT for Persistent Physical Symptoms, Chalder - 9 May 2023

    Interesting choice of references (reference material) for the workshop. :)
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    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    There should be laws against gaslighting. At the very least, there should be a slew of required ethics courses in medical school which explain in screeching detail the harm levied by those who gaslight. These courses should be mandatory for any psych wannabees - much in the same way courses...
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