Search results

Full title: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in Patients with Post-COVID Symptoms Abstract Background: Post-COVID manifestation is defined as persistent symptoms or long-term complications beyond 4 weeks from disease...

These are the first studies on long covid that earned grant from the Hungarian National Academy of Sciences. There are more actually because they have awarded grants to non-medical studies too in connection with covid and also medical studies in connection with other complications after covid...

Abstract The Boston University-based Gulf War Illness Consortium (GWIC) is a multidisciplinary initiative developed to provide detailed understanding of brain and immune alterations that underlie Gulf War illness (GWI), the persistent multisymptom disorder associated with military service in...

So my ME brain has totally read this as "Dog attacks as a subtype of FND". I guess I shouldn't give them ideas though. :speechless:

I keep seeing this guy posting his writings frequently in one of the ME/CFS groups on Facebook (it is so frequent it is almost spamming). He rarely uses any references and when he does, they point to his own earlier writings with no references. I think in one of the Facebook comments he even...

Chartered Society of Physiotherapy: NICE publishes new guidance about ME/chronic fatigue syndrome "The publication of the new guidelines follows a delay to the guidance earlier this year. At the time the Institute explained that this was due to the complexities surrounding the condition...

More on this in the Guardian: UK launches trial of drug to tackle fatigue in long Covid patients

Fictional neurological disorder.

Symposium at the Hungarian National Academy of Sciences on 16th November: Current issues in post-COVID syndrome There will be a live stream on YouTube too, so anyone can watch it. It will take place between 10:00 and 16:30, quite a lengthy event. The programme (Google translate): As you can...

English-language article in the Budapest Business Journal. It is a promotional piece on long covid, an interview with someone from a private clinic, however, there are some interesting bits: This part is not particularly great: If no serious organ abnormalities are found, symptoms are often...

There's a new article: https://www.timesofisrael.com/feels-like-dying-israel-leading-world-by-recognizing-sorrow-of-chronic-pain/ It says that these rights are actually extended to chronic fatigue syndrome too, not just fibromyalgia and it puts a bit more emphasis on CFS this time.

ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...

I don't really have a dry mouth but feeling incredibly thirsty for no reason is an early sign of PEM for me. And yes, it doesn't matter how much I drink, the thirst just stays, it is unquenchable for quite a while.

This one is from Slovakia, not Hungary this time. (Slovakia has a sizeable Hungarian minority for historical reasons and they have their own Hungarian-language news sites, so I can read about what's going on there.) So the thing is: apparently, they don't have any long covid clinics there yet...

"Israel will recognize fibromyalgia, a once widely dismissed illness that involves chronic muscle pain, as a disability. People with the condition will be recognized as disabled within a few weeks, and will be able to claim up to 40 percent of a full disability allowance, Welfare and Social...

Yes, thanks, I saw that nothing was highlighted when I tried to copy it and just assumed that it cannot be copied for whatever reason (which would make sense on certain websites but not really for a patient organization, so it seemed quite odd of course). I

I very much agree with this, I've had the same period-related experience (although for me it returned to almost normal when I got better after the first two really difficult years). The point is that I regarded this as one of the less dismissible symptoms, since this is really not something...

Maybe you can ask here?: aokumu@stanford.edu They say you have to mention fecal swab study in the subject line to participate but you can probably ask them some questions too.

ME Action doesn't let me copy the text, so here is the link with the details: https://www.meaction.net/2021/10/19/stanford-study-enrolling-now/ In short: It's Ron Davis's lab, they are looking for severely ill, mostly bed-bound people from the US. What is needed: fecal swab sent by mail +...

Earlier I wrote about the roughly 1 million euros the Hungarian National Academy of Sciences is planning to spend on high risk research in connection with "post-covid phenomena". They want to fund 6-12 studies in the next 2 years. I think the original deadline was October (with actual research...