It is mostly due to workload issues in the case of Nina, but there have been some disagreements. PAG (through Opal) rightly raised the issue that having a clinician involved in the NICE implementation work is vital given Nina's departure.
This thread is really useful, and I haven't come across it before.
The 2019 thread is in the 'General ME/CFS news' forum. This thead is in the 'General ME/CFS discussion' forum (which is rather sparse).
I would suggest the best location for both threads is in the 'ME/CFS research news' forum...
"APPG Report. Charles advised publication is due to be launched on May 25th at 1530 at Portcullis House, Westminster."
I don't know anything about this.
https://www.bbc.co.uk/news/health-61255733
Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127
I'm getting terrible flashbacks of this time last year.
I don't know enough about this area, but running a charity (The Optimum Health Clinic Foundation) alongside a LTD company (The Optimum Health Clinic) seems suspicious. From the accounts, it seems that the charity's income is mostly from the LTD, and that this money is used on overheads such as...
This year's IACFS/ME conference is in July. More here: https://www.iacfsme.org/2022-conference-main-page/
I would start a new thread, but it is not clear yet if this is going to be streamed and that we can therefore participate in the conference somewhat. I suspect not.
Yesterday, I sent the following email to GinP and the editor:
Dear Gemma / Guidelines In Practice
My name is Dr Dom Salisbury, and I’m a patient with ME/CFS. I’m also a patient advocate, and a member of the ME Research Collaborative (MERC) Patient Advisory Group.
The Chair of MERC is Dr David...
This paper (https://mdpi-res.com/d_attachment/healthcare/healthcare-09-01331/article_deploy/healthcare-09-01331-v3.pdf?version=1634002990) cites another (reference 6: https://journals.sagepub.com/doi/10.1177/1742395316644770) that gives the 25% figure, but I can't access it.
Edit: The 25%...
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