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  1. InitialConditions

    United Kingdom: Action for ME (AfME) news

    Try again in a week or so!
  2. InitialConditions

    Selective inhibition of miRNA processing by a herpesvirus-encoded miRNA, 2022, Prusty et al

    ScienceDaily piece: https://www.sciencedaily.com/releases/2022/05/220504110408.htm
  3. InitialConditions

    United Kingdom: News from Forward-ME Group

    It is mostly due to workload issues in the case of Nina, but there have been some disagreements. PAG (through Opal) rightly raised the issue that having a clinician involved in the NICE implementation work is vital given Nina's departure.
  4. InitialConditions

    What ME/CFS research, funded by UK sources, is currently in process (as of end Jan 2022)?

    This thread is really useful, and I haven't come across it before. The 2019 thread is in the 'General ME/CFS news' forum. This thead is in the 'General ME/CFS discussion' forum (which is rather sparse). I would suggest the best location for both threads is in the 'ME/CFS research news' forum...
  5. InitialConditions

    United Kingdom: News from Forward-ME Group

    The APPG pages haven't been updated in a while and minutes are not routinely published there.
  6. InitialConditions

    United Kingdom: News from Forward-ME Group

    "APPG Report. Charles advised publication is due to be launched on May 25th at 1530 at Portcullis House, Westminster." I don't know anything about this.
  7. InitialConditions

    United Kingdom: News from Forward-ME Group

    Minutes from April Steering Group meeting: https://forward-me.co.uk/13th-april-2022/
  8. InitialConditions

    [BBC News] Exercise is good for joints with wear-and-tear arthritis

    https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.
  9. InitialConditions

    50 years ago, scientists were seeking the cause of psoriasis

    I think you forgot the link. https://www.sciencenews.org/article/50-years-ago-psoriasis-cause-infammation-skin
  10. InitialConditions

    Blog: The Great British Charity Swindle

    I don't know enough about this area, but running a charity (The Optimum Health Clinic Foundation) alongside a LTD company (The Optimum Health Clinic) seems suspicious. From the accounts, it seems that the charity's income is mostly from the LTD, and that this money is used on overheads such as...
  11. InitialConditions

    Preprint: Long-COVID post-viral chronic fatigue syndrome and affective symptoms are associated with oxidative damage.... Al-Hakeim et al, 2022

    This is Maes' (co-author) pet-theory for ME/CFS (and other chronic illnesses). He is simply applying it to LC now. Nothing but a hypothesis paper.
  12. InitialConditions

    International: IACFS/ME - International Association for CFS/ME, IACFSME

    This year's IACFS/ME conference is in July. More here: https://www.iacfsme.org/2022-conference-main-page/ I would start a new thread, but it is not clear yet if this is going to be streamed and that we can therefore participate in the conference somewhat. I suspect not.
  13. InitialConditions

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Ok, I used the link in the post above and I can see the image now.
  14. InitialConditions

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yesterday, I sent the following email to GinP and the editor: Dear Gemma / Guidelines In Practice My name is Dr Dom Salisbury, and I’m a patient with ME/CFS. I’m also a patient advocate, and a member of the ME Research Collaborative (MERC) Patient Advisory Group. The Chair of MERC is Dr David...
  15. InitialConditions

    The '25% have severe ME' statistic

    This paper (https://mdpi-res.com/d_attachment/healthcare/healthcare-09-01331/article_deploy/healthcare-09-01331-v3.pdf?version=1634002990) cites another (reference 6: https://journals.sagepub.com/doi/10.1177/1742395316644770) that gives the 25% figure, but I can't access it. Edit: The 25%...
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