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Please note that if this conference goes ahead, there may well be a significant number of presentations on long covid (specifically, I hope, on the LC cohort with ME/CFS or an ME/CFS-like illness). This is a reflections of the times, and a strategic decision to engage these researchers with the...

There are plans for an ME Research Collaborative (previously CMRC) conference later this year (September, if possible). We are currently putting together a draft agenda in the hope of approaching potential funders. The dates are not yet fully fixed. The conference will be hybrid (in-person and...

Which begs the question: is the infection gone if you have long-covid symptoms and there is evidence of viral persistence in tissue?

They've now edited to: "This is different to "long Covid", where symptoms persist after the infection has gone." and linked to the NHS page for long-Covid. :banghead:

I thought that, but Perrin seems like small fry compared with the BPS lot. I have known about him for years and still can't decide if he has good intentions or not.

A false statement that needs correcting. There is enough good evidence already that this is not the case in some patients.

Could we do a S4ME letter to editor and publisher?

There's a lot of dodgy stuff going on. In the current issue of the journal there are 4 papers, and 3 are by the same author, Adrian Heald, who is lead author on this paper. I suspect Heald has a link to this journal and has suggested publication here. And the Conflicts of Interest is a joke. No...

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David stated on a recent CMRC call that this article will reach thousands of healthcare professionals, probably via email subscription to the publication.

:slugish:

Once again, a totally meaningless study, because most of these patients will improve over time regardless of the intervention.

Yesterday I learned that sertraline affects endothelial function. The truth is that we really don't understand well how anti-depressants work, particularly SSRIs. They can have a strange array of effects. For example, fluvoxamine has possible anti-viral and anti-inflammatory effects and was used...

Thanks. Yes, there might be some material on that thread. I am interested in dicussion of their websites/materials/linked resources, rather than the services themselves.

There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the material on ME/CFS services' websites (and any literature they distribute to patients)? I'm sure we've...

Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...

I hope they were adequately compensated for their time. Perhaps in carrots.

If you mean in the research studies, I'm not sure. If you mean the patients followed in the doc, I'm also not sure, but there were four (I think), and two made good recoveries in time. They seemed to be moderately affected. Housebound etc.

If I re-watch, I will give a summary. But it's a few days now since I watched and I'm currently crashing.

This pre-dates the BPS school (as applied to ME/CFS). The psychs were saying no organic illness and basically blaming epidemic spread on hysteria or similar. Yes, there was biomedical research by Ramsey / Dowsett etc; in the film it shows a potential blood test to look at evidence of enterovirus...