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I agree. You'd usually see this post in a university department where there might be numerous grant-winning staff who need a bit of help and overall vision/strategy. There are barely any funds to supervise! Mainly DecodeME, but that should surely be being done by someone at Edinburgh.

AfME are advertising for a Research Director. https://www.actionforme.org.uk/get-information/about-us/work-or-volunteer-with-us/ Research Director Hours of work: Full-time, 35hrs a week Location: Home-based or Keynsham office Salary: £50,000 Be honest, have you ever heard about M.E.? Many...

I'm impressed by the Coronavirus APPG website (https://www.appgcoronavirus.uk/). It looks like Best For Britain are providing the secretariat, and the fancy website, which is interesting. The ME Association and AfME have just confirmed that they are continuing to provide the secretariat for the...

I know Keith has struggled for funding. It is not easy in academia, and it's probably worse in field a like ME/CFS. But I have no idea what he's applied for, how his proposals were rated, and why they were rejected. I also don't know if he's applied for salaried positions such as fellowships. I...

I've not followed this, but there are further shenanigans involving IncellDx / Patterson, regarding some sort of blood draw clinic in the UK for long-covid and/or vaccine-injured people. It looks like each party is blaming each other.

Thanks, but I think the bereavement benefits are now only given to people who are under the State Pension age.

Unfortunately my step-Dad passed away recently. I'm now helping my mum with lots of things including finances etc. I believe she is entitled to part of my step-Dad's state pension. They married before 2016 (which seems to be a cut-off), and my step-Dad reached state pension age before April...

There's a new Natelson paper out now: https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-022-03289-8

Or maybe he improved naturally with time, like most people after an infection.

I agree. I think BACME could be a worthwhile organisation *if they get it right*. BACME is the only form of central orgsanisation within the NHS system for ME/CFS patients as all the clinics and specialist services are individual entities commissioned by local CCGs and run by individual trusts...

Next BACME event: Journal Club: Hartle, M.; Bateman, L. and Vernon, S.D. (2021) Dissecting the nature of post-exertional malaise. https://www.bacme.info/civicrm/event/info?id=20

BACME is in the process of changing their name (whilst maintaining their acronym) to the 'British Association of Clinicians in ME/CFS', which I think is a small but positive step. This is now reflected in the text on their homepage (under 'Who Are We?'), though much of the material on the site...

I disagree. Both the Lancet piece and this piece focus on recent studies that purportedly add to evidence for CBT (not to mention the fact the study is from Norway...). I don't think this is a coincidence. Yes, this article is sort of dressed up a standard 'information' piece on 'CFS', but the...

Not read this, but it might meet your needs: https://bmjopen.bmj.com/content/8/9/e020775

Yes please. Thanks!

I think a lot of the US people used PR and then stayed on that forum. It's a US-based forum and quite US-centric. That's one reason.

I don't think you'll find many people here as most of us are not in the states. I do know a pwME in the US who I think had consultations with Klimas and who I think is a member of this forum. Message me if you want me to put you in contact with them.

Thank you.

Thanks Andy. Got that but was hoping to find their full published report analogous to AfME's: https://www.actionforme.org.uk/uploads/pdfs/Action-for-ME-annual-report-2020-2021-updated.pdf

Does anyone happen to have the most recent Annual/Financial/Trustee Report from the MEA? It's not on their website.