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  1. InitialConditions

    [BBC] What Covid-19's long tail is revealing about disease

    https://www.bbc.com/future/article/20210609-how-long-will-long-covid-last I don't think this has been posted yet. Apologies if I missed it. Reasonably good piece. Quite a few mentions of ME/CFS and speculation about the overlap and what's driving the illnesses.
  2. InitialConditions

    25% M.E. Group

    There won't be another delay. They can only report one delay to stakeholders.
  3. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think it's probably his house. Nice gaff! as they say...
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    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    I've never known someone getting a grant of nearly a quarter of a million as part of a PhD/doctoral training programme.
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    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Publications from the author, here: https://research-information.bris.ac.uk/en/persons/amberly-l-c-brigden/publications/
  6. InitialConditions

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    They really love throwing money at this crap, don't they? "I'm going to interview some kids, and do some crappy and patronising qualitative analysis based on questionnaires." MRC: Take our money!
  7. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    "I learned that my Covid-19 infection had probably induced a physiological stress response that put my brain in a state of high activation and had an immediate effect on my hormone, heart, gastrointestinal and immune systems." Paul discovers the concept of being ill.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He'd probably agree with them now.
  9. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes, I hadn't thought of that. Maybe the April meeting was cancelled. But surely they've not gone nearly three months without a meeting. They were part-way through going through the recommendations.
  10. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Actually, I emailed last month and had no reply. Perhaps someone else wants to try a further email.
  11. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    It looks like the most recent Committee meeting minutes haven't been published on the guideline website. The last minutes note that the next meeting was scheduled for 19 April. I assume this went ahead; there may have even been another meeting since then. Not good enough.
  12. InitialConditions

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Did someone have to log-in to get access to this webinar? Looking at the complaints procedure, any complaint might have to come from healthcare professionals getting the training...
  13. InitialConditions

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    But Health Education England is part of the NHS, and also has its own complaints system.
  14. InitialConditions

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    As I've just tweeted, this is medical abuse/harm in real time. I'm crashing at the moment and this has made me want to put my fist through a door in despair/frustration. Chalder is a danger. A dangerous charlatan. She's done no less harm than Wessely, White, or Sharpe.
  15. InitialConditions

    CDC Treatment Evidence Review - consultation period

    Some questions. Perhaps @Medfeb knows the answers... (i) Do organisations have to pre-register in any way, or can anyone submit a response? (ii) Is this a draft of a final product, or is this document used to, for example, create a set of guidelines/recommendations? It's really not very user...
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    CDC Treatment Evidence Review - consultation period

    I'm in favour of a S4ME response, and can probably contribute. I need to look through the review first and decide, and also see if the CMRC PAG wants to submit a response (though I suspect we might not due to other commitments).
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