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I have seen this quote and photo before, but think the only place it could have was the Doctors with ME post on the new guidelines with a number of quotes at the bottom. Yes, it is still there, see...

My GP flatly refuse to provide any information for benefits claims, to me, to my CAB support worker and to my social worker, not even when I offered to pay for them to do this privately.

Yes the 2007 guidelines advised we should have a care plan with regular (annual??) reviews.

Do you know if this also applies to PIP? [added - my original PIP award specified it was for three years, whereas my most recent did not indicate a time frame.]

Given the new guidelines indicate there are no treatments for ME/CFS, is this grounds for arguing the people with ME/CFS are unlikely to see significant changes in their symptoms over time, suggesting that any benefits reassessments are unlikely to produce different results and so should be much...

Though we can not be certain of the numbers either before or after, it is looking likely that the number of people with symptoms compatible with an ME/CFS diagnosis in the UK has more than doubled in the last year and a half. Given with Covid 19 the incidence of Long Covid is not related to...

I should give up on trying to create new threads, I delayed several days before attempting it, searched to see if anyone else had created a thread or posted it in a comment to another thread and still managed to create a duplicate.

In the blurb about the recent petition on creating a mechanism for reporting harms from psycho behavioural interventions the petition author said: Sending people off to general exercise classes and to personal trainers would seem to be a logical conclusion from this article as it is in effect...

Merged thread Because of concern that clinicians and specialist services will seek to subvert the new ME/CFS NICE guidelines, Sally Callow (MEFoggydog.org and stripylightbulb.com) has set up a petition on change.org, requesting a mechanism is set up so that patients can report harms from GET...

How insightful: And here is me thinking if you know what causes MUS it is not ‘medically unexplained’. Pure conjecture and innuendo, without any real evidence.

The very first line of this page, I would argue, is misleading: The best we can say is that ‘many people have persistent physical complaints that are not currently identified as symptoms of a medical condition, for some an underlying condition may subsequently be identified, but for others...

Presumably there are no necessary or formal constraints on NICE and Cochrane disagreeing with each other over GET, but hopefully it will put informal pressure Cochrane to speed up their reconsideration of their own contentious review of exercise in ME/CFS when the NICE evidence review came to...

I wonder if this article would be better regarded as a quasi political manifesto rather than a scientific review.

So this article is saying practitioners and clinicians believe that them telling people with long term conditions to be more physically active is likely overall to result in more benefits than harms, overall this may be true, however this does not necessarily entail that every individual with a...

This seems to be becoming a feature of the Lightening Process, if we are seeing a breakaway coach in Norway, as well as in New Zealand.

What is bizarre is that even if ‘idiopathic chronic fatigue’ exists as an objective and meaningfully diagnosable entity, why tie it to the label CFS which has such a history of confusion and conflict, and which is firmly linked to ME/CFS in so many minds and in current diagnostic codes. Further...

Presumably we need a good sales pitch for commissioning agents. Though I was much less immersed in the ME world, it seemed to me that the move to establish the existing specialist services related to the belief, helped by the 2007 guidelines and the PACE study, that you just had to provide...

I think I read on Facebook that it can be filled after the 8th of November deadline. Will see if I can find the post again.

I probably should have looked through the survey before starting, was OK for the closed questions, but when I got to the open ended questions it was beyond me just now. As there was not an obvious save option I just dropped out of answering, though hopefully I will come back and restart when my...

Unfortunately it does not seem to be too expensive to be paid for by research projects looking at its use in children (unless of course Parker sees this promotional activity as worth it and provides free courses), and papers like Prof Crawley’s irrevocably flawed SMILE trial, not only risk...