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I did experience a handful of episodes that subjectively felt like my ME switching on or off in the first five plus years, mainly when I was oscillating between mild and moderate, but have not experienced them since in the last twenty years plus when on average my ME has moved between moderate...

Generally there are very strict rules about NHS employees accepting financial inducements, and presumably most Universities would have similar guidelines. When I was still working we would even inform our line managers about a box of chocolates and then share them amongst the whole work place or...

Also why has Prof Crawley developed a number of studies looking at alternatives to current intervention using as subjects children still unwell following treatment by the Bath specialist service. Didn’t Crawley previously report a 95% success rate for the Bath clinic? How does she plan to...

What the authors say re ME/CFS

The final paragraph: Much better than most though no mention of PEM as found in ME/CFS (though ME/CFS is alluded to), of orthostatic intolerance, of use of two day CPET testing or of relevant research in other areas. [edited to clarify and correct typos]

Thinking back to being a manager of a staff team, though I was perhaps lucky to manage people following a vocation, I saw my role as supporting people to do their job efficiently, but also to ensure they did not try to do too much. In general I would say most people want to do work and often...

My ill health retirement was some six years after diagnosis, and a number of years working part time, but also I was at the point where it was a choice between dismissal due to poor attendance or ill health retirement. I still wonder though if from the start it was explained that I would likely...

Forgive me if this is a stupid question, but is this suggesting it is not possible with this study to distinguish between reduced blood supply to an area and reduced oxygen uptake for other reasons in that area?

And ignores the research showing people attending the UK specialist services are likely to be working fewer hours and claiming more benefits following this intervention.

An aside, this just reminded me of that nightmare period leading up to finishing work, it was a period of not knowing whether I would get any pension, whether I would be able to afford continuing living my own home or if I would end up having to move in with family at the other end of the...

Surely, cognitive dissonance. Crawley’s study of LP uses exactly the same experimental design as the PACE study and as hundreds of other studies coming up with results they really like. So if you accept this design produces nonsense results supporting a ‘woo woo’ alternative pseudo therapy, you...

Building on a couple of Facebook posts I made, and drawing on various comments here, I started to draft a response to the Royal Colleges’ joint statement. Now deciding I will not achieve the eloquence of either a Brian Hughes, a David Tuller or our own ME Skeptic duo, and that it may be weeks...

Following on from Brian Hughes incisive piece on the role of the medical Royal College, @dave30th has publish tonight a further Trial By Error blog pulling apart the defences mounted by two PACE authors and the contents of the joint Royal Colleges statement: see...

I assumed this was a largely financial issue, as he complained about all the paperwork involved in retiring then start again to work for the NHS the next day on a new contract. So an administrative retirement rather than a real retirement.

Presumably ‘all of our members’ refers not to everyone who did an LP course, rather those that wanted to be actively involved with the group behind the Voices of Recovery website. So a significant amount of preselection behind this statement.

When Prof Crawley published her Lightening Process study, I genuinely believed that this would be a major step forward in getting people to recognise the failings of the widespread use of subjective outcomes in unblinded trials, that such an obviously flawed study would be the reductio ad...

Unfortunately different people have different needs at different times and unpredictable co morbidities.

As always a great piece of writing.

A very big thank you to all who are getting their heads around the current press of information. I must admit it is taking me time to assimilate what is been published from various sources and I apologise if my contributions are non sequiturs or irrelevances. Hopefully I will catch up in time.

It is even sillier than you suggest @Jonathan Edwards, it implies no recovery is ever possible without conscious participation in the process, so presumably it is impossible to ever treat a neonate or someone in a coma and all of veterinary medicine must be throw out of the window.