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The Scientologists were big on this in the 1970s and 80s, arguing their version of meditation resulted in predictable changes in the meditators neurophysiology. What the few I asked seeking to present this evidence to University audiences failed to answer was ‘depending on your starting point...

Another supportive doctor’s Tweet lifted from a Facebook post: I don’t think this has already been shared, though I am getting lost in the press of information. My dreams tonight are even more bizarre than earlier when we were waiting to know when publication was happening.

A heartening medical response to the Royal Colleges statement Lifted from a Carole Bruce Facebook post

While agreeing being able to work is very important for self esteem and financial independence, this article makes no mention of the symptoms of PEM, cognitive issues/brain fog, etc, only suggests sleep hygiene as a means of managing fatigue, has no discussion of severity, no discussion of the...

And of course physiological findings could also be indicative of undiagnosed biomedical conditions, but if your subject group is heterogenous, possible containing a variety of undiagnosed other conditions, such studies are unlikely to find consistent group patterns.

This is a partly rhetorical question, and I have little or no enthusiasm to read the article to check if it actually has any new evidence, but is there anything in wide and wonderful claims for vagal nerve involvement beyond its anatomy and unblinded trials of vagal nerve stimulation?

Dr Shepherd posted this on the MEA Facebook page fairly recently:

I don’t think this has yet been shared, Invest in ME Research’s less than enthusiastic statement/press release on the new guidelines: see https://www.investinme.org/ng206-guidelines-publication-oct2021.shtml?fbclid=IwAR0jcb6F6hBPHqtmu8LVT_esYRCeoogavy5iYFCIshZT1-kBX8DlEQWvKtw

Good to see that David Tuller’s fund raising has achieved its full target today. @IanMcPhee, I had wanted to hang back in case David looked like struggling to get his target as that was time limited, but I feel it is also important to recognise Graham’s contribution to improving life for people...

I am assuming it is now OK for us to link to Valerie Eliot Smith’s blog, as her previous sharing of embargoed material no longer risks compromising our confidentiality agreements. Mod note: yes, it's fine. Her latest posting on the new guidelines is interesting in that it presents a...

NICE is partly based within the Royal College of Physicians and I think the staff that undertake the guidelines evidence compilation and review process are employed by the College, though I may have got that wrong. This was a potential worry when the new guidelines were paused in part because...

If not included in the Guidelines package, hopefully some of this will come out as a result of the FOI requests submitted, but still outstanding.

Have you seen the excellent S4ME press release in the second post of this thread https://www.s4me.info/threads/uk-nice-2021-me-cfs-guideline-published-29th-october-post-publication-discussion.22996/#post-385841 Some much information rushing in at present!

NICE have issued a ‘latest news’ piece on the new guidelines see https://www.nice.org.uk/news/article/nice-me-cfs-guideline-outlines-steps-for-better-diagnosis-and-management

Wasn’t it that the resignations came after well the guidelines committee had agreed the final guidelines, which had to happen before the various formal stages like the signing off by the Guidance Executive? Though I forget where I saw this, and I am struggling to find the timeline anymore on the...

Though the timing of the response to the three dates you requested, suggests it was more than just a work load issue, though that is likely to have been a factor. Rather that there was also a policy/political decision not to answer anything until after publication.

So it does look like, as suspected, that at a certain point in time NICE made a blanket decision not to answer any further FOI requests on the ME/CFS guidelines until after publication.

I am deliberately not reading any detail now in the middle of the night so as not to get too drawn in and rule out any chance of sleep, but I agree we need to look at this stakeholder feedback in detail, and consider how we can use this information to illustrate how little people, who ought to...

I was too impatient, it was published not one minute after midnight British Summer Time, but rather one minute after midnight Greenwich Mean Time (or for those of us more or less on the Greenwich meridian God’s time).

Had hoped that the NICE website would have been updated at one minute after midnight, but I guess we will have to wait for the resumption of office hours in the morning. Disappointing press response so far, given they generally seem to fail to grasp the main points that ME is more than just...