Search results

Given the alacrity of some of the GET/CBT defenders to slander and defame and the willingness of some journalists to repeat this unquestioned, it is import that there is no scope at all for them to twist the truth on issues like funding sources.

Interesting that previously there was the idea that other SARS virus related epidemics resulted in relatively high percentages of people developing ME, higher than you would expect from EBV infections. I forget my source, but using one set of figures relating to a previous SARS epidemic, a very...

For me the distinction between fatiguability and PEM is of central importance and can be widely missed by researchers. My definitions are something like: Subjectively the results of fatiguability are directly related to the triggering activity and are more or less immediately following on from...

My understanding is that all comments would be equally considered, but that only stakeholders’ comments would be published in full, other comments would only be summarised in the final document, which may mean some will feel they were not given the same weight if they are dissatisfied with the...

Thought once I wrote this that I would be asked, and am not sure how reliable my memory is. I thought I had seen a couple of submitted comments, but on reconsideration this may be confabulation. On reflection I suspect what I have read was the various published letters, ‘editorials’ and social...

Sad that my first thought is to question if something underhand is happening. Of the feedback to NICE I have seen, that basically supporting the rejection of the current BPS approach and even arguing for more radical change than in the draft, particularly from patient groups, was so much...

Also in the surveys we can not control for extraneous associated factors. For example for me getting the first vaccine injection involved leaving the house for the first time in over six months, getting somewhat euphoric (not sure if it was going out in good weather, meeting actual people other...

I am quite happy to contribute to any crowd funding to cover the cost of the boat charter transporting him to the said desert island.

Really enjoyed (if that is the right word) the latest Blog on asthma. Looking forward to more in the series.

To perhaps be guilty of mansplaining, I think it is important we demonstrate as much as possible the gender biases of the medical profession to ensure better management of conditions that impact on woman more than men and also to avoid the harms caused by MUS misdiagnoses. As a man I believe I...

It used to be a condition of the Home Office licences for animal research here in the UK that the animals were destroyed at the end of their research usefulness, I don’t know if that continues to be the case now. This, at least in the past, meant after the main research was done, that more...

Thank you I just saw the post ICU syndromes and missed the post viral syndromes.

Is it worrying that they make no mention of post viral fatigue or ME like symptoms?

Presumably there is nothing inherent in either condition that would confer immunity to the other, so one would expect that the incidence of someone with one condition getting the other is at least the same as that of the general population. However, given ME is currently a diagnosis of...

@cassava7 thank you for sending this concise and very much to the point response.

People take as their word roots an arbitrary point in time, even Roman and Greek words came from somewhere. Though we can speculate about possible original Indo-European or Sino-Tibetan or Afro-Asiatic parent roots for some words, this is still an arbitrary point in time and I suspect only a...

Surely every modern day usage of words represents a corruption of their root meanings if one goes back far enough, though we may not have written records that go back far enough to fully delineate this for all words. In general words evolve rather than spring into being fully formed. I would...

And if you look at orthostatic intolerance rather than just those that meet the diagnostic criteria for POTS the potential for heterogeneity becomes even greater.

We have some anecdotal reports of harm from participants in a number of the relevant trials that raises the possibility that they did not have adequate means recording any harms or of establishing why people dropped out at the various stages. Further the UK specialist services providing GET are...

There is potential confusion about onset, even with those whose ME onset is associated with an acute condition. In one sense I could say my onset was between 2pm and 2.15pm on a specific date twenty eight years ago, this was the onset of a bad headache that seamlessly became glandular fever...